Hoofdstuk 1 Introductie: psychologische interventies bij chronische somatische ziekten

Literatuur

Hoofdstuk 1 Introductie: psychologische interventies bij chronische somatische ziekten

Aspinwall, L.G., & Taylor, S.E. (1997). A stitch in time: Self-regulation and proactive coping. Psychological Bulletin, 121, 417-436. Aujoulat, I., d’Hoore, W., & Deccache A. (2007). Patient empowerment in theory and practice: Polysemy or cacophony. Patient Education and Counseling, 66, 13-20. Bandura, A. (1986). Social foundations of thought and action: A Social Cognitive Theory. Englewood Cliffs, NJ: Prentice-Hall. Bastelaar, K.M.P. van, Pouwer, F., Cuijpers, P., & Snoek, F.J. (2009). Online cognitieve gedragstherapie voor diabetespatiënten met depressieve klachten: een gerandomiseerd gecontroleerd onderzoek. Psychologie & Gezondheid, 37, 222-228. Dunbar-Jacob, J., & Mortimer-Stephens, M.K. (2001). Treatment adherence in chronic disease. Journal of Clinical Epidemiology, 54, S57-60. Epping-Jordan, J., Bengoa, R., Kawar, R., & Sabate, E. (2001). The challenge of chronic conditions: WHO responds. British Medical Journal, 323, 947-948. Garssen, B. (2009). Psychologische factoren bij het ontstaan en beloop van kanker. In H. de Haes, L. Gualthérie van Weezel, & R.Sanderman (red.), Psychologische patiëntenzorg in de oncologie (pp. 29-40). Assen: Van Gorcum. Gazmararian, J.A., Ziemer, D.C., & Barnes, C. (2009). Perceptions of barriers to self-care management among diabetic patients. Diabetes Educator, 35, 778-788. Hinnen, C., Ranchor, A.V., Baas, P.C., Sanderman, R., & Hagedoorn, M. (2009). Partner support and distress in women with breast cancer: The role of patients’ awareness of support and level of mastery. Psychology & Health, 24, 439-455. Ingleby, D. (2008). Waarom interculturele psychologie? In J. Knipscheer, & R. Kleber, Psychologie en de multiculturele samenleving (2de druk; pp. 27-47). Den Haag: Boom Onderwijs. Knipscheer, J., & Kleber, R. (2008). Psychologie en de multiculturele samenleving (2de druk). Den Haag: Boom Onderwijs. Knipscheer, J., Mooren, T., & Kurt, A. (2008). Klinische psychologie in cultureel perspectief. In J. Knipscheer, & R. Kleber, Psychologie en de multiculturele samenleving (2de druk; pp. 143160). Den Haag: Boom Onderwijs.

J. Jaspers, H. van Middendorp, Psychosociale zorg bij chronische ziekten, DOI 10.1007/978-90-313-8231-6, © 2010 Bohn Stafleu van Loghum, onderdeel van Springer Uitgeverij

158

Psychosociale zorg bij chronische ziekten Kool, M.B., Van Middendorp, H., Boeije, H.R, & Geenen, R. (2009). Understanding the lack of understanding: Invalidation from the perspective of the patient with fibromyalgia. Arthritis & Rheumatism – Arthritis Care & Research, 61, 1650-1656. Lerman, I. (2005). Adherence to treatment: The key for avoiding long-term complications of diabetes. Archives of Medical Research, 36, 300-306. Lin, E.H.B., Katon, W., Von Korff, M., Rutter, C., Simon, G.E., Oliver, M., Ciechanowski, P., Ludman, E.J., Bush, T., & Young, B. (2004). Relationship of depression and diabetes selfcare, medication adherence, and preventive care. Diabetes Care, 27, 2154-2160. Looise, B.J., Van der Poel, F., Bos, V. (2006). Diabeteseducatie in Nederland - State of the art van methoden en materialen. Woerden: Nationaal Instituut voor Gezondheidszorgbevordering en Ziektepreventie (NIGZ). Maes, S., Leventhal, H., & De Ridder, D. (1996). Coping with chronic disease. In M. Zeidner, & N. Endler (eds.), Handbook of coping: Theory, research, applications (pp. 221-251). New York: Wiley. Mens-Verhulst, J. van, & Bekker, M. (2008). Gezondheidspsychologie in een pluriforme samenleving. In J. Knipscheer, & R. Kleber, Psychologie en de multiculturele samenleving (2de druk; pp. 120-142 ). Den Haag: Boom Onderwijs. Polonsky, W.H., Anderson, B.J., Lohrer, P.A., Welch. G., Jacobson, A.M., Aponte, J.E., & Schwartz, C.E. (1995). Assessment of diabetes-related distress. Diabetes Care, 18, 754-760. Ridder, D. de, Geenen, R., Kuijer, R., & Van Middendorp, H. (2008). Psychological adjustment to chronic disease. Lancet, 372, 246-255. Rothenberg, R.B., & Koplan, J.P. (1990). Chronic disease in the 1990s. Annual Review of Public Health, 11, 267-296. Ryan, R.M., & Deci, E.L. (2002). An overview of self-determination theory. In E.L. Deci, & R.M. Ryan (eds.), Handbook of self-determination research (pp. 3-36). Rochester: The University of Rochester Press. Safford, M.M., Russell, L., Suh, D.C., Roman, S., & Pogach, L. (2005). How much time do patients with diabetes spend on self-care? Journal of the American Board of Family Practice, 18, 262-270. Sanchez, A., Grandes, G., Cortada, J.M., Pombo, H., Balaque, L., & Calderon, C. (2009). Modelling innovative interventions for optimising healthy lifestyle promotion in primary health care: “Prescribe Vida Saludable” phase I research protocol. BMC Health Services Research, 9, 103. Sloots, M., Scheppers, E.F., Van de Weg, F.B., Dekker, J.H., Bartels, E.A., Geertzen, J.H., & Dekker, J. (2009). Higher dropout rate in non-native patients than in native patients in rehabilitation in The Netherlands. International Journal of Rehabilitation Research, 32, 232237. Sprangers, M.A.G., De Regt, E.B., Andries, F., Van Agt, H.M.E., Bijl, R.V., De Boer, J.B., Foets, M., Hoeymans, N., Jacobs, A.E., Kempen, G.I.J.M., Miedema, H.S., Tijhuis, M.A.R., & De Haes, H.J.M. (2000). Which chronic conditions are associated with better or poorer quality of life? Journal of Clinical Epidemiology, 53, 895-907. Sprangers, M.A.G., & Schwartz, C.E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science & Medicine, 48, 1507-1515. Stanton, A.L., Collins, C.A., & Sworowski, L.A. (2001). Adjustment to chronic illness: Theory and research. In A. Baum, T.A. Revenson, & J.E. Singer (2001), Handbook of health psychology (pp. 387-403). Mahwah, NJ: Erlbaum.

Literatuur Stronks, K., Uniken Venema, P., Dahhan, N., & Gunning-Schepers, L.J. (1999). Allochtoon, dus ongezond? Mogelijke verklaringen voor de samenhang tussen etniciteit en gezondheid geïntegreerd in een conceptueel model. Tijdschrift voor Gezondheidswetenschappen (TSG), 77, 33-40. Taylor, S.E., & Aspinwall, L.G. (1996). Psychosocial aspects of chronic illness. In P.T. Costa & G.R. VandenBos (eds.), Psychological aspects of serious illness: Chronic conditions, fatal diseases, and clinical care (pp. 7-60). Washington, DC: American Psychological Association. Tennen, H., Affleck, G., Armeli, S., & Carney, M.A. (2000). A daily process approach to coping: Linking theory, research and practice. American Psychologist, 55, 626-636. Weijman, I., Ros, W.J.G., Rutten, G.E.H.M., Schaufeli, W.B., Schabracq, M.J., & Winnubst, J.A.M. (2005). Frequency and perceived burden of diabetes self-management activities in employees with insulin-treated diabetes: Relationships with health outcomes. Diabetes Research and Clinical Practice, 68, 56–64.

Hoofdstuk 2 Psychosociale interventies bij mensen met diabetes Adolfsson, E.T., Smide, B., Gregeby, E., Fernstrom, L., & Wikblad, K. (2004). Implementing empowerment group education in diabetes. Patient Education and Counseling, 53, 319-324. Anderson, R.J., Freedland, K.E., Clouse, R.E., & Lustman, P.J. (2001). The prevalence of comorbid depression in adults with diabetes: A meta-analysis. Diabetes Care, 24, 10691078. Anderson, R.M., Funnell, M.M., Barr, P.A., Dedrick, R.F., & Davis, W.K. (1991). Learning to empower patients. Results of professional education program for diabetes educators [published erratum: Diabetes Care, 1991, 14, 933]. Diabetes Care, 14, 584-590. Anderson, R.M., Funnell, M.M., Butler, P.M., Arnold, M.S., Fitzgerald, J.T., & Feste, C.C. (1997). Patient empowerment. Results of a randomized controlled trial. Diabetes Care, 18, 943-949. Anderson, R.M., Funnell, M.M., Carlson, A., Saleh-Statin, N., Cradock, S., & Skinner, T.C. (2000). Facilitating self-care through ompowerment. In F.J. Snoek, & T. C. Skinner (eds.), Psychology in diabetes care (1st ed., pp. 69-98). Chichester: John Wiley & Sons, LTD. Bech, P., & WHO (2004). WHO-5 questionnaires. www.who-5.org [online]. Bott, U., Bott, S., Hemmann, D., & Berger, M. (2000). Evaluation of a holistic treatment and teaching programme for patients with Type 1 diabetes who failed to achieve their therapeutic goals under intensified insulin therapy. Diabetic Medicine, 17, 635-643. Broers, S., Van Vliet, K.P., Le Cessie, S., Spinhoven, P., Van der Ven, N.C., & Radder, J.K. (2005). Blood glucose awareness training in Dutch type 1 diabetes patients: One-year follow-up. Netherlands Journal of Medicine, 63, 164-169. CBS (2009). www.cbs.nl/nl-NL/menu/themas/gezondheid-welzijn/publicaties/artikelen/ archief/2009/2009-2718-wm.htm. Clarke, W.L., Cox, D.J., Gonder Frederick, L.A., Julian, D., Schlundt, D., & Polonsky, W. (1995). Reduced awareness of hypoglycemia in adults with IDDM. A prospective study of hypoglycemic frequency and associated symptoms. Diabetes Care, 18, 517-522. Colton, P.A., Olmsted, M.P., Daneman, D., Rydall, A.C., & Rodin, G.M. (2007). Natural history and predictors of disturbed eating behaviour in girls with Type 1 diabetes. Diabetic Medicine, 24, 424-429. Cooper, H.C., Booth, K., & Gill, G. (2003). Patients’ perspectives on diabetes health care education. Health Education Research, 18, 191-206.

159

160

Psychosociale zorg bij chronische ziekten Cox, D.J., Gonder Frederick, L., Polonsky, W., Schlundt, D., Kovatchev, B., & Clarke, W. (2001). Blood glucose awareness training (BGAT-2): Long-term benefits. Diabetes Care, 24, 637-642. Cox, D.J., & Gonder Frederick, L. (1992). Major developments in behavioral diabetes research. Journal of Consulting and Clinical Psychology, 60, 628-638. Davies, M.J., Heller, S,, Khunti, K,, & Skinner, T.C. (2008). The DESMOND educational intervention. Chronic Illness, 4, 28-37. Diabetes Control and Complications Trial Research Group (1993). The effects of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. New England Journal of Medicine, 329, 977-986. Diabetes Control and Complications Trial Research Group (DCCT) (1996). Lifetime benefits and costs of intensive therapy as practiced in the diabetes control and complications trial. The Diabetes Control and Complications Trial Research Group [see comments] [published erratum: Journal of the American Medical Association, 1997, 278, 25]. Journal of the American Medical Association, 276, 1409-1415. Diabetespsychology.nl (2008). Diabetespsychology. www.diabetespsychology.nl [online]. Funnell, M.M., & Anderson, R.M. (2004). Empowerment and self-management of diabetes. Clinical Diabetes, 22, 123-127. Funnell, M.M., Anderson, R.M., Arnold, M.S., Barr, P.A., Donnelly, M., Johnson, P.D., et al. (1991). Empowerment: An idea whose time has come in diabetes education. Diabetes Educator, 17, 37-41. Glasgow, R.E., & Eakin, E.G. (2000). Medical office-based interventions. In F.J. Snoek, & T.C. Skinner (eds.), Psychology in diabetes care (1st ed., pp. 141-168). Chichester: John Wiley & Sons. Glasgow, R.E., Eakin, E.G., & Toobert, D.J. (1996). How generalizable are the results of diabetes self-management research? The impact of participation and attrition. Diabetes Educator, 22, 573-584. Glasgow, R.E., Hiss, R.G., Anderson, R.M., Friedman, N.M., Hayward, R.A., Marrero, D.G., et al. (2001a). Report of the health care delivery work group: Behavioral research related to the establishment of a chronic disease model for diabetes care. Diabetes Care, 24, 124130. Glasgow, R.E., McKay, H.G., Piette, J.D., & Reynolds, K.D. (2001b). The RE-AIM framework for evaluating interventions: What can it tell us about approaches to chronic illness management? Patient Education and Counseling, 44, 119-127. Gonder Frederick, L.A., & Cox, D.J. (1986). Behavioral responses to perceived hypoglycemic symptoms. Diabetes Education, 12, 105-109. Grigsby, A.B., Anderson, R.J., Freedland, K.E., Clouse, R.E., & Lustman, P.J. (2002). Prevalence of anxiety in adults with diabetes: A systematic review. Journal of Psychosomatic Research, 53, 1053-1060. Groot, M. de, Anderson, R., Freedland, K.E., Clouse, R.E., & Lustman, P.J. (2001). Association of depression and diabetes complications: A meta-analysis. Psychosomatic Medicine, 63, 619-630. Ismail, K., Thomas, S.M., Maissi, E., Chalder, T., Schmidt, U., Bartlett, J., Patel, A., Dickens. C.M., Creed, F., & Treasure, J. (2008). Motivational Enhancement Therapy with and without Cognitive Behavior Therapy to treat Type 1 diabetes. Annals of Internal Medicine, 149, 708-719.

Literatuur Ismail, K., Winkley, K., & Rabe-Hesketh, S. (2004). Systematic review and meta-analysis of randomised controlled trials of psychological interventions to improve glycaemic control in patients with type 2 diabetes. Lancet, 363, 1589-1597. Jacobson, A.M. (1996). The psychological care of patients with insulin-dependent diabetes mellitus. New England Journal of Medicine, 334, 1249-1253. Jonge, P. de, Roy, J.F., Saz, P., Marcos, G., & Lobo, A. (2006). Prevalent and incident depression in community-dwelling elderly persons with diabetes mellitus: Results from the ZARADEMP project. Diabetologia, 49, 2627-2633. Keers, J.C. (2004a). Diabetes rehabilitation: Effects and utilisation of a multidisciplinary intensive education programme [Dissertation]. Groningen: Northern Centre for Healthcare Research, University of Groningen. Keers, J.C., Blaauwwiekel, E.E., Hania, M., Bouma, J., Scholten Jaegers, S.M., Sanderman, R., et al. (2004b). Diabetes rehabilitation: Development and first results of a Multidisciplinary Intensive Education Program for patients with prolonged self-management difficulties. Patient Education and Counseling, 52, 151-157. Keers, J.C., Bouma, J., Links, T.P., Ter Maaten, J.C., Gans, R.O.B., Wolffenbuttel, B.H.R., et al. (2006). One-year follow-up effects of diabetes rehabilitation for patients with prolonged self-management difficulties. Patient Education and Counseling, 60, 16-23. Keers, J.C., Groen, H., Sluiter, W.J., Bouma, J., & Links, T.P. (2004c). Cost and benefits of a multidisciplinary intensive diabetes education programme. Journal of Evaluation in Clinical Practice, 11, 293-303. Knol, M.J., Twisk, J.W., Beekman, A.T., Heine, R.J., Snoek, F.J., & Pouwer, F. (2006). Depression as a risk factor for the onset of type 2 diabetes mellitus. A meta-analysis. Diabetologia, 49, 837-845. Lustman, P.J., & Clouse, R.E. (2002). Treatment of depression in diabetes: Impact on mood and medical outcome. Journal of Psychosomatic Research, 53, 917-924. Lustman, P.J., & Clouse, R.E. (2005). Depression in diabetic patients: The relationship between mood and glycemic control. Journal of Diabetes and its Complications, 19, 113-122. Lustman, P.J., Griffith, L.S., Clouse, R.E., Freedland, K.E., Eisen, S.A., Rubin, E.H., et al. (1997). Effects of nortriptyline on depression and glycemic control in diabetes: Results of a double-blind, placebo-controlled trial. Psychosomatic Medicine, 59, 241-250. McCulloch, D.K., Glasgow, R.E., Hampson, S.E., & Wagner, E. (1994). A systematic approach to diabetes management in the post-DCCT era. Diabetes Care, 17, 765-769. Miller, J.H. & Moyers, T. (2002). Motivational interviewing in substance abuse: Applications for occupational medicine. Occupational Medicine, 17, 51-65, iv. Mollema, E.D., Snoek, F.J., & Heine, R.J. (1999). Assessment of perceived barriers in selfcare of insulin-requiring diabetic patients. Patient Education and Counseling, 29, 277-281. Motivational Interviewing (2008). Motivational Interviewing. http://motivationalinterview.org/clinical/overview.html [online]. NIGZ (2006). State of the Art; NIGZ report diabeteseducatie. Pibernik-Okanovic, M., Prasek, M., Poljicanin-Filipovic, T., Pavlic-Renar, I., & Metelko, Z. (2004). Effects of an empowerment-based psychosocial intervention on quality of life and metabolic control in type 2 diabetic patients. Patient Education and Counseling, 52, 193-199. Polonsky, W.H. (1999). Diabetes Burnout: What to do when you can’t take it anymore (1st ed.) Alexandria: American Diabetes Association.

161

162

Psychosociale zorg bij chronische ziekten Pouwer, F., Beekman, A.T., Lubach, C., & Snoek, F.J. (2006). Nurses’ recognition and registration of depression, anxiety and diabetes-specific emotional problems in outpatients with diabetes mellitus. Patient Education and Counseling, 60, 235-240. Pouwer, F., Beekman, A.T., Nijpels, G., Dekker, J.M., Snoek, F.J., Kostense, P.J., et al. (2003). Rates and risks for co-morbid depression in patients with Type 2 diabetes mellitus: Results from a community-based study. Diabetologia, 46, 892-898. Pouwer, F., Snoek, F.J., Van der Ploeg, H.M., Ader, H.J., & Heine, R.J. (2001). Monitoring of psychological well-being in outpatients with diabetes - Effects on mood, HbA(1c), and the patient’s evaluation of the quality of diabetes care: A randomized controlled trial. Diabetes Care, 24, 1929-1935. Rijksinstituut voor Volksgezondheid en Milieu (RIVM) (2009). www.nationaalkompas. nl (versie 3.20). Rodin, G., Olmsted, M.P., Rydall, A.C., Maharaj, S.I., Colton, P.A., Jones, J.M., et al. (2002). Eating disorders in young women with type 1 diabetes mellitus. Journal of Psychosomatic Research, 53, 943-949. Ryan, C.M. (2006). Diabetes and brain damage: More (or less) than meets the eye? Diabetologia, 49, 2229-2233. Schachinger, H., Hegar, K., Hermanns, N., Straumann, M., Keller, U., Fehm Wolfsdorf, G., et al. (2005). Randomized controlled clinical trial of Blood Glucose Awareness Training (BGAT III) in Switzerland and Germany. Journal of Behavioral Medicine, 28, 587-594. Skinner, T.C., Carey, M.E., Cradock, S., Daly, H., Davies, M.J., Doherty, Y., et al. (2006). Diabetes Education and Self-Management for Ongoing and Newly Diagnosed (DESMOND): Process modelling of pilot study. Patient Education and Counseling, 64, 369-377. Snoek, F. (2004a). Diabetes Mellitus. In G.Pool, F. Heuvel, A. V. Ranchor, & R. Sanderman (eds.), Handboek psychologische interventies bj chronisch-somatische aandoeningen (pp. 489498). Assen: Van Gorcum. Snoek, F.J. (1-12-2004b). Bij hoog en bij laag: Rede uitgesproken op 1 december 2004 bij de aanvaarding van het ambt als hooglereaar Medische Psychologie, in het bijzonder Psychosociale Diabetologie aan de faculteit Geneeskunde van de Vrije Universiteit/VUMC. Snoek, F.J., Donker, F.J.S., Van Linden van den Heuvell, G.F.E.C., & Wierenga, W.S. (2004c). De inzet van de Medisch Psycholoog bij de behandeling van Diabetes Mellitus: Richtlijnen voor psychologische diagnostiek en behandeling (1st ed.). Sectie Psychologen Algemene/Academische Ziekenhuizen van het Nederlands Instituut van Psychologen. Snoek, F.J., Pouwer, F., Welch, G., & Polonsky, W.H. (2000). Diabetes related emotional distress in Dutch and U.S. diabetic patients. A cross-cultural validity of the Problem Areas in Diabetes Scale. Diabetes Care, 23, 1305-1309. Snoek, F.J., & Skinner, T.C. (2002). Psychological counselling in problematic diabetes: Does it help? Diabetic Medicine, 19, 265-273. Steed, L., Cooke, D., & Newman, S. (2003). A systematic review of psychosocial outcomes following education, self-management and psychological interventions in diabetes mellitus. Patient Education and Counseling, 51, 5-15. Surwit, R., Van Tilburg, M., Zucker, N., McCaskill, C., Parekh, P., Feinglos, M., et al. (2002). Stress management improves long-term glycemic control in type 2 diabetes. Diabetes Care, 25, 30-34. Swift, E.E., Chen, R., Hershberger, A., & Holmes, C.S. (2006). Demographic risk factors, mediators, and moderators in youths’ diabetes metabolic control. Annals of Behavioral Medicine, 32, 39-49.

Literatuur Ubink-Veltmaat, L.J. (2004). Type 2 diabetes mellitus in a Dutch region: Epidemiology and shared care. Groningen: University of Groningen. UKPDS (1998a). Effect of intensive blood-glucose control with metformin on complications in overweight patients with type 2 diabetes (UKPDS 34). UK Prospective Diabetes Study (UKPDS) Group [see comments] [published erratum: Lancet, 1998, 352, 1557]. Lancet, 352, 854-865. UKPDS (1998b). Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). UK Prospective Diabetes Study (UKPDS) Group [see comments]. Lancet, 352, 837-853. UKPDS (1998c). Quality of life in type 2 diabetic patients is affected by complications but not by intensive policies to improve blood glucose or blood pressure control (UKPDS 37). U.K. Prospective Diabetes Study Group. Diabetes Care, 22, 1125-1136. Ven, N.C.W. van de, Chatrou, M., & Snoek, F.J. (2000). Cognitive-Behavioural Group Training. In F.J.Snoek, & T. C. Skinner (eds.), Psychology in Diabetes Care (1st ed., pp. 207-234). Chichester: John Wiley & Sons, LTD. Welch, G.W., Jacobson, A.M., & Polonsky, W.H. (1997). The Problem Areas in Diabetes Scale. An evaluation of its clinical utility. Diabetes Care, 20, 760-766. Williams, M.M., Clouse, R.E., Nix, B.D., Rubin, E.H., Sayuk, G.S., McGill, J.B., et al. (2007). Efficacy of sertraline in prevention of depression recurrence in older versus younger adults with diabetes. Diabetes Care, 30, 801-806. Winkley, K., Ismail, K., Landau, S., & Eisler, I. (2006). Psychological interventions to improve glycaemic control in patients with type 1 diabetes: Systematic review and metaanalysis of randomised controlled trials. British Medical Journal, 333, 65-68A. Zettler, A., Duran, G., Waadt, S., Herschbach, P., & Strian, F. (1995). Coping with fear of long-term complications in deabetes mellitus: A model clinical program. Psychotherapy and Psychosomatics, 64, 178-184.

Hoofdstuk 3 Effecten van psychosociale interventies bij hart- en vaatziekten: coronaire hartziekten, hartfalen en cerebrovasculaire aandoeningen Abdelhafiz, A.H. (2002). Heart failure in older people: causes, diagnosis and treatment. Age and Ageing, 31, 29-36. Ades, P.A. (1999). Cardiac rehabilitation in older coronary patients. Journal of the American Geriatrics Society, 47, 98-105. Anderson, D., Deshaies, G., & Jobin, J. (1996). Social support, social networks and coronary artery disease rehabilitation: a review. Canadian Journal of Cardiology, 12, 739-744. Appels, A., Bär, F., Lasker, J., Flamm, U., & Kop, W. (1997). The effect of a psychosocial intervention program on the risk of a new coronary event after angioplasty, a feasibility study. Journal of Psychosomatic Research, 43, 209-217. Berkelmans, H., & Appelo, M. (2004). Evaluatie Cursus Hartstichting. Groningen: Research instituut GGZ Groningen. Bhogal, S.K., Teasell, R.W., Foley, N.C., & Speechley, M.R. (2003). Community reintegration after stroke. Top Stroke Rehabilitation, 10, 107-129. Boer, J. de, Boersma, S.N., De Gucht, V.M.J., Maes, S., & Schulte-van Maaren, Y.W.M. (2005). Psychosociale problemen bij hart- en vaatziekten. Bilthoven: Hartenark/Nederlandse Hartstichting.

163

164

Psychosociale zorg bij chronische ziekten Boersma, S.N. (2004). A self-regulation perspective on emotional distress and health-related quality of life after myocardial infarction. Dissertatie, Leiden: Universiteit Leiden. Bruggink, P.W.F., De la Porte, A., Lok, D.J.A., Van Veldhuisen, D.J. Van Wijngaarden, J., Cornel, J.H., Zuithoff, N.P.A., Badings, E., & Hoes, A.W. (2007). Added value of a physician-and-nurse-directed heart failure clinic: results from the Deventer-Alkmaar heart failure study. Heart, 93, 819-825. Buitelaar, K. Maes, M., De Gucht, V., & Van Erp, J. (2008). Psychosociale revalidatie bij hart- en vaatziekten. Een inventarisatie van de aangeboden psychosociale (na)zorg in Nederland. Den Haag: Nederlandse Hartstichting. Buselli, E.F., & Stuart, E. M. (1999). Influence of psychosocial factors and biopsychological interventions on outcomes after myocardial infarction. Journal of Cardiovascular Nursing, 13, 60-72. Donker, F.J.S. (2000). Cardiac rehabilitation: A review of current developments. Clinical Psychology Review, 20, 923-943. Dusseldorp, E., Van Elderen, T., Maes, S., Meulman, J., & Kraaij, V. (1999). A meta-analysis of psychoeducational programs for coronary heart disease patients. Health Psychology, 18, 506-519. Erp, J. van (2003). Aandacht voor draagkracht: omgaan met hartfalen. Een nazorgcursus voor patiënt en partner. Bilthoven: Hartenark/Nederlandse Hartstichting. Erp, J. van (2007), Verslag expertmeeting: Psychosociale zorg bij cva: focus op screening. Den Haag: Nederlandse Hartstichting. Erp, J. van, & Donders, P. (2004). Leven met verandering, Verslag van de symposiumreeks Coping en verwerking bij chronische ziekte. Bilthoven: Hartenark/Nederlandse Hartstichting. Erp, J. van, Hinnen, C., & Sanderman, R. (2006). Psychosociale zorg bij Hart- en Vaatziekten. Bilthoven: Hartenark/Nederlandse Hartstichting. Grant, J.S., Elliott, T.R., Giger, J.N., & Bartolucci, A.A. (2001). Social problem-solving telephone partnership with family caregivers of persons with stroke. International Journal of Rehabilitation Research, 24, 181-189. Hackett, M.L., Anderson, C.S., & House, A.O. (2004). Interventions for preventing depression after stroke (Cochrane Review). The Cochrane Library, (2), CD003689. Heuvel, E.T. van den, De Witte, L.P., Nooyen-Haazen, I., Sanderman, R., & Meyboom-de Jong, B. (2000). Short-term effect of a group support program and an individual support program for caregivers of stroke patients. Patient Education and Counseling, 40, 109-120. Heuvel, E.T. van den, De Witte, L.P., Schure, L.M., Sanderman, R., & Meyboom-de Jong, B. (2001). Risk factors for burn out in caregivers of stroke patients, and possibilities for intervention. Clinical Rehabilitation, 15, 669-677. Hochstenbach, J.B.H. (1998). Na een beroerte. Het opzetten van een nazorgprogramma voor CVApatiënten en hun omgeving. Maarssen: Elsevier/De Tijdstroom. Jaarsma, T., Halfens, R., Huijer Abu-Saad, H., Dracup, K., Van Ree, J., Cleuren, G. et al. (2001). Voorlichting aan en begeleiding van patiënten met chronisch hartfalen. Een effectstudie. Verpleegkunde, 16, 4-16. Jaarsma, T., Van der Wal, M.H.L., Hogenhuis, J., Lesman, I., Luttik, M.L.A., Veeger, N., & Van Veldhuisen, D.J. (2004). Design and methodology of the COACH study: a multicenter randomised Coordinating study evaluating Outcomes of Advising and Counselling in Heart failure. European Journal of Heart Failure, 6, 227-233.

Literatuur Jaarsma, T., Van der Wal, M.H., Lesman-Leegte, I., Luttik, M.L., Hogenhuis, J., Veeger, N.J., Sanderman, R., Hoes, A.W., Van Gilst, W.H., Lok, D.J., Dunselman, P.H., Tijssen, J.G., Hillege, H.L., & Van Veldhuisen, D.J. (2008). Coordinating Study Evaluating Outcomes of Advising and Counseling in Heart Failure (COACH) Investigators. Effect of moderate or intensive disease management program on outcome in patients with heart failure: Coordinating Study Evaluating Outcomes of Advising and Counseling in Heart Failure. Archives of Internal Medicine, 168, 316-324. Kabat-Zinn, J. (2004). Handboek meditatief ontspannen: Effectief programma voor het bestrijden van pijn en stress. Haarlem: Altamira-Becht. Kneebone, I.I., & Dunmore, E. (2000). Psychological management of post-stroke depression. Brittish Journal of Clinical Psychology, 39, 53-65. Koenig, G.H. (1998). Depression in hospitalized older patients with congestive heart failure. General Hospital Psychiatry, 20, 29-43. Kop, W.J., & Ader, D.N. (2001). Assessment and treatment of depression in coronary artery disease patients. Italian Heart Journal, 2, 890-894. Kostis, J.B., Rosen, R.C., Cosgrove, N.M., Shindler, D.M., & Wilson, A.C. (1994). Nonpharmacologic therapy improves functional and emotional status in congestive heart failure. Chest, 106, 996-1001. Lane, D., Caroll, D., & Lip, G.Y.H. (1999). Psychology in coronary care. QJM, 92, 425-431. Lesman-Leegte, I., Van Veldhuisen, D.J., Hillege, H.L., Moser, D., Sanderman, R., & Jaarsma, T. (2009). Depressive symptoms and outcomes in patients with heart failure: data from the COACH. European Journal of Heart Failure, 11, 1202-1207. Leidy, N.K., Rentz, A.M., & Zyczynski, T.M. (1999). Evaluating health-related-quality-oflife outcomes in patients with congestive heart failure. A review of recent randomized controlled trials. Pharmacoeconomics, 15, 19-46. Lincoln, N.B., & Flannaghan, T. (2003). Cognitive behavioral therapy for the treatment of depression after stroke. Stroke, 34, 111-115. Linden, W., Stossel, C., & Maurice, J. (1996). Psychological interventions for patients with coronary artery disease: a meta-analysis. Archives of Internal Medicine, 156, 745-752. Lloyd-Williams, F., Mair, F.S., & Leitner, M. (2002). Exercise training and heart failure: a systematic review of current evidence. British Journal for General Practice, 52, 47-55. Luskin, F., Reitz, M., Quinn, T.G., & Haskell, W. (2002). A controlled pilot study of stress management training of eldery patients with congestive heart failure. Preventive Cardiology, 5, 168-172. MacMahon, K.M., & Lip, G.Y. (2002). Psychological factors in heart failure: a review of the literature. Archives of Internal Medicine, 162, 509-516. McAlister, F.A., Stewart, S., Ferrua, S., & McMurray, J.J. (2004). Multidisciplinary strategies for the management of heart failure patients at high risk for admission: a systematic review of randomized trials. Journal of the American College of Cardiology, 44, 810-819. McGillion, M., Watt-Watson, J., Kim, J., & Yamada, J. (2004). A systematic review of psychoeducational intervention trials for the management of chronic stable angina. Journal of Nursing Management, 12, 174-182. McLeod, A.A. (2001). Later management of documented ischaemic heart disease: secondary prevention and rehabilitation. British Medical Bulletin, 59, 113-133. Minkman, M.M.N., & Binkhorst, T. Het Chronic Care Model: bundeling van effectieve interventies. Kwaliteit in beeld, 2006.

165

166

Psychosociale zorg bij chronische ziekten Mookadam, F., & Arthur, H.M. (2004). Social support and its relationship to morbidity and mortality after acute myocardial infarction: systematic overview. Archives of Internal Medicine, 164, 1514-1518. Moser, D.K., Kim, K.A., & Baisden-O’Brien, J. (1999). Impact of a nonpharmalogical cognitive intervention on clinical and psychological outcomes in patients with heart failure. Journal of Cardiovascular Nursing 14, 106-115. Newman, S. (2004). Engaging patients in managing their cardiovascular health. Heart, 90, iv9-13. Philips, C.O., Wright, S.M., Kern, D.E., Singa, R.M., Shepperd, S., & Rubin, H.R. (2004). Comprehensive discharge planning with postdischarge support for elder patients with congestive heartfailure: a meta-analysis. JAMA, 291, 1358-1367. Rees, K., Bennett, P., West, R., Davey Smith, G., & Elbrahim, S. (2004). Psychological interventions for coronary heart disease. Cochrane Database Systematic Review, (2), CD002902. Rich, M.W. (1999). Heart failure disease management: a critical review. Journal of Cardiac Failure, 5, 64-75. Rich, M.W. (2003). Heart failure in the elderly: strategies to optimize outpatient control and reduce hospitalizations. American Journal of Geriatric Cardiology, 12, 19-24. Richardson, L.G. (2003). Psychosocial issues in patients with congestive heart failure. Progress in Cardiovascular Nursing, 18, 19-27. Robinson, K.R. (1999). Envisioning a network of care for at-risk patients after myocardial infarction. Journal of Cardiovascular Nursing, 14, 75-88. Rutledge, T., Reis, V.A., Linke, S.E., Greenberg B.H., & Mills, P.J. (2006). Depression in heart failure: a meta-analytic review of prevalence, intervention effects, and associations with clinical outcomes.Journal of the American College of Cardiology, 48, 1527-1537. Schouten, R.Y., & Van Erp, J. (2008). Expert-meeting Psychosociale zorg bij Coronaire Hartziekten en Hartfalen. Den Haag: Nederlandse Hartstichting. Schure, L.M. (2003). Verder na een beroerte: een interventie ter ondersteuning van mantelzorgers van CVA-patiënten. Gedrag & Gezondheid, 31, 282-291. Schipper, K., Hendrikx, A., Dauwerse, L., Willems, V., & Abma, T. (2010). Deelnemen, geven en zijn. Eindrapportage sociaal maatschappelijke participatie van mensen met niet-aangeboren hersenletsel vanuit patiëntenperspectief. Amsterdam: VU Medisch Centrum. Schipper, K., & Pauw, P. (2009). Pilot ‘Aandacht voor Draagkracht bij hersenletsel’ Eindrapportage. Utrecht: Reinaerde. Struijs, J.N., & Grundy, C.M. (2003). Beroerte. In C.A. Baan, J.B.F. Hutten, & P.M. Rijken (red.), Afstemming in de zorg. Een achtergrondstudie naar de zorg voor mensen met een chronische aandoening. RIVM-rapport 282701005 (p. 143-174). Bilthoven: RIVM. Swanson, E.A., Jenson, D.P., Specht, J., Johnson, M.L., & Maas, M. (1997). Caregiving: concept analysis and outcomes. Inquiry for Nursing Practice: An International Review, 1, 65-76. The ENRICHD investigators (2003). Effects of treating depression and low perceived social support on clinical events after myocardial infarction. JAMA, 289, 3106-3116. Vaartjes, I., Reitsma, J.B., De Bruin, A., & Bots, M.L. (2008). Verschillen tussen mannen en vrouwen in sterftekans na een eerste ziekenhuisopname vanwege hartfalen. In I. Vaartjes, R.J.G. Peters, S.J. van Dis, & M.L. Bots. Hart- en vaatziekten in Nederland 2008, cijfers over ziekte en sterfte. Den Haag: Nederlandse Hartstichting. Van den Broucke, S. (1999). Leven na een CVA. Bespreking van ‘Na een beroerte. Het opzetten van een nazorgprogramma voor CVA-patiënten en hun familie’. Gedrag & Gezondheid, 27, 167-169.

Literatuur Van Heugten, C., & Moennekens, M. (2002). Terugkomdagen voor CVA-revalidanten en hun partners. Nederlandse Vereniging van Revalidatieartsen. Gevonden op 29 maart 2006 op http://www/revalidatiegeneeskunde.nl. ZonMw, Coördinatieplatform zorgstandaarden, Diseasemanagement chronische ziekten (2009). Standaard voor zorgstandaarden.

Hoofdstuk 4 Psychologische interventies bij reumatische aandoeningen Altman, R., Alarcon, G., Appelrouth, D., Bloch, D., Borenstein, D., Brandt, K., Brown, C., Cooke, T.D., Daniel, W., & Feldman, D. (1991). The American College of Rheumatology criteria for the classification and reporting of osteoarthritis of the hip. Arthritis and Rheumatism, 34, 505-514. Baar, M. van, Assendelft, W.J., Dekker, J., Oostendorp, R.A., & Bijlsma, J.W. (1999). Effectiveness of exercise therapy in patients with osteoarthritis of the hip or knee: A systematic review of randomized clinical trials. Arthritis and Rheumatism, 42, 1361-1369. Boersma, K., & Linton, S.J. (2005). Screening to identify patients at risk: Profiles of psychological risk factors for early intervention. The Clinical Journal of Pain, 21, 38-43. Bortz, W.M. (1984). The disuse syndrome. The Western Journal of Medicine, 141, 691-694. Crombez, G., Eccleston, C., Van den Broeck, A., Goubert, L., & Van Houdenhove, B. (2004). Hypervigilance to pain in fibromyalgia: The mediating role of pain intensity and catastrophic thinking about pain. The Clinical Journal of Pain, 20, 98-102. De Jong, J.R., Vlaeyen, J.W., Onghena, P., Goossens, M.E., Geilen, M., & Mulder, H. (2005). Fear of movement/(re)injury in chronic low back pain: Education or exposure in vivo as mediator to fear reduction? Clinical Journal of Pain, 21, 9-17. Dekker, J., Boot, B., Van der Woude, L.H., & Bijlsma, J.W. (1992). Pain and disability in osteoarthritis: A review of biobehavioral mechanisms. Journal of Behavioral Medicine, 15, 189-214. Dekker, J., Kraaimaat, F.W., & Geenen, R. (2006). Reumatische aandoeningen. In: A.A. Kaptein, R. Beunderman, J. Dekker, & A.J.J.M. Vingerhoets (eds.), Psychologie en geneeskunde - Behavioral Medicine (pp. 175-192). Houten: Bohn Stafleu van Loghum. Dixon, K.E., Keefe, F.J., Scipio, C.D., Perri, L.M., & Abernethy, A.P. (2007). Psychological interventions for arthritis pain management in adults: A meta-analysis. Health Psychology, 26, 241-250. Dobkin, P.L., De Civita, M., Abrahamowicz, M., Baron, M., & Bernatsky, S. (2006). Predictors of health status in women with fibromyalgia: A prospective study. International Journal of Behavioral Medicine, 13, 101-108. Ende, C.H. van den, Vliet Vlieland, T.P., Munneke, M., & Hazes, J.M. (2000). Dynamic exercise therapy for rheumatoid arthritis. Cochrane Database of Systematic Reviews, 2, CD000322. Evers, A.W., Kraaimaat, F.W., Geenen, R., & Bijlsma, J.W. (1998). Psychosocial predictors of functional change in recently diagnosed rheumatoid arthritis patients. Behaviour Research and Therapy, 36, 179-193. Evers, A.W., Kraaimaat, F.W., Geenen, R., Jacobs, J.W., & Bijlsma, J.W. (2002a). Longterm predictors of anxiety and depressed mood in early rheumatoid arthritis: A 3 and 5 year follow-up. Journal of Rheumatology, 2, 2327-2336.

167

168

Psychosociale zorg bij chronische ziekten Evers, A.W., Kraaimaat, F.W., Geenen, R., Jacobs, J.W., & Bijlsma, J.W. (2003a). Pain coping and social support as predictors of long-term functional disability and pain in early rheumatoid arthritis. Behaviour Research and Therapy, 41,1295-1310. Evers, A.W., Kraaimaat, F.W., Geenen, R., Jacobs, J.W., & Bijlsma, J.W. (2003b). Stress-vulnerability factors as long-term predictors of disease activity in early rheumatoid arthritis. Journal of Psychosomatic Research, 55, 293-302. Evers, A.W., Kraaimaat, F.W., Van Lankveld, W., Jongen, P.J., Jacobs, J.W., & Bijlsma, J.W. (2001). Beyond unfavorable thinking: The Illness Cognition Questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69, 1026-1036. Evers, A.W., Kraaimaat, F.W., Van Riel, P.L., & De Jong, A.J. (2002b). Tailored cognitivebehavioral therapy in early rheumatoid arthritis for patients at risk: A randomized controlled trial. Pain, 100, 141-153. Felson, D.T., & Zhang, Y. (1998). An update on the epidemiology of knee and hip osteoarthritis with a view to prevention. Arthritis and Rheumatism, 41, 1343-1355. Fransen, M., McConnell, S., & Bell, M. (2002). Therapeutic exercise for people with osteoarthritis of the hip or knee. A systematic review. Journal of Rheumatology, 29, 1737-1745. Geenen, R., Van Middendorp, H., & Bijlsma, J.W. (2006). The impact of stressors on health status and hypothalamic-pituitary-adrenal axis and autonomic nervous system responsiveness in rheumatoid arthritis. Annals of the New York Academy of Sciences, 1069, 77-97. Gowans, S.E., & deHueck, A. (2004). Effectiveness of exercise in management of fibromyalgia. Current Opinion in Rheumatology, 16, 138-142. Hadhazy, V.A., Ezzo, J., Creamer, P., Berman, B.M., & McCain, G.A. (2000). Mind-body therapies for the treatment of fibromyalgia. A systematic review. Journal of Rheumatology, 27, 2911-2918. Hakkinen, A. (2004). Effectiveness and safety of strength training in rheumatoid arthritis. Current Opinion in Rheumatology, 16, 132-137. Hasenbring, M. (2000). Attentional control of pain and the process of chronification. Progress in Brain Research, 129, 525-534. Hasenbring, M.I., Plaas, H., Fischbein, B., & Willburger, R. (2006). The relationship between activity and pain in patients 6 months after lumbar disc surgery: Do pain-related coping modes act as moderator variables? European Journal of Pain, 10, 701-709. Hawley, D.J (1995). Psycho-educational interventions in the treatment of arthritis. Baillieres Clinical Rheumatology, 9, 803-823. Hawley, D.J., & Wolfe, F. (1993). Depression is not more common in rheumatoid arthritis: A 10-year longitudinal study of 6,153 patients with rheumatic disease. Journal of Rheumatolog, 20, 2025-2031. Hauser, W., Bernardy, K., Arnold, B., Offenbacher, M., & Schiltenwolf, M. (2009). Efficacy of multicomponent treatment in fibromyalgia syndrome: A meta-analysis of randomized controlled clinical trials. Arthritis and Rheumatism, 61, 216-224. Huyser, B., & Parker, J.C. (1998). Stress and rheumatoid arthritis: An integrative review. Arthritis Care and Research, 11, 135-145. Jong, Z. de, & Vliet Vlieland, T.P. (2005). Safety of exercise in patients with rheumatoid arthritis. Current Opinion in Rheumatology, 17, 177-182. Keel, P.J., Bodoky, C., Gerhard, U., & Muller, W. (1998). Comparison of integrated group therapy and group relaxation training for fibromyalgia. Clinical Journal of Pain, 14, 232-238.

Literatuur Koulil, S. van, Den Boer, J.J., Samwel, H.J., Pothof, E., Van Riel, P.L.C.M. & Evers, A.W.M. (2008a). Van pijnvermijding naar pijnpersistentie: Screening en cognitieve gedragstherapie op maat bij chronische pijn. Gedragstherapie, 41, 15-26. Koulil, S. van, Effting, M., Kraaimaat, F.W., Van Lankveld, W., Van Helmond, T., Cats, H., Van Riel, P.L.C.M., De Jong, A.J.L., Haverman, J.F., & Evers, A.W.M. (2007). A review of cognitive behaviour therapies and exercise programmes for fibromyalgia patients: State of the art and future directions. Annals of the Rheumatic Diseases, 66, 571-581. Koulil, S. van, Kraaimaat, F.W., Van Lankveld, W., Van Helmond, T., Van Riel, P.L.C.M., Cats, H., & Evers A.W.M (2009). Tailored cognitive-behavioral therapy for patients with fibromyalgia: A randomized, controlled trial. Poster presented at the World Congress of Psychosomatic Medicine, Turijn. Koulil, S. van, Kraaimaat, F.W., Van Lankveld, W., Van Helmond, T., Vedder, A, Van Hoorn, H., Cats, H., Van Riel, P.L.C.M., & Evers, A.W.M. (2008b). Screening for pain-persistence and pain-avoidance patterns in fibromyalgia. International Journal of Behavioral Medicine, 15, 211-220. Koulil, S. van, Van Lankveld, W., Kraaimaat, F.W., Van Helmond, T., Vedder, A., Van Hoorn, H., Cats,H., Van Riel, P.L.C.M., & Evers, A.W.M. (2008c). Tailored cognitive-behavioral therapy for fibromyalgia: Two case studies. Patient Education and Counseling, 71, 308-314. Koulil, S. van, Van Lankveld, W., Kraaimaat, F.W., Van Riel, P.L., & Evers, A.W. (2009). Risk factors for longer term psychological distress in well-functioning fibromyalgia patients: A prospective study into prognostic factors. Patient Education and Counseling. doi:10.1016/ j.pec.2009.08.00). Leeuw, M., Goossens, M.E., Van Breukelen, G.J., De Jong, J.R.,, Heuts, P.H., Smeets, R.J., Köke, A.J., & Vlaeyen, J.W. (2008). Exposure in vivo versus operant graded activity in chronic low back pain patients: Results of a randomized controlled trial. Pain, 138, 192207. Lethem, J., Slade, P.D., Troup, J.D., & Bentley, G. (1983). Outline of a Fear-Avoidance Model of exaggerated pain perception–I. Behaviour Research and Therapy, 21, 401-408. Lindstrom, I., Ohlund, C., Eek, C., Wallin, L., Peterson, L.E., Fordyce, W.E., & Nachemson, A.L. (1992). The effect of graded activity on patients with subacute low back pain: A randomized prospective clinical study with an operant-conditioning behavioral approach. Physical Therapy, 72, 279-290. Lorig, K.R., Ritter, P.L., Laurent, D.D., & Plant, K. (2008). The internet-based arthritis selfmanagement program: A one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis and Rheumatism, 59, 1009-1017. Mannerkorpi, K. (2005). Exercise in fibromyalgia. Current Opinion in Rheumatology, 17, 190194. McCracken, L.M. (1997). “Attention” to pain in persons with chronic pain: A behavioral approach. Behavior Therapy, 28, 271-284. Miedema, H.S, Van der Linden, S.M., Rasker, J.J., & Valkenburg, H.A. (1998). National database of patients visiting rheumatologists in The Netherlands: The standard diagnosis register of rheumatic diseases. A report and preliminary analysis. British Journal of Rheumatology, 37, 555-561. Nicassio, P.M., Schoenfeld-Smith, K., Radojevic, V., & Schuman, C. (1995). Pain coping mechanisms in fibromyalgia: Relationship to pain and functional outcomes. Journal of Rheumatology, 22, 1552-1558.

169

170

Psychosociale zorg bij chronische ziekten Philips, H.C. (1987). Avoidance behaviour and its role in sustaining chronic pain. Behaviour Research and Therapy, 25, 273-279. Pradhan, E.K., Baumgarten, M., Langenberg, P., Handwerger, B., Kaplan Gilpin, A., Magyari, T., Hochman, R.F., & Bernard, A.L. (2007). Effect of mindfulness-based stress reduction in rheumatoid arthritis patients. Arthritis and Rheumatism, 57, 1134-1142. Prins, J.B., Bleijenberg, G., Bazelmans, E., Elving, L.D., De Boo, T.M., Severens, J.L., Van der Wilt, G.J., Spinhoven, P., & Van der Meer, J.W. (2001). Cognitive behaviour therapy for chronic fatigue syndrome: A multicentre randomised controlled trial. Lancet, 357, 841-847. Riemsma, R.P., Kirwan, J.R., Taal, E., & Rasker, J.J. (2003). Patient education for adults with rheumatoid arthritis. Cochrane Database of Systematic Reviews, 2, CD003688. Rossy, L.A., Buckelew, S.P., Dorr, N., Hagglund, K.J., Thayer, J.F., McIntosh, M.J., Hewett, J.E., & Johnson, J.C. (1999). A meta-analysis of fibromyalgia treatment interventions. Annals of Behavioral Medicine, 21, 180-191. Sharp, T.J. (2001). Chronic pain: A reformulation of the cognitive-behavioural model. Behaviour Research and Therapy, 39, 787-800. Sharpe, L., Sensky, T., Timberlake, N., Ryan, B., Brewin, C.R., & Allard, S. (2001). A blind, randomized, controlled trial of cognitive-behavioural intervention for patients with recent onset rheumatoid arthritis: Preventing psychological and physical morbidity. Pain, 89, 275-283. Sim, J., & Adams, N. (2002). Systematic review of randomized controlled trials of nonpharmacological interventions for fibromyalgia. Clinical Journal of Pain, 18, 324-336. Sinclair, V.G., & Wallston, K.A. (2001). Predictors of improvement in a cognitive-behavioral intervention for women with rheumatoid arthritis. Annals of Behavioral Medicine, 23, 291297. Steultjens, M.P., Dekker, J., & Bijlsma, J.W. (2001). Coping, pain, and disability in osteoarthritis: A longitudinal study. Journal of Rheumatology, 28, 1068-1072. Thieme, K., Flor, H., & Turk, D.C. (2006). Psychological pain treatment in fibromyalgia syndrome: Efficacy of operant behavioural and cognitive behavioural treatments. Arthritis Research and Therapy, 8, R121. Thieme, K., Gromnica-Ihle, E., & Flor, H. (2003). Operant behavioral treatment of fibromyalgia: A controlled study. Arthritis and Rheumatism, 49, 314-320. Turk, D.C. (1990). Customizing treatment for chronic pain patients: Who, what, and why. Clinical Journal of Pain, 6, 255-270. Turk, D.C., & Okifuji, A. (1997). Evaluating the role of physical, operant, cognitive, and affective factors in the pain behaviors of chronic pain patients. Behavior Modification, 21, 259-280. Turk, D.C., Okifuji, A., Sinclair, J.D., & Starz, T.W. (1996). Pain, disability, and physical functioning in subgroups of patients with fibromyalgia. Journal of Rheumatology, 23, 12551262. Turk, D.C., Okifuji, A., Sinclair, J.D., & Starz, T.W. (1998a). Differential responses by psychosocial subgroups of fibromyalgia syndrome patients to an interdisciplinary treatment. Arthritis Care and Research, 11, 397-404. Turk, D.C., Okifuji, A., Sinclair, J.D., & Starz, T.W. (1998b). Interdisciplinary treatment for fibromyalgia syndrome: Clinical and statistical significance. Arthritis Care and Research, 11, 186-195. Van Houdenhove, B., & Egle, U.T. (2004). Fibromyalgia: A stress disorder? Piecing the biopsychosocial puzzle together. Psychotherapy and Psychosomatics, 73, 267-275.

Literatuur Van Houdenhove, B., Neerinckx, E., Onghena, P., Lysens, R., & Vertommen, H. (2001). Premorbid “overactive” lifestyle in chronic fatigue syndrome and fibromyalgia. An etiological factor or proof of good citizenship? Journal of Psychosomatic Research, 51, 571-576. Veenhof, C., Köke, A.J., Dekker, J., Oostendorp, R.A., Bijlsma, J.W., Van Tulder, M.W., & Van den Ende, C.H. (2006). Effectiveness of behavioral graded activity in patients with osteoarthritis of the hip and/or knee: A randomized clinical trial. Arthritis and Rheumatism, 55, 925-934. Veenhof, C., Van den Ende, C.H., Dekker, J., Köke, A., Oostendorp, R.A., & Bijlsma, J. (2007). Which patients with osteoarthritis of hip and/or knee benefit most from behavioral graded activity? International Journal of Behavioral Medicine, 14, 86-91. Vlaeyen, J.W., De Jong, J., Geilen, M., Heuts, P.H., & Van Breukelen, G. (2001). Graded exposure in vivo in the treatment of pain-related fear: A replicated single-case experimental design in four patients with chronic low back pain. Behaviour Research and Therapy, 39, 151-666. Vlaeyen, J.W., De Jong, J.R., Sieben, J., & Crombez, G. (2002). Graded exposure in vivo for pain-related fear. In D.C. Turk, & R.J. Gatchel (eds.), Psychological approaches to pain management: A practitioner’s handbook (pp. 210-233). New York: Guilford Press. Vlaeyen, J.W., & Morley, S. (2004). Active despite pain: The putative role of stop-rules and current mood. Pain, 110, 512-516. Wigers, S.H. (1996). Fibromyalgia outcome: The predictive values of symptom duration, physical activity, disability pension, and critical life events--A 4.5 year prospective study. Journal of Psychosomatic Research, 41, 235-243. Wolfe, F., & Hawley, D.J. (1997). Measurement of the quality of life in rheumatic disorders using the EuroQol. British Journal of Rheumatology, 36, 786-793. Wolfe, F., Hawley, D.J., & Wilson, K. (1996). The prevalence and meaning of fatigue in rheumatic disease. Journal of Rheumatology, 23, 1407-1417. Wolfe, F., Ross, K., Anderson, J., Russell, I.J., & Hebert, L. (1995). The prevalence and characteristics of fibromyalgia in the general population. Arthritis and Rheumatism, 38, 19-28. Wolfe, F., & Skevington, S.M. (2000). Measuring the epidemiology of distress: The rheumatology distress index. Journal of Rheumatology, 27, 2000-2009. Wolfe, F., Smythe, H.A., Yunus, M.B., Bennett, R.M., Bombardier, C., Goldenberg, D.L., Tugwell, P., Campbell, S.M., Abeles, M., Clark, P., et al. (1990). The American College of Rheumatology 1990 criteria for the classification of fibromyalgia. Report of the multicenter criteria committee. Arthritis and Rheumatism, 33, 160-172. Zautra, A.J., Davis, M.C., Reich, J.W., Nicassario, P., Tennen, H., Finan, P., Kratz, A., Parrish, B., & Irwin, M.R. (2008). Comparison of cognitive behavioral and mindfulness meditation interventions on adaptation to rheumatoid arthritis for patients with and without history of recurrent depression. Journal of Consulting and Clinical Psychology, 76, 408-421.

Hoofdstuk 5 Inflammatoire darmziekten. Medische en psychologische aspecten Albersnagel, F.A., & Peters, F. (2004). Maag- en darmstoornissen: Ziekte van Crohn en Proctocolitis - casuïstiek. In G. Pool, F. Heuvel, A.V. Ranchor, & R. Sanderman (red.), Handboek psychologische interventies bij chronisch-somatische aandoeningen (pp. 566-573). Assen: Van Gorcum. Aveyard, P., & West, R. (2007). Managing smoking cessation. British Medical Journal, 335, 3741.

171

172

Psychosociale zorg bij chronische ziekten Balck, F. (2003). Evidenzbasierte Psychotherapieverfahren bei chronisch-entzündlichen Darmerkrankungen. Medizinische Welt, 54, 359-363. Benowitz, N.L. (1996). Pharmacology of nicotine: Addiction and therapeutics. Annual Review of Pharmacology and Toxicology, 36, 597-613. Björnsson, E., Simren, M., Olsson, R., & Chapman R.W. (2004). Fatigue in patients with primary sclerosing cholangitis. Scandinavian Journal of Gastroenterology, 10, 961-968. Bleijenberg, G., Bazelmans, E., & Prins, J. (2001). Chronisch vermoeidheidssyndroom. Houten/ Diegem: Bohn Stafleu van Loghum. Borgaonkar, M.R., Townson, G., Donnelly, M. & Irvine, E.J. (2002). Providing disease-related information worsens health-related quality of life in inflammatory bowel disease. Inflammatory Bowel Diseases, 8, 264-269. Calkins, B.M. (1989). A meta-analysis of the role of smoking in inflammatory bowel disease. Digestive Diseases and Sciences, 34, 1841-1854. Casati, J., Toner, B.B., De Rooy, E.C., Drossman, D.A., & Maunder, R.G. (2000). Concerns of patients with inflammatory bowel disease: A review of emerging themes. Digestive Diseases and Sciences, 45, 26-31. Challis, S., & Surgenor, S. (2004). Helping patients with Crohn’s disease to stop smoking. Professional Nurse, 19, 386-389. Cosnes, J. (2004). Tobacco and IBD: Relevance in the understanding of disease mechanisms and clinical practice. Best Practice & Research. Clinical Gastroenterology, 18, 481-496. Cosnes, J., Carbonnel, F., Carrat, F., Beaugerie, L., Cattan, S., & Gendre, J. (1999). Effects of current and former cigarette smoking on the clinical course of Crohn’s disease. Alimentary Pharmacology & Therapeutics, 13, 1403-1411. Cottone, M., Rosselli, M., Orlando, A., Olivia, L., Puleo, A., Capello, M., Traina, M., Tonelli, F., & Pagliaro, L. (1994). Smoking habits and recurrence in Crohn’s disease. Gastroenterology, 106, 643-648. Crane, C., & Martin, M. (2004). Social learning, affective state and passive coping in irritable bowel syndrome and inflammatory bowel disease. General Hospital Psychiatry, 26, 50-58. Deale, A., Chalder, T., Wessely, S.C., Keijsers, G.P.J., & Hoogduin, C.A.L. (2004). Protocollaire behandeling van patiënten met het chronisch vermoeidheidssyndroom: Graduele activering en cognitieve therapie. In G.P.J. Keijsers, A. van Minnen, & C.A.L. Hoogduin (Red.), Protocollaire behandelingen in de ambulante ggz 2 (pp. 156-191). Houten/Diegem: Bohn Stafleu van Loghum. De Rooy, E.C., Toner, B.B., Maunder, R.G., Greenberg, G.R., Baron, D., Steinhart, A.H.,McLeod, R., & Cohen, Z. (2001). Concerns of patients with inflammatory bowel disease: Results from a clinical population. The American Journal of Gastroenterology, 96, 1816-1821. Dietrich, C.G., & Lammert, F. (2002). Beeinflusst Rauchen den Verlauf der Colitis ulcerosa? Deutsche Medizinische Wochenschrift, 127, 2579-2582. Dudley-Brown, S. (2002). Prevention of psychological distress in persons with inflammatorybowel disease. Issues in Mental Health Nursing, 23, 403-422. Enck, P., & Schäfer, R. (1996). Psychosoziale Faktoren beim M. Crohn -eine Ubersicht. Zeitschrift für Gastroenterologie, 34, 708-713. Eijk, I. van der, Sixma, H., Smeets, T., Tavarela Veloso, F., Odes, S., Montague, S., Fornaciari, G., Moum, B., Stockbrügger, R., Russel, M., & European Collaborative Study Group on IBD (2001). Quality of health care in inflammatory bowel disease: Development of a relia-

Literatuur ble questionnaire (QUOTE-IBD) and first results. The American Journal of Gastroenterology, 96, 3329-3336. Eijk, I. van der, Vlachonikolis, I.G., Munkholm, P., Nijman, J., Bernklev, T., Politi, P., Odes, S., Tsianos, E.V., Stockbrügger, R.W., & Russel, M.G., on behalf of the EC-IBD Study Group (2004). The role of quality of care in health-related quality of life in patients with IBD. Inflammatory Bowel Diseases, 10, 392-398. Garcia-Vega, E., & Fernandez-Rodriguez, C. (2004). A stress management programme for Crohn’s disease. Behaviour Research and Therapy, 42, 367-383. Gasche, C., Lomer, M.C.E., Cavill, I., & Weiss, G. (2004). Iron, anaemia, and inflammatory bowel diseases. Gut, 53, 1190-1197. Ginsburg, P.M., & Bayless, T.M. (2008). How can IBD be distinguished from IBS? Inflammatory Bowel Diseases, 14(S2), S152-S154. Goischke, H.K. (2003). Thematisierung des Nikotinabusus durch den Gastroenterologen welcher Benefit ist von einer engagierten Raucherentwönung zu erwarten insbesondere bei Morbus Crohn? Prävention und Rehabilitation, 16, 164-174. Graff, L.A., Walker, J.R., & Bernstein, C.N. (2009). Depression and anxiety in inflammatory bowel disease: A review of comorbidity and management. Inflammatory Bowel Diseases, 15, 1105-1118. Haller, C., Kemmler, G., Judmair, G., Rathner, G., Kinzl, H., Richter, R., & Günther, V. (2003). Soziales Netzwerk und soziale Unterstützung bei Patiënten mit chronisch entzündlicher Darmerkrankung. Zeitschrift für Psychosomatische Medizin und Psychotherapie, 49, 36-48. Harries, A.D., Baird, A., & Rhodes, J. (1982). Non-smoking: A feature of ulcerative colitis. British Medical Journal (Clinical Research Edition), 284, 706. Hilsden, R.J., Hodgins, D.C., Timmer, A., & Sutherland, L.R. (2000). Helping patients with Crohn’s disease quit smoking. The American Journal of Gastroenterolology, 95, 352-358. Horne, R., Parham, R. Driscoll, R., & Robinson, A. (2009). Patients’ attitudes to medicines and adherence to maintenance treatment in inflammatory bowel disease. Inflammatory Bowel Diseases, 15, 837-844. Husain, A., & Triadafilopoulos, G. (2004). Communicating with patients with inflammatory bowel disease. Inflammatory Bowel Diseases, 10, 444-450. Irvine, E.J., Zhou, Q., & Thompson, A.K. (1996). The Short Inflammatory Bowel Disease Questionnaire: A quality of life instrument for community physicians managing inflammatory bowel disease. The American Journal of Gastroenterology, 91, 1571-1578. Jantschek, G., Zeitz, M., Pritsch, M., Wirsching, M., Klor, H.U., Studt, H.H., Rasenack, J., Deter, H.-C., Riecken, E.-O., Feiereis, H., Keller, W., & the German Study Group on Psychosocial Intervention in Crohn’s Disease (1998). Effect of psychotherapy on the course of Crohn’s disease. Results of the German Prospective Multicenter Psychotherapy Treatment Study on Crohn’s Disease. Scandinavian Journal of Gastroenterology, 33, 1289-1296. Kane, S.V. (2006). Systematic review: Adherence issues in the treatment of ulcerative colitis. Alimentary Pharmacology & Therapeutics, 23, 577-585. Kane, S., & Robinson, A. (2005). Adherence issues in patients with IBD. Consensus meeting patient compliance and empowerment. Hoofddorp: Ferring Pharmaceuticals. Keller, W., Pritsch, M., Von Wittersheim, J., Scheib, P., Osborn, W., Balck, F., Dilg, R., Schmelz-Schumacher, E., Doppl, W., Jantschek, G., Deter, H.-C., & the German Study Group on Psychosocial Intervention in Crohn’s Disease (2004). Effect of psychotherapy and relaxation on the psychosocial and somatic course of Crohn’s disease: Main results of

173

174

Psychosociale zorg bij chronische ziekten the German Prospective Multicenter Psychotherapy Treatment Study on Crohn’s disease. Journal of Psychosomatic Research, 56, 687-696. Kennedy, A., Nelson, E., Reeves, D., Richardson, G., Roberts, C., Robinson, A., Rogers, A., Sculpher, M., & Thompson, D. (2003). A randomised controlled trial to assess the impact of a package comprising a patient-orientated, evidence-based self-help guidebook and patient-centered consultations on disease management and satisfaction in inflammatory bowel disease. Health Technology Assessment, 7, i-x; 1-113. Kennedy, A., Robinson, A., Hann, M., Thompson, D., & Wilkin, D. (2003). A cluster-randomised controlled trial of a patient-centred guidebook for patients with ulcerative colitis: Effect on knowledge, anxiety and quality of life. Health and Social Care in the Community, 11, 64-72. Kosarz, P., & Traue, H.C. (1997). Alltagsstress und colitis ulcerosa. Psychotherapie, Psychosomatik, Medizinische Psychologie, 47, 117-122. Krause, M. (2003). The transformation of social representations of chronic disease in a selfhelp group. Journal of Health Psychology, 8, 599-615. Küchenhoff, J., Manz, R., & Mathes, L. (1995).Was beeinflusst den Krankheitsverlauf des Morbus Crohn? Nervenarzt, 66, 41-48. Lange, A., Haslbeck, E., Andus, T., Bregenzer, N., Gross, V., Schölmerich, J., & LamparterLang, R. (1996). Ambulante Schulung bei Patienten mit Morbus Crohn/Colitis ulcerosa. Zeitschrift für Gastroenterologie, 34, 411-415. Larsson, K., Sundberg-Hjelm, M., Karlbom, U., Nordin, K., Anderberg, U.M., & Loof, L. (2003). A group-based patient education programme for high-anxiety patients with Crohn’s disease or ulcerative colitis. Scandinavian Journal of Gastroenterology, 38, 763-769. Levenstein, S., Prantera, C., Varvo, V., Scribano, M.L., Berto, E., Andreoli, A., & Luzi, C. (1994). Psychological stress and disease activity in ulcerative colitis: A multidimensional cross-sectional study. The American Journal of Gastroenterology, 89, 1219-1225. Mawdsley, J.E., & Rampton, D.S. (2005). Psychological stress in IBD: New insights into pathogenic and therapeutic implications. Gut, 54, 1481-1491. Miehsler, W., Weichselberger, M., Öfferlbauer-Ernst, A., Dejaco, C., Reinisch, W., Vogelsang, H., Machold, K., Stamm, T., Gangl, A., & Moser, G. (2008). Which patients with IBD need psychological interventions? A controlled study. Inflammatory Bowel Diseases, 14, 12731280. Minderhoud, I.M., Oldenburg, B., Van Dam, S., & Van Berge Henegouwen, G.P. (2003). High prevalence of fatigue in quiescent inflammatory bowel disease is not related to adrenocortical insufficiency. The American Journal of Gastroenterology, 98, 1088-1093. Mittermaier, C., Dejaco, C., Waldhoer, T., Oefferlbauer-Ernst, A., Miehsler, W., Beier, M., Tillinger, W., Gangl, A., & Moser, G. (2004). Impact of depressive mood on relapse in patients with inflammatory bowel disease: A prospective 18-month follow-up study. Psychosomatic Medicine, 66, 79-84. Mussell, M., Bocker, U., Nagel, N., & Singer M.V. (2004). Predictors of disease-related concerns and other aspects of health-related quality of life in outpatients with inflammatory bowel disease. European Journal of Gastroenterology & Hepatology, 16, 1273-1280. Myers, K.R. (2004). Coming out: considering the closet of illness. Journal of Medical Humanities, 25, 255-270. Normann, D., & Kordy, H. (1991). Coping bei Morbus Crohn-Patienten unter differentieller Perspektive: Ein Beitrag zur Spezifitätsdiskussion. Psychotherapie, Psychosomatik Medizinische Psychologie, 41, 11-21.

Literatuur North, C.S., & Alpers, D.H. (1994). A review of studies of psychiatric factors in Crohn’s disease: Etiologic implications. Annals of Clinical Psychiatry, 6, 117-124. Peña, A.S., Poos, M.J.J.C., & Van Gool, C.H. (2007). Hoe vaak komen inflammatoire darmziekten voor en hoeveel mensen sterven eraan? In Volksgezondheid Toekomst Verkenning, Nationaal Kompas Volksgezondheid. Bilthoven: RIVM, Gezondheid en ziekte\ Ziekten en aandoeningen\ Spijsverteringsstelsel\ Inflammatoire darmziekten, 24 september 2007. Perkins, K.A., Benowitz, N., Henningfield, J., & Newhouse P. (1996). Society for Research on Nicotine and Tobacco: A conference summary. Addiction, 91, 129-137. Peters, F., Albersnagel, F., & Reitsma, B. (2004). Maag-, darm-, en leveraandoeningen. In G. Pool, F. Heuvel, A.V. Ranchor, & R. Sanderman (red.), Handboek psychologische interventies bij chronisch-somatische aandoeningen (pp. 461-477). Assen: Van Gorcum. Podolsky, D.K. (2002). The current future understanding of inflammatory bowel disease. Best Practice & Research. Clinical Gastroenterology, 16, 933-43. Pullan, R.D. (1996). Colonic mucus, smoking and ulcerative colitis. Annals of the Royal College of Surgeons of England, 78, 85-91. Robinson, A., Thompson, D.G., Wilkin, D., & Roberts, C. (2001). Guided self-management and patient-directed follow-up of ulcerative colitis: A randomised trial. The Lancet, 358, 976-981. Ryan, W.R., Ley, C., Allan, R.N., & Keighley, M.R. (2003). Patients with Crohn’s disease are unaware of the risks that smoking has on their disease. Journal of Gastrointestinal Surgery, 7, 706-711. Schwarz, S.P., & Blanchard, E.B. (1991). Evaluation of a psychological treatment for inflammatory bowel disease. Behaviour Research and Therapy, 29, 167-177. Schwarz, S.P., Blanchard, E.B., Berreman, C.F., & Scharff, L. (1993). Psychological aspects of irritable bowel syndrome: Comparisons with inflammatory bowel disease and nonpatient controls. Behaviour Research and Therapy, 31, 297-304. Searle, A., & Bennett, P. (2001). Psychological factors and inflammatory bowel disease: A review of a decade of literature. Psychology, Health and Medicine, 6, 121-135. Solberg, I.C., Vatn, M.H., Høie, O., Stray, N., Sauar, J., Jahnsen, J., Moum, B., Lygren, I., & the Ibsen Study Group (2007). Clinical course in Crohn’s disease: Results of a Norwegian population-based ten-year follow-up study. Clinical Gastroenterology and Hepathology, 5, 1430-1438. Stone, A.A., Shiffman, S., Schwartz, J.E., Broderick, J.E., & Hufford, M.R. (2003). Patient compliance with paper and electronic diaries. Controlled Clinical Trials, 24, 182-199. Timmer, A., Sutherland, L.R., & Martin F. (1998). Oral contraceptive use and smoking are risk factors for relapse in Crohn’s disease. The Canadian Mesalamine for Remission of Crohn’s Disease Study group. Gastroenterology, 114, 1143-1150. Traue, H. C., & Kosarz, P.(1999). Everyday stress and Crohn’s disease activity: A time series analysis of 20 single cases. International Journal of Behavioral Medicine, 6, 101-119. Tschuschke, V., Weber, R., Oberegelsbacher, H., Denzinger, R., Anbeh, T., Dirhold, S.S., Kühn, A., & Kächele, H. (2002). Das Verhältnis von Abwehr und Coping bei unterschiedlichen Erkrankungen. Zeitschrift für Medizinische Psychologie, 11, 73-82. West, R., McNeill, A., & Raw, M. (2000). Smoking cessation guidelines for health professionals; an update. Thorax, 55, 987-999. Whitehead, W.E. (1992). Behavioral medicine approaches to gastrointestinal disorders. Journal of Consulting and Clinical Psychology, 60, 605-612.

175

176

Psychosociale zorg bij chronische ziekten Wietersheim, J. von, Köhler, T., & Feiereis, H. (1992). Relapse-precipitating life events and feelings in patients with inflammatory bowel disease. Psychotherapy and Psychosomatics, 58, 103-112. Wietersheim, J. von, Scheib, P., Keller, W., Osborn, W., Pritsch, M., Balck, F., Fritsche, K., Dilg, R., & Schmelz-Schumacher, E. (2001). Die Wirksamkeit psychotherapeutischer Massnahmen bei Morbus Crohn. Psychotherapie, Psychosomatik und Medizinische Psychologie, 51, 2-9.

Hoofdstuk 6 Respiratoire aandoeningen en medische psychologie Agustí, A.G.N., Noguera, A., Sauleda, J., Sala, E., Pons, J., & Busquets, X. (2003). Systemic effects of chronic obstructive pulmonary disease. European Respiratory Journal, 21, 347-360. Arnold, R., De Jongste, M.J.L., Otten, V., Koëter, G.H., Wempe, J.B., Ranchor, A.V. et al. (2006). Changes in personal control as a predictor of quality of life after pulmonary rehabilitation. Patient Education and Counseling, 61, 99-108. Ashmore, J.A., Emery, C.F., Hauck, E.R., & MacIntyre, N.R. (2005). Marital adjustment among patients with chronic obstructive pulmonary disease who are participating in pulmonary rehabilitation. Heart Lung, 34, 270-278. Atkins, C.J., Kaplan, R.M., Timms, R.M., Reinsch, S., & Lofback, K. (1984). Behavioral exercise programs in the management of chronic obstructive pulmonary disease. Journal of Consulting and Clinical Psychology, 52, 591-603. Barendregt, J.T. (1957). A psychological investigation of the effect of group psychotherapy in patients with bronchial asthma. Journal of Psychosomatic Research, 2, 115-119. Barlow, D.H. (2010). Negative effects from psychological treatments. American Psychologist, 65, 13-20. Barnett, M. (2005). Chronic obstructive pulmonary disease: A phenomenological study of patients’ experiences. Journal of Clinical Nursing, 14, 805-812. Boezen, H.M., Postma, D.S., Smit, H.A., Gijsen, R., & Poos, M.J.J.C. (2006). Hoe vaak komt COPD voor en hoeveel mensen sterven eraan? Bron: http://www.nationaalkompas. nl>Gezondheid en ziekte\Ziekten en aandoeningen\Ademhalingswegen\COPD. Bhogal, S., Zemek, R., & Ducharme, F.M. (2006). Written action plans for asthma in children. Cochrane Database of Systematic Reviews 2006, Issue 3. Bourbeau, J., Julien, M., Maltais, F., Rouleau, M., Beaupré, A., Bégin, R. et al. (2003). Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: A disease-specific self-management intervention. Archives of Internal Medicine, 163, 585-591. Bourbeau, J., Nault, D., & Dang-Tan, T. (2004). Self-management and behaviour modification in COPD. Patient Education and Counseling, 52, 271-277. Brenes, G.A. (2003). Anxiety and chronic obstructive pulmonary disease: prevalence, impact, and treatment. Psychosomatic Medicine, 65, 963-970. Brusselle, G.G. van de (2009). Matrix metalloproteinase 12, asthma, and COPD. New England Journal of Medicine, 361, 2664-2665. Cameron, L.D., & Leventhal, H. (eds.) (2003). The self-regulation of health and illness behaviour. London: Routledge. Crews, W.D., Jefferson, A.L., Bolduc, T., Elliott, J.B., Ferro, N.M., Broshek, D.K., Barth, J.T., & Robbins, M.K. (2001). Neuropsychological dysfunction in patients suffering from endstage COPD. Archives of Clinical Neuropsychology, 16, 643-652.

Literatuur Curgian, L.M., & Gronkiewicz, C.A. (1988). Enhancing sexual performance in COPD. Nurse Practitioner, 13, 34-35. De Peuter, S., Van Diest, I., Lemaigre, V., Verleden, G., Demedts, M., & Van den Bergh, O. (2004). Dyspnea: The role of psychological processes. Clinical Psychology Review, 24, 557581. Deshmukh, V.M., Toelle, B.G., Usherwood, T., O’Grady, B., & Jenkins, C.R. (2007). Anxiety, panic and adult asthma: A cognitive-behavioral perspective. Respiratory Medicine, 101, 194202. Diamant, Z., Boot, J.D., & Virchow, J.C. (2007). Summing up 100 years of asthma. Respiratory Medicine, 101, 378-388. Eder, W., Ege, M.J., & Von Mutius, E. (2006). The asthma epidemic. New England Journal of Medicine, 355, 2226-2235. Eekhof, J.A.H., Van Selm, J.H., Tombrock, C.F.J.L., Hoogslag, G.F.W., & Kaptein, A.A. (1991). De seksualiteitsbeleving van oudere patiënten met COPD. Huisarts & Wetenschap, 34, 527-530. Effing, T., Monninkhof, E., Van der Valk, P., Van der Palen, J., Van Herwaarden, C., Partridge, M. et al. (2007). Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database Systematic Review; CD002990. Eiser, N., West, C., Evans, S., Jeffers, A., & Quirk, F. (1997). Effects of psychotherapy in moderately severe COPD: A pilot study. European Respiratory Journal, 10, 1581-1584. Emery, C.F., Schein, R.L., Hauck, E.R., & MacIntyre, N.R. (1998). Psychological and cognitive outcomes of a randomized trial of exercise among patients with chronic obstructive pulmonary disease. Health Psychology, 17, 232-240. Engström, C.P., Persson, L.O., Larsson, S., Rydén, A., & Sullivan, M. (1996). Functional status and well being in chronic obstructive pulmonary disease with regard to clinical parameters and smoking: a descriptive and comparative study. Thorax, 51, 825-830. Fabbri, L.R., & Rabe, K.F. (2007). From COPD to chronic systemic inflammatory syndrome? Lancet, 370, 797-799. Fischer, M.J., Scharloo, M., Abbink, J.J., Thijs-van Nies, A., Rudolphus, A., Snoei, L., Weinman, J., & Kaptein, A.A. (2007a). Participation and drop-out in pulmonary rehabilitation: A qualitative analysis of the patient’s perspective. Clinical Rehabilitation, 21, 212-221. Fischer, M.J., Scharloo, M., Abbink, J.J., Van ‘t Hul, A., Van Ranst, D., Rudolphus, A., Weinman, J., Rabe, K.F., & Kaptein, A.A. (2009). Drop-out and non-attendance in pulmonary rehabilitation: The role of clinical and psychosocial variables. Respiratory Medicine, 103, 1564-1571. Fischer, M.J., Scharloo, M., Abbink, J,J., Van ‘t Hul, A., Van Ranst, D., Rudolphus, A., Weinman, J., Rabe, K.F., & Kaptein, A.A. (2010). The dynamics of illness perceptions: Testing assumptions of Leventhal’s Common Sense Model in a pulmonary rehabilitation setting. British Journal of Health Psychology, in press. Fischer, M.J., Scharloo, M., Weinman, J., & Kaptein, A.A. (2007b). Respiratory rehabilitation. In P. Kennedy (ed.), Psychological management of physical disabilities: A practitioner’s guide (pp. 124-148). Londen: Routledge. Flores, G., Bridon, C., Torres, S., Perez, R., Walter, T., Brotanek, J., Lin, H., & Tomany-Korman, S. (2009). Improving asthma outcomes in minority children: A randomized, controlled trial of parent mentors. Pediatrics, 124, 1522-1532.

177

178

Psychosociale zorg bij chronische ziekten Fritz, G.K., Yeung, A., Wamboldt, M.Z., Spirito, A., McQuaid, E.L, Klein, R., & Seifer, R. (1996). Conceptual and methodologic issues in quantifying perceptual accuracy in childhood asthma. Journal of Pediatric Psychology, 21, 153-173. Fuchs-Climent, D., Le Gallais, D., Varray, A., Desplan, J., Cadopi, M., & Préfaut, C. (1999). Quality of life and exercise tolerance in chronic obstructive pulmonary disease: Effects of a short and intensive inpatient rehabilitation program. American Journal of Physical and Medical Rehabilitation, 78, 330-335. Gibson, P.G., Powell, H., Coughlan, J., Wilson, A.J., Abrahamson, M., Haywood, P., Bauman A., Hensley, M.J., & Walters, E.H. (2002a). Self-management education and regular practitioner review for adults with asthma. Cochrane Database of Systematic Reviews 2002, Issue 3. Gibson, P.G., Powell, H., Coughlan, J., Wilson, A.J., Hensley, M.J., Abramson, M., Bauman, A., & Walters, E.H. (2002b). Limited (information only) patient education programs for adults with asthma. Cochrane Database of Systematic Reviews 2002, Issue 1. Gift, A.G., Moore, T., & Soeken, K. (1992). Relaxation to reduce dyspnea and anxiety in COPD patients. Nursing Research, 41, 242-246. Godoy, D.V. de, & De Godoy, R.F. (2003). A randomized controlled trial of the effect of psychotherapy on anxiety and depression in chronic obstructive pulmonary disease. Archives of Physical Medicine and Rehabilitation, 84, 1154-1157. Golmohammadi, K., Jacobs, P., & Sin, D.D. (2004). Economic evaluation of a communitybased pulmonary rehabilitation program for chronic obstructive pulmonary disease. Lung, 182, 187-196. Griffiths, T.L., Phillips, C.J., Davies, S., Burr, M.L., & Campbell, I.A. (2001). Cost effectiveness of an outpatient multidisciplinary pulmonary rehabilitation programme. Thorax, 56, 779-784. Gross, N.J. (1980). What is this thing called love? – or, defining asthma. American Review of Respiratory Disease, 121, 203-204. Haby, M.M., Waters, E., Robertson, C.F., Gibson, P.G., & Ducharme, F.M. (2001). Interventions for educating children who have attended the emergency room for asthma. Cochrane Database of Systematic Reviews 2001, Issue 1. Halbert, R.J., Isonaka, S., George, D., & Iqbal, A. (2003). Interpreting COPD prevalence estimates: What is the true burden of disease? Chest, 123, 1684-1692. Hargreave, F.E., & Parameswaran, K. (2006). Asthma, COPD and bronchitis are just components of airway disease. European Respiratory Journal, 28, 264-267. Harris, A.H.S., Thoresen, C.E., Humphreys, K., & Faul, J. (2005). Does writing affect asthma? A randomized trial. Psychosomatic Medicine, 67, 130-136. Huntley, A., White, A.R., & Ernst, E. (2002). Relaxation therapies for asthma: a systematic review. Thorax, 57, 127-131. Hynninen, K.M., Breitve, M.H., Wiborg, A.B., Pallesen, S., & Nordhus, I.H. (2005). Psychological characteristics of patients with chronic obstructive pulmonary disease: A review. Journal of Psychosomatic Research, 59, 429-443. Ibañez, M., Aguilar, J.J., Maderal, M.A., Prats, E., Fårrero, E., Font, A. et al. (2001). Sexuality in chronic respiratory failure: Coincidences and divergences between patient and primary caregiver. Respiratory Medicine, 95, 975-979. Janse, A.J., Uiterwaal, C.S., Gemke, R.J., Kimpen, J.L., & Sinnema, G. (2005). A difference in perception of quality of life in chronically ill children was found between parents and pediatricians. Journal of Clinical Epidemiology, 58, 495-502.

Literatuur Kaptein, A.A. (1982). Psychological correlates of length of hospitalization and rehospitalization in patients with acute severe asthma. Social Science & Medicine, 16, 725-729. Kaptein, A.A. (1997). CARA en gezondheidspsychologie. Gedrag & Gezondheid, 25, 47-61. Kaptein, A.A. (2006). Lucht [oratie]. Leiden: Leiden University Press. Kaptein, A.A., & Creer, T.L. (eds.) (2002). Respiratory disorders and behavioral medicine. Londen: Dunitz. Kaptein, A.A., & Dekker, F.W. (1987). CARA – een uitdaging voor de gezondheidspsycholoog. Gedrag & Gezondheid, 15, 49-57. Kaptein, A.A., Scharloo, M., Fischer, M.J., Snoei, L., Hughes, B.M., Weinman, J., Kaplan, R.M., & Rabe, K.F. (2009). 50 years of psychological research on patients with COPD – road to ruin or highway to heaven? Respiratory Medicine, 103, 3-11. Kaptein, A.A., Klok, T., Moss-Morris, R., & Brand, P.L.P. (2010). Illness perceptions: Impact on self-management and control in asthma. Current Opinion in Allergy and Clinical Immunology, in press. Kaptein, A.A., Van Klink, H.J.C., De Kok, F., Snoei, L., Scharloo, M., Bel, E.H.D., & Rabe, K.F. (2008). Sexuality in patients with COPD and asthma. Respiratory Medicine, 102, 198204. Kohler, C.L., Fish, L., & Greene, P.G. (2002). The relationship of perceived self-efficacy to quality of life in chronic obstructive pulmonary disease. Health Psychology, 21, 610-614. Kullowatz, A, Kanniess, F., Dahme, B., Magnussen, H., & Ritz, T. (2007). Association of depression and anxiety with health care use and quality of life in asthma patients. Respiratory Medicine, 101, 638-644. Kunik, M.E., Braun, U., Stanley, M.A., Wristers, K., Molinari, V., Stoebner, D. et al. (2001). One session cognitive behavioural therapy for elderly patients with chronic obstructive pulmonary disease. Psychological Medicine, 31, 717-723. Kutty, K. (2004). Sleep and chronic obstructive pulmonary disease. Current Opinion in Pulmonary Medicine, 10, 104-112. Lacasse, Y., Martin, S., Lasserson, T.J., & Goldstein, R. (2006). Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Systematic Review, CD003793. Leidy, N.K., & Haase, J.E. (1999). Functional status from the patient’s perspective: The challenge of preserving personal integrity. Research in Nursing and Health, 22, 67-77. Lisansky, D.P., & Clough, D.H. (1996). A cognitive-behavioral self-help educational program for patients with COPD. A pilot study. Psychotherapy and Psychosomatics, 65, 97-101. Maillé, A.R., & Kaptein, A.A. (1992). Een research-agenda voor gedragswetenschappelijk CARA-onderzoek. Nederlands Tijdschrift voor Geneeskunde, 136, 474-477. Main, J., Moss-Morris, R., Booth, R., Kaptein, A.A., & Kolbe, J. (2003). The use of reliever medication in asthma: The role of negative mood and asthma symptom reports. Journal of Asthma, 40, 357-365. Mannino, D.M., Homa, D.M., Akinbami, L.J., Ford, E.S., & Redd, S.C. (2002). Chronic obstructive pulmonary disease surveillance--United States, 1971-2000. Respiratory Care, 47, 1184-1199. Menges, L.J. (1979). Een psychologische visie op de situatie van de astmatische patiënt. In G. Roosenboom, C.F. Schüler, & J. van Zijverden (red.), De astmatische patiënt (pp. 33-45). Alphen aan den Rijn: Stafleu. Mertens, J.B., Scherders, M.J., Van den Borne, B.E., & Smeenk, F.W. (2000). Beleid bij een psychiatrische patiënt met een levensbedreigende en besmettelijke vorm van longtuberculose die behandeling weigert. Nederlands Tijdschrift voor Geneeskunde, 144, 480-483.

179

180

Psychosociale zorg bij chronische ziekten Michielsen, H.J., Peros-Golubicic, T., Drent, M., & De Vries, J. (2007). Relationship between symptoms and quality of life in a sarcoidosis population. Respiration, 74, 401-405. Mineo, T.C., Ambrogi, V., Pompeo, E., Elia, S., Mineo, D., Bollero, P. et al. (2004). Impact of lung volume reduction surgery versus rehabilitation on quality of life. European Respiratory Journal, 23, 275-280. Moody, L.E., Fraser, M., & Yarandi, H. (1993). Effects of guided imagery in patients with chronic bronchitis and emphysema. Clinical Nursing Research, 2, 478-486. Nguyen, H.Q., Carrieri-Kohlman, V., Rankin, S.H., Slaughter, R., & Stulbarg, M.S. (2005). Is Internet-based support for dyspnea self-management in patients with chronic obstructive pulmonary disease possible? Results of a pilot study. Heart & Lung, 34, 51-62. Nicolson, P., & Anderson, P. (2003). Quality of life, distress and self-esteem: A focus group study of people with chronic bronchitis. British Journal of Health Psychology, 8, 251-270. Oliver, S.M. (2001). Living with failing lungs: The doctor-patient relationship. Family Practice, 18, 430-439. Pauwels, R., Anthonisen, N., Bailey, W.C., Barnes, P.J., Buist, A.S., Calverley, P. et al. (2004). Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease, executive summary. Bron: www.goldcopd.org/Guidelines & resources. Petrie, K.J., Cameron, L.D., Ellis, C.J., Buick, D., & Weinman, J. (2002). Changing illness perceptions after myocardial infarction: An early intervention randomized controlled trial. Psychosomatic Medicine, 64, 580-586. Prigatano, G.P., Parsons, O., Wright, E., Levin, D.C., & Hawryluk, G. (1983). Neuropsychological test performance in mildly hypoxemic patients with chronic obstructive pulmonary disease. Journal of Consulting and Clinical Psychology, 51, 108-116. Put, C., Van den Bergh, O., Lemaigre, V., Demedts, M., & Verleden, G. (2003). Evaluation of an individualised asthma programme directed at behavioural change. European Respiratory Journal, 21, 109-115. Queneau, R. (2003). De droomheld. Utrecht: IJzer. Rabinowitz, B., & Florian, V. (1992). Chronic obstructive pulmonary disease--psycho-social issues and treatment goals. Social Work and Health Care, 16, 69-86. Rennard, S.I., & Vestbo, J. (2006). COPD: the dangerous underestimation of 15%. Lancet, 367, 1216-1219. Ries, A. L., Kaplan, R. M., Limberg, T. M., & Prewitt, L. M. (1995). Effects of pulmonary rehabilitation on physiologic and psychosocial outcomes in patients with chronic obstructive pulmonary disease. Annals of Internal Medicine, 122, 823-832. Rietveld, S. (1994). Symptoomperceptie bij astma. Nederlands Tijdschrift voor de Psychologie, 49, 272-278. Ritz, T., Dahme, B., & Roth, W.T. (2004). Behavioral interventions in asthma: biofeedback techniques. Journal of Psychosomatic Research, 56, 711-720. Ritz, T., & Roth, W.T. (2003). Behavioral interventions in asthma. Breathing training. Behavior Modification, 27, 710-730. Rosser, R., Denford, J., Heslop, A., Kinston, W., Macklin, D., Minty, K. et al. (1983). Breathlessness and psychiatric morbidity in chronic bronchitis and emphysema: A study of psychotherapeutic management. Psychological Medicine, 13, 93-110. Sandel, M., & Wright, R.J. (2006). When home is where the stress is: Expanding the dimensions of housing that influence asthma morbidly. Archives of Disease in Childhood, 91, 942948.

Literatuur Scharloo, M., Fischer, M.J., & Kaptein, A.A. (2006). Respiratoire aandoeningen. In A.A. Kaptein, R. Beunderman, J. Dekker, & A.J.J.M. Vingerhoets (red.), Psychologie en Geneeskunde – Behavioural Medicine (pp. 137-156). Houten: Bohn Stafleu van Loghum. Scharloo, M., & Kaptein, A.A. (2003). Chronic obstructive pulmonary disease: A behavioural medicine approach. In S. Llewelyn, & P. Kennedy (eds.), Handbook of Clinical Health Psychology (pp. 155-179). Chichester: Wiley. Scharloo, M., Kaptein, A.A., Weinman, J.A., Willems, L.N.A., & Rooijmans, H.G.M. (2000). Physical and psychological correlates of functioning in patients with chronic obstructive pulmonary disease. Journal of Asthma, 37, 17-29. Schayck, C.P. van, & Smit, H.A. (2005). The prevalence of asthma in children: A reversing trend. European Respiratory Journal, 26, 647-650. Scherer, Y.K., Schmieder, L.E., & Shimmel, S. (1998). The effects of education alone and in combination with pulmonary rehabilitation on self-efficacy in patients with COPD. Rehabilitation Nursing, 23, 71-77. Schoot, T.A.W. van der, De Weerdt, I., Kaptein, A.A., Dekker, F.W., Deenen, Th.A.M., & Speelberg, B. (1993). Gunstige effecten van een verblijf in het Nederlands Astmacentrum Davos op medische consumptie en kwaliteit van leven bij CARA-patiënten. Nederlands Tijdschrift voor Geneeskunde, 137, 197-201. Smyth, J., Stone, A.A., Hurewitz, A., & Kaell, A. (1999). Effects of writing about stressful experiences on symptom reduction in patients with asthma or rheumatoid arthritis. A randomized trial. JAMA, 281, 1304-1309. Spica, M.M. (1992). Educating the client on the effects of COPD on sexuality: The role of the nurse. Sexuality and Disability, 10, 91-101. Stichting ketenkwaliteit COPD (2005). Richtlijn Ketenzorg COPD. Alphen aan den Rijn: Van Zuiden Communications B.V. Toshima, M.T., Kaplan, R.M., & Ries, A.L. (1992). Self-efficacy expectancies in chronic obstructive pulmonary disease rehabilitation. In R. Schwarzer (ed.), Self-efficacy: Thought control of action (pp. 325-354). Washington, DC, US: Hemisphere Publishing Corp. Westerman, M.J., The, A.M., Sprangers, M.A.G., Groen, H.J.M., Van der Wal, G., & Hak, T. (2007). Small-cell lung cancer patients are just ‘a little bit’ tired: Response shift and selfpresentation in the measurement of fatigue. Quality of Life Research, 16, 853-861. Wetering, C.R. van, Hoogendoorn, M., Mol, S.J.M., Rutten-van Mölken, M.P.M.H., & Schols, A.M. (2010). Short- and long-term efficacy of a community based COPD management programme in less advanced COPD: A randomized controlled trial. Thorax, 65, 7-13. Wolkers, J. (1963). Een roos van vlees. Amsterdam: Meulenhoff. Woo, J., Chan, W., Yeung, F., Chan, W.M., Hui, E., Lum, C.M. et al. (2006). A community model of group therapy for the older patients with chronic obstructive pulmonary disease: A pilot study. Journal of Evaluation in Clinical Practice, 12, 523-531. Yorke, J., Fleming, S.L., & Shuldham, C. (2007a). A systematic review of psychological interventions for children with asthma. Pediatric Pulmonology, 42, 114-124. Yorke, J., Fleming, S.L., & Shuldham, C. (2007b). Psychological interventions for adults with asthma: A systematic review. Respiratory Medicine, 101, 1-14.

Hoofdstuk 7 Psychologische interventies bij constitutioneel eczeem Azrin, N.H., & Nunn, R.G. (1973). Habit-reversal: a method of eliminating nervous habits and tics. Behaviour Research and Therapy, 11, 619-628.

181

182

Psychosociale zorg bij chronische ziekten Boneberger, S., Rupec, R.A., & Ruzicka, T. (2010). Complementary therapy for atopic dermatitis and other allergic diseases: Facts and controversies. Clinics in Dermatology, 28, 57-61. Brenninkmeijer, E.E.A., Legierse, C.M., Sillevis Smitt, J.H., Last, B.F., Grootenhuis M.A., & Bos, J.D. (2009). The course of life of patients with childhood atopic dermatitis. Pediatric Dermatology, 26, 14-22. Broberg, A., Kalimo, K., Lindblad, B., & Swanbeck, G. (1990). Parental education in the treatment of childhood atopic eczema. Acta Dermato-Venereologica, 70, 495-499. CBO, Kwaliteitsinstituut voor de Gezondheidszorg. (2007). Richtlijn Constitutioneel eczeem. Alphen aan den Rijn: Van Zuiden Communications. Zie ook www.cbo.nl. Chida, Y., Steptoe, A., Hirakawa, N. Sudo, N., & Kubo, C. (2007) The effects of psychological intervention on atopic dermatitis. International Archives of Allergy and Immunology, 144, 1-9. Chinn, D.J., Poyner, T., & Sibley, G. (2002). Randomized controlled trial of a single dermatology nurse consultation in primary care on the quality of life of children with atopic eczema. British Journal of Dermatology, 146, 432-439. Chren, M.M, Lasek, R.J., Quinn, L.M., Mostow, E.N., & Zyzanski, S.J. (1996). Skindex, A quality of life measure for patients with skin disease: Reliability, validity and responsiveness. Journal of Investigative Dermatology, 107, 707-713. Ehlers, A., Stangier, U., & Gieler, U. (1995). Treatment of atopic dermatitis: A comparison of psychological and dermatological approaches to relapse prevention: Journal of Consulting and Clinical Psychology, 63, 624-635. Ersser, S.J., Latter, S., Sibley, A., Satherley, P.A., & Welbourne, S. (2007). Psychological and educational interventions for atopic eczema in children. Cochrane Database for Systematic Reviews, CD004054. Evers, A.W.M., Duller, P., De Jong, E.M.G.J., Otero, M.E., Verhaak, C.M., Van der Valk, P.G.M., Van de Kerkhof, P.C.M., & Kraaimaat, F.W. (2009). Effectiveness of a multidisciplinary itch-coping training programme in adults with atopic dermatitis. Acta DermatoVenereologica, 89, 57-63. Evers, A.W.M., Duller, P., Van de Kerkhof, P.C.M., Van der Valk, P.G.M, Gerritsen, M.J., Otero, M.E., Verhoeven, E.W.M., & Kraaimaat, F.W. (2007). Invloed van huidaandoeningen op het dagelijkse leven (IHDL). Een ziektespecifiek en generiek meetinstrument voor chronische huidaandoeningen. Psychologie & Gezondheid, 35, 40-49. Evers, A.W.M., Duller, P., Verhoeven, E.W.M, Van Laarhoven, A.I.M., De Jong, E.M.G.J., & Van de Kerkhof, P.C.M. (2008). ‘Jeuk is erger dan pijn’. Diagnostiek en behandeling van jeuk bij chronische huidaandoeningen. Gedragstherapie, 41, 5-14. Evers, A.W.M., Lu, Y., Duller, P., Van der Valk, P.G.M., Kraaimaat, F.W., & Van de Kerkhof, P.C.M. (2005). Common burden of chronic skin diseases? Contributors to psychological distress in adult with psoriasis and atopic dermatitis. British Journal of Dermatology, 152, 1275-1281. Finlay, A.Y., & Kahn, G.K. (1994). Dermatology Life Quality Index (DLQI): A simple practical measure for routine clinical use. Clinical and Experimental Dermatology, 19, 210-216. Gradwell, C., Thomas, K.S., English, J.S.C., & Williams, H.C. (2002). A randomized controlled trial of nurse follow-up clinics: Do they help people and do they free up consultants’ time? British Journal of Dermatology, 147, 513-517. Grillo, M., Gassner, L., Marshman, G., Dunn, S., & Hudson, P. (2006). Pediatric atopic Eczema: The impact of an educational intervention. Pediatric Dermatology, 23, 428-436.

Literatuur Gupta, M.A., & Gupta, A.K. (1996). Psychodermatology: An update: Journal of the American Academy of Dermatology, 34, 1030-1046. Habib, S., & Morrissey, S. (1999). Stress management for atopic dermatitis. Behavior Change, 16, 226-236. Hong, J., Koo, B., & Koo, J. (2009). The psychosocial and occupational impact of chronic skin disease. Dermatologic Therapy, 21, 54-59. Jaspers, J.P.C. (1990). Directieve therapie bij chronische huidziekten. Directieve Therapie, 10, 328-342. Jaspers, J.P.C. (1994). Behavioural therapy in patients with chronic skin disease. Clinical Psychology and Psychotherapy, 1, 202-209. Jaspers, J.P.C. (2004a). Dermatologische aandoeningen: Atopisch eczeem. In G. Pool, F. Heuvel, A.V. Ranchor, & R. Sanderman (red.), Handboek psychologische interventies bij chronisch somatische aandoeningen (pp. 521-529). Assen: Van Gorcum. Jaspers, J.P.C. (2004b). Atopisch eczeem – casuïstiek. In G. Pool, F. Heuvel, A.V. Ranchor, & R. Sanderman (red.), Handboek psychologische interventies bij chronisch somatische aandoeningen (pp. 617-629). Assen: Van Gorcum. Jaspers, J.P.C., Span, L., Molier, L., & Coenraads, P.J.(2000). A multimodal education and treatment program for young adults with atopic dermatitis: A randomized controlled trial. Dermatology and Psychosomatics, 1, 148-153. Leung, D.Y.M., & Bieber, T. (2003). Atopic dermatitis. Lancet, 361, 151-160. Linnet, J., & Jemec, G.B.E. (1999). An assessment of anxiety and dermatology life quality in patients with atopic dermatitis. British Journal of Dermatology, 140, 268-272. Linnet, J., & Jemec, G.B.E. (2001). Anxiety level and severity of skin condition predicts outcome of psychotherapy in atopic dermatitis patients. International Journal of Dermatology, 40, 632-636. Magin P.J., Pond, C.D., Smith, W.T., Watson, A.B., & Goode, S.M. (2008). A cross-sectional study of psychological morbidity in patients with acne, psoriasis and atopic dermatitis in specialist dermatology and general practices. Journal of the European Academy of Dermatology and Venereology, 22, 1435-1444. Melin, L., Frederiksen, T., Norén, P., & Swebilius, B.G. (1986). Behavioural treatment of scratching in patients with atopic dermatitis: British Journal of Dermatology, 115, 467-474. Moore, E., Williams, A., Manias, E., & Varigos, G. (2006). Nurse-led clinics reduce severity of childhood atopic eczema: A review of the literature. British Journal of Dermatology, 155, 1242-1248. Norén, P., & Melin, L. (1989). The effect of combined topical steroids and habit reversal treatment in patients with atopic dermatitis. British Journal of Dermatology, 121, 359-366. Os-Medendorp, H. van, Ros, W.J.G., Eland-de Kok, P.C.M., Kennedy, C., Thio, B.H., Schuur-van der Zande, A., Grypdonk, M.H.F., & Bruijnzeel-Koomen, C.A.F.M. (2007). Effectiveness of the nursing programme ‘Coping with itch’: A randomized controlled study in adults with chronic pruritic skin disease. British Journal of Dermatology, 156, 12351244. Rosenbaum, M.S., & Ayllon, T. (1981) The behavioural treatment of neurodermatitis through habit reversal. Behavioural Research and Therapy, 19, 313-318. Schiffner, R., Schiffner-Rohe, J., Landthaler, M., & Stolz, W. (2003). Treatment of atopic dermatitits and impact on quality of life. A review with emphasis on topical non-corticosteroides. Pharmacoeconomics, 21, 159-179.

183

184

Psychosociale zorg bij chronische ziekten Schuttelaar, M.L.A., Vermeulen, K.M., Drukker, N., & Coenraads, P.J. (2010). A randomized controlled trial in children with eczema: Nurse practitioner vs. dermatologist. Pediatric Dermatology, 162, 162-170. Staab, D., Von Rueden, U., Kehrt, R., Erhart, M., Wenninger, K., Kamtsiuris, P., & Wahn, U. (2002). Evaluation of a parental training program for the management of childhood atopic dermatitis. Pediatric Allergy and Immunology, 13, 84-90. Staab, D., Diepgen, T.L., Fartasch, M., Kupfer, J., Lob-Corzilius, T., Ring, J., Scheewe, S., Scheidt, R., Schmid-Ott, G., Schnopp, C., Szczepanski, R., Werfel, T., Wittenmeier, M., Wahn, U., & Gieler, U. (2006). Age related, structured educational programmes for the management of atopic dermatitits in children and adolescents: Multicentre, randomised controlled trial. British Medical Journal, 332, 933-938. Williams, H.C., & Grindlay, D.J.C. (2010). What’s new in atopic eczema? An analysis of systematic reviews published in 2007 and 2008. Part 2. Disease prevention and treatment. Clinical and Experimental Dermatology, DOI:10.1111/j.1365-2230.2009.03734.x

8 Multiple sclerose: problematiek en psychologische interventies. Tussen autonomie en afhankelijkheid Aikens, J.E., Fischer, J.S., Namey, M., & Rudick, R.A. (1997). A replicated prospective investigation of life stress, coping and depressive symptoms in multiple sclerosis. Journal of Behavioral Medicine, 20, 433-445. Asano, M., Dawes, D.J., Arafah, A., Moriello, C., & Mayo, N.E. (2009). What does a structured review of the effectiveness of exercise interventions for persons with multiple sclerosis tell us about the challenges of designing trials? Multiple Sclerosis, 15, 412-421. Baker, N.A., & Tickle-Degnen, L. (2001). The effectiveness of physical, psychological, and functional interventions in treating clients with multiple sclerosis: a meta-analysis. American Journal of Occupational Therapy, 55, 324-331. Benbow, C.L., & Koopman, W.J. (2003). Clinic-based needs assessment of individuals with multiple sclerosis and significant others. Rehabilitation Nursing, 28, 109-116. Bol, Y, Duits, A.A., Hupperts, R.M., Vlaeyen, J.W., & Verhey, F.R.J. (2009) The psychology of fatigue in patients with multiple sclerosis. Journal of Psychosomatic Research, 66, 3-11. Brassington, J.C., & Marsh, N.V. (1998). Neuropsychological aspects of multiple sclerosis. Neuropsychology Review, 8, 43-77. Bruce, J.M., & Arnett, P.A. (2004). Self-reported everyday memory and depression in patients with multiple sclerosis. Journal of Clinical and Experimental Neuropsychology, 26, 200-214. Buelow, J.M (1991). A correlational study of disabilities, stressors and coping methods in victims of multiple sclerosis. Journal of Neurosciences and Nursing, 23, 247-252. Brown, R.F., Tennant, C.C., Sharrock, M., Hodgkinson, S., Dunn, S.M., & Pollard, J.D., (2006a). Relationship between stress and relapse in multiple sclerosis: Part I. Important Features. Multiple Sclerosis, 12, 453-464. Brown, R.F., Tennant, C.C., Sharrock, M., Hodgkinson, S., Dunn, S.M., & Pollard, J.D., (2006b). Relationship between stress and relapse in multiple sclerosis: Part II. Direct and indirect relationships. Multiple Sclerosis, 12, 465-475. Chipchase, S.Y., & Lincoln, N.B. (2001). Factors associated with carer strain in carers of people with multiple sclerosis. Disability Rehabilitation, 23, 768-776.

Literatuur Dennison, L., Moss-Morris, R., & Chalder, T. (2009). A review of psychological correlates of adjustment in patients with multiple sclerosis. Clinical Psychological Review, 29, 141-153. Finlayson, M., & Van Denend, T. (2003). Experiencing the loss of mobility: perspectives of older adults with MS. Disability Rehabilitation, 25, 1168-1180. Fournier M., De Ridder, D., & Bensing, J. (1999). Optimism and adaptation to multiple sclerosis: What does optimism mean? Journal of Behavioral Medicine, 22, 303-326. Fuller,K.J., Dawson,K., & Wiles, C.M. (1996). Physiotherapy in chronic multiple sclerosis: a controlled trial. Clinical Rehabilitation, 10, 195-204. Gordon, P.A., Lam, C.S., & Winter, R. (1997). Interaction strain and persons with Multiple Sclerosis: effectiveness of a social skills program. Journal of Applied Rehabilitation and Counseling, 28, 5-11. Griffith, G. (2002). Importance of continence advice for people with multiple sclerosis. British Journal of Nursing, 11, 1363-1371. Groot, V. de, Beckerman, H, Lankhorst, G.J., Polman, C.H., & Bouter, L.M. (2005). The initial course of daily functioning in multiple sclerosis: a three-year follow-up study. Multiple Sclerosis, 11, 713-718. Hakim, E.A., Bakheit, A.M., Bryant, T.N., Roberts, M.W., McIntosh-Michaelis, S.A., Spackman, A.J., Martin, J.P., & McLellan D.L. (2000).The social impact of multiple sclerosis: a study of 305 patients and their relatives. Disability Rehabilitation, 22, 288-293. Halper, J., & Holland, N. (1998). Meeting the challenge of multiple scelorosis. American Journal of Nursing, 98, 39-45. Hart, S., Fonareva, I., Merluzzi N., & Mohr, D.C. (2005). Treatment for depression and its relation to improvement in quality of life and psychological well-being in multiple sclerosis patients. Quality Of Life Research, 14, 695-703. Haupts, M., Elias, G., Hardt, C., Langenbahn, H., Obert, H., Pohlau, D., Sczesni, B., & Von Wussow, P. (2003). Lebensqualitat bei Patienten mit schubformiger MS in Deutschland. Nervenarzt, 74, 144-150. Janssens, A.C., De Boer, J.B., Van Doorn, P.A., Van der Ploeg, H.M., Meche, F.G., Passchier, J., & Hintzen, R.Q. (2003). Expectations of wheelchair-dependency in recently diagnosed patients with multiple sclerosis and their partners. European Journal of Neurology, 10, 287293. Jonker, A.A.G.C., Comijs, H.C., Knipscheer, K.C.P.M., & Deeg, D.J.H. (2009). The role of coping resources on change in well-being during persistent health decline. Journal of Aging and Health, 21, 1063-1082. Jonsson, A. (2003). Dissemineret sklerose og seksualitet. Ugeskrift Laeger, 165, 2642-2646. Kasser, S.L., & Stuart, M.E. (2001). Psychological well-being and exercise behavior in persons with and without multiple sclerosis. Clinical Kinesiology, 55, 81-86. King, K.E., & Arnett, P.A. (2005). Predictors of dyadic adjustment in multiple sclerosis. Multiple Sclerosis, 11, 700-707. Kroencke, D.C., Denny D.R., & Lynch S.G. (2001). Depression during exacerbations in multiple sclerosis: the importance of uncertainty. Multiple Sclerosis, 7, 237-242. Krokavcova, M.C. (2009). Perceived Health Status in Multiple Sclerosis Patients. Groningen: Proefschrift Rijksuniversiteit Groningen. Krokavcova, M., Nagyova, I., Van Dijk, J.P., Rosenberger, J., Gavelova, M., Middel, B., Gdovinova Z., & Groothoff, J.W. (2008). Mastery, functional disability and perceived health status in patients with multiple sclerosis. European Journal of Neurology, 15, 1237-1244.

185

186

Psychosociale zorg bij chronische ziekten Lode, K., Larsen, J.P., Bru, E., Klevan, G., Myhr, K.N., & Nyland, H. (2007). Patient information and coping styles in multiple sclerosis. Multiple Sclerosis, 13, 792-799. McCabe, M.P., Stokes, M., & McDonald, E. (2009). Changes in quality of life and coping among people with multiple sclerosis over a 2 year period. Psychology, Health and Medicine, 14, 86-96. McKeown, L.P., Porter-Armstrong, A.P., & Baxter, G.D. (2003). The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clinical Rehabilitation, 17, 234-248. Mohr, D.C., Classen, C., & Barrera, M. Jr. (2004). The relationship between social support, depression, and treatment for depression in people with multiple sclerosis. Psychological Medicine, 34, 533-541. Mohr, D.C., Likosky, W., Bertagnolli, A., Goodkin, D.E., Van Der Wende, J., Dwyer, P., & Dick, L.P. (2000). Telephone-administered cognitive-behavioral therapy for the treatment of depressive symptoms in multiple sclerosis. Journal of Consulting and Clinical Psychology, 68, 356-361. Mullins, L.L., Cote, M.P., Fuemmeler, B.F., Jean, V.M., Beatty, W.W., & Paul, R.H. (2001). Illness intrusiveness, uncertainty, and distress in individuals with multiple sclerosis. Rehabilitation Psychology, 46, 139-153. Murphy, N., Confavreux, C., Haas, J., Konig, N., Roullet, E., Sailer, M., Swash, M., Young, C., & Merot, J.L. (1998). Quality of life in multiple sclerosis in France, Germany, and the United Kingdom. Journal of Neurology, Neurosurgery and Psychiatry, 65, 460-466. Mushlin, A.I., Mooney, C., Grow, V., & Phelps, C.E. (1994). The value of diagnostic information to patients with suspected multiple sclerosis. Rochester-Toronto MRI Study Group. Archives of Neurology, 51, 67-72. Pakenham, K.I. (2005). Benefit finding in multiple sclerosis and associations with positive and negative outcomes. Health Psychology, 24, 123-132. Riazi, A., Thompson, A.J., & Hobart, J.C. (2004). Self-efficacy predicts self-reported health status in multiple sclerosis. Multiple Sclerosis, 10, 61-66. Rigby S.A., Thornton E.W., & Young C.A. (2008) A randomized group intervention trial to enhance mood and self-efficacy in people with multiple sclerosis. British Journal of Health Psychology, 13, 619-631. Schwartz L., & Kraft, G.H. (1999). The role of spouse responses to disability and family environment in multiple sclerosis. American. Journal of Physical and Medical Rehabilitation, 78, 525-532. Siegert, R.J., & Abernethy, D.A. (2005). Depression in multiple sclerosis: a review. Journal of Neurology, Neurosurgery and Psychiatry, 76, 469-475. Spaink, Karin (1992). Het strafbare lichaam. De orenmaffia, kwakdenken en het placebo-effect. Amsterdam: Uitgeverij De Balie. Spaink, Karin (1993). Vallende vrouw. Amsterdam: Uitgeverij Van Gennep. Stanton, B.R., Barnes, F., & Silber E. (2006). Sleep and fatigue in multiple sclerosis. Multiple Sclerosis, 12, 481-486. Sutherland, G., Andersen, M.B., & Stoove, M.A. (2001). Can aerobic exercise training affect health-related quality of life for people with multiple sclerosis? Journal of Sport and Exercise Psychology, 23, 122-135. Tesar, N., Baumhackl, U., Kopp, M., & Gunther, J. (2003). Effects of psychological group therapy in patients with multiple sclerosis. Acta Neurologica Scandinavica, 107, 394-399.

Literatuur Ward, C.D., Turpin, G., Dewey, M.E., Fleming, S., Hurwitz, B., Ratib, S., Von Fragstein, M., & Lymbery, M. (2004). Education for people with progressive neurological conditions can have negative effects: evidence from a randomized controlled trial. Clinical Rehabilitation, 18, 717-725. Wassem, R., & Dudley, W. (2003). Symptom management and adjustment of patients with MS: a 4 year long longitudinal intervention study. Clinical Nursing Research, 12, 102-107. Wheeler, G., Krausher, R., Cumming, C., Jung, V., Steadward, R., & Cumming, D (1996). Personal styles and ways of coping in individuals who use wheelchairs. Spinal Cord, 34, 351-357. Wollin, J., Bennie, M., Leech, C., Windsor, C., & Spencer, N. (2005). Multiple sclerosis and continence issues: an exploratory study. British Journal of Nursing, 14, 439-446. Wynia, K. (2008) The Multiple Sclerosis Impact Profile (MSIP), an ICF-based outcome measure for disability and disability perception in MS: development and psychometric testing. Groningen: Proefschrift Rijksuniversiteit Groningen . Zwanikken, C.P. (1997). Multiple Sclerose: epidemiologie en kwaliteit van leven. Groningen: Proefschrift Rijksuniversiteit Groningen.

Hoofdstuk 9 Psychologische interventies bij kanker Ahlberg, K., Ekman, T., Gaston-Johansson, F., & Mock, V. (2003). Assessment and management of cancer-related fatigue in adults. The Lancet, 362, 640-650. Andrykowski, M.A., & Manne, S.L. (2006). Are psychological interventions effective and accepted by cancer patients? I. Standards and levels of evidence. Annals of Behavorial Medicine, 32, 93-97. Blijenberg, G., Gielissen, M.F.M., Berends, T., Voskamp, H., Bazelmans, E., & Verhagen, S., (2004). Cognitieve gedragstherapie voor vermoeidheid na kanker: een behandelprotocol. Tijdschrift voor Gezondheidswetenschappen, 6, 364-370. Carlson, L.E., & Bultz, B.D. (2003). Benefits of psychosocial oncology care: improved quality of life and medical cost offset. Health Quality of Life Outcomes; 1, 8. Cordova, M.J., & Andrykowski, M.A.. (2003). Responses to cancer diagnosis and treatment: posttraumatic stress and posttraumatic growth. Seminars in Clinical Neuropsychiatry, 8, 286-296. Coyne, J.C, Lepore, S.J., & Palmer, S.C. (2006). Efficacy of psychosocial interventions in cancer care: evidence is weaker than it first looks. Annals of Behavioral Medicine, 32, 104-110. Cunningham, A.J., Lockwood, G.A., & Edmonds, C.V. (1993). Which cancer patients benefit most from a brief, group, coping skills program? International Journal of Psychiatry in Medicine, 23, 383-398. De Graeff, A. (2009). Medische aspecten. In H. de Haes, L. Gualthérie van Weezel, & R. Sanderman (red.), Psychologische patiëntenzorg in de oncologie (pp. 43-52). Assen: Van Gorcum. De Haes, H., Gualthérie van Weezel, L., & Sanderman, R. (red.) (2009). Psychologische patiëntenzorg in de oncologie. Assen: Van Gorcum. Demmer, T., & Boschloo, I. (2004). Tasten, voelen, kijken: creatieve therapie. In G. Pool, F. Heuvel, A.V. Ranchor, & R. Sanderman (eds.), Handboek psychologische interventies bij chronisch-somatische aandoeningen (pp. 395-408). Assen: Van Gorcum. Dijk, M. van, & Janssen, W. (2009). Psychosociale ondersteuning voor patiënten met kanker, literatuurstudie. Psychologie & Gezondheid, 37, 5-14.

187

188

Psychosociale zorg bij chronische ziekten Dunkel-Schetter, C., Feinstein, L.G., Taylor, S.E., & Falke, R.L. (1992). Patterns of coping with cancer. Health Psychology, 11, 79-87. Fawzy, F.I., & Fawzy, N.W. (1995). Critical review of psychological interventions in cancer care. Archives of General Psychiatry, 52, 100-113. Garssen, B. (2009). Psychologische factoren bij het ontstaan en beloop van kanker. In H.de Haes, L. Gualthérie van Weezel, & R.Sanderman (red.), Psychologische patiëntenzorg in de oncologie (pp. 29-40). Assen: Van Gorcum. Gielissen, M.F.M., Verhagen, S., & Blijenberg, G. (2007). Cognitive behaviour therapy for fatigued cancer srvivors: long-term follow-up. British Journal of Cancer, 97, 612-618. Gijsen, B., Koppejan-Rensenbrink, R., & Van den Berg, J.P. (2009). Oncologische revalidatie, multidisciplinaire nazorg bij kanker. In H. de Haes, L.Gualthérie van Weezel, & R. Sanderman (red.), Psychologische patiëntenzorg in de oncologie (pp. 287-297). Assen: Van Gorcum. Graaf, W.T.A. van der (2009). Algemene aspecten. In J. de Vries., W.T.A. van der Graaf, H. Hollema, B.G. Szabó, W. Bender, & E.M.L.Haagedoorn, Oncologie voor de algemene praktijk (pp. 5-9). Assen: Van Gorcum. Gualthérie van Weezel, L., Jong, C. de, & Heuvel, F. (2004). Kanker-casuïstiek. In G. Pool, F. Heuvel, A.V. Ranchor & R. Sanderman (red.). Handboek psychologische interventies bij chronisch-somatische aandoeningen (pp. 592-602). Assen: Van Gorcum. Harten, W.H. van, Van Noort, O., Warmerdam, R., Hendricks, H., & Seidel, E. (1998). Assessment of rehabilitation needs in cancer patients. International Journal of Rehabilitation Research, 21, 247-257. Heijink, J., Tempelaar, L., Heuvel, F., Grol, B.M.F., & Sanderman, R. (1997). Kortdurende interventies bij kankerpatiënten – Werking en effecten van het KIK-project. Groningen: NCG. Holland, J.C., & Rowland, J.H. (eds.) (1989). Handbook of psychooncology: psychological care of the patient with cancer. New York: Oxford University Press. Holzenspies, C., & Taal, J. (2003). Kanker in beeld, verwerking door creatieve expressie, deel II. Amsterdam/Wormer: Stichting Kanker in Beeld. Jaarsma, T.A., Pool, G., Sanderman, R., & Ranchor, A.V. (2006). Psychometric properties of the Dutch version of the posttraumatic growth inventory among cancer patients. PsychoOncology, 15, 911-920. Jacobsen, P.B. (2006). Lost in translation: the need for clinically relevant research on psychological interventions for distress in cancer patients. Annals of Behavorial Medicine, 32, 119-120. Lepore, S.J., & Coyne, J.C. (2006). Psychological interventions and distress in cancer patients: a review of reviews. Annals of Behavorial Medicine, 32, 85-92. Leventhal, H., & Nerenz, D.R. (1985). The assessment of illness cognition. In P. Karoly (ed.), Measurement strategies in health psychology (pp. 517-554). New York: John Wiley & Sons. Madden, J. (2006). The problem of distress in patients with cancer: more effective assessment. Clinical Journal of Oncology Nursing, 10, 615-619. Maguire, P. (1985). Psychological morbidity associated with cancer and cancer treatment. Clinics in Oncology, 4, 559–575. Meyer, T.J., & Mark, M.M. (1995). Effects of psychosocial interventions with adult cancer patients: a meta-analysis of randomized experiments. Health Psychology, 14, 101-108. Mitchell, A.J. (2007). Accuracy of Distress Thermometer and other ultra-short methods of detecting cancer-related mood disorders: pooled results from 38 analyses. Journal of Clinical Oncology, 25, 4670-4681.

Literatuur Newell, S.A., Sanson-Fisher, R.W., & Savolainen, N.J. (2002). Systematic review of psychological therapies for cancer patients: overview and recommendations for future research. Journal of the National Cancer Institute, 94, 558-584. Pool, G. (2004). Tijd om op weg te gaan: cliënten met een korte levensverwachting. In G. Pool, F. Heuvel, A.V. Ranchor & R. Sanderman (red.), Handboek psychologische interventies bij chronisch-somatische aandoeningen (pp. 329-249). Assen: Van Gorcum. Pool, G., Nijdam, M.J., & Oosting, M.E. (2010). Posttraumatic growth in the Netherlands. In T.Weiss, & R. Berger (eds.), Posttraumatic growth and culturally competent practice: lessons learned from around the globe. Hoboken, J.J.: John Wiley & Sons. Ranchor, A.V., Schroevers, M, & Henselmans, I. (2009). Omgaan met kanker, de rol van coping en controle. In H. de Haes, L. Gualthérie van Weezel, & R. Sanderman (red.), Psychologische patiëntenzorg in de oncologie. Assen: Van Gorcum. Rehse, B., & Pukrop, R. (2003). Effects of psychosocial interventions on quality of life in adult cancer patients: meta analysis of 37 published controlled outcome studies. Patient Education and Counseling 50, 179-86. Servaes, P., Verhagen, C., & Blijenberg, G. (2002). Fatigue in cancer patients during and after treatment: prevalence, correlates and interventions. European Journal of Cancer, 38, 27-43. Spiegel, D., Bloom, J.R., & Yalom, I. (1981). Group support for patients with metastasic cancer. Archives of General Psychiatry, 38, 527-533. Spijker, A. van ‘t, Trijsburg, R.W., & Duivenvoorden, H.J. (1997). Psychological sequelae of cancer diagnosis: a meta-analytical review of 58 studies after 1980. Psychosomatic Medicine, 59, 280-293. Tedeschi, R.G., & Calhoun, L.G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15, 1-18. Thompson, S.C., & Collins, M.A. (1995). Applications of perceived control to cancer: an overview of theory and measurement. Journal of Psychosocial Oncology, 13, 11-26. Trijsburg, R.W., Knippenberg, F.C.E., & Rijpma, S.E. (1995). Effects of psychological treatment on cancer patients: a critical review. Psychosomatic Medicine, 54, 489-517. Tuinman, M.A., Gazendam-Donofrio, S.M., & Hoekstra-Weebers, J.E. (2008). Screening and referral for psychosocial distress in oncologic practice: use of the Distress Thermometer. Cancer, 113, 870-878. Vos, P. (2009). Kanker in Beeld. Amsterdam: Stichting Kanker in Beeld. Wagener, D.J.Th. (2008). De geschiedenis van de oncologie. Houten: Bohn Stafleu van Loghum. Warnars-Kleverlaan, N., & Zwart, K. (1998). Kanker in Beeld. Amsterdam: Stichting Kanker in Beeld. Yalom, I. (1981). Existential Psychotherapy. New York: Basic Books. Yalom, I. (2008). Staring at the sun: overcoming the terror of death. [ned. Veraling: Tegen de zon in kijken.] San Francisco, CA: Jossey-Bays. Zabora, J., BrintenhofeScoz, K., Curbow, B., Hooker, C., & Piantadosi, S. (2001). The prevalence of psychological distress by cancer site. Psycho-Oncology, 10, 19-28. Zoellner, T., & Maercker, A. (2006). Posttraumatic growth in clinical psychology – A critical review and introduction of a two component model. Clinical Psychology Review, 26, 626653.

189

190

Psychosociale zorg bij chronische ziekten Hoofdstuk 10 Psychologische interventies bij psychosociale problematiek en psychiatrische comorbiditeit bij patiënten met epilepsie Aboukasm, A., Mahr, G., Gahry, B.R., Thomas, A., & Barkley G.L. (1998). Retrospective analysis of the effects of psychotherapeutic interventions on outcomes of psychogenic nonepileptic seizures. Epilepsia, 39, 470-473. Aldenkamp, A.P., & Hendriks, M. (2000). Managing cognitive and behavioural consequences of epilepsy. In G.A. Baker, & A. Jacoby (eds.), Quality of life in epilepsy (pp. 12-31). Amsterdam: Harwood Academic Publishers. Aldenkamp, A.P., & Mulder, O.G. (1997). Behavioural mechanisms involved in pseudoepileptic seizures: A comparison between patients with epileptic seizures and patients with pseudoepileptic seizures. Seizure, 6, 275-282. Aldenkamp, A.P., Van Donselaar, C.A., Flamman, H., & Lafarre, D.L.W. (2003). Psychosocial reactions to the epilepsy in an unselected group of patients with epilepsy under treatment in general hospitals. Seizure, 12, 101-106. Arnold, L.M., & Privitera, M.D. (1996). Psychopathology and trauma in epileptic and psychogenic seizure patients. Psychosomatics, 37, 438-443. Au, A., Chan F., Li, K., Leung, P., Li, P., & Chan J. (2003). Cognitive-behavioral group treatment program for adults with epilepsy in Hong Kong. Epilepsy & Behavior, 4, 441-446. Baker, G.A., Brooks, J.L., Goodfellow, L., Bodde, N., & Aldenkamp, A. (2007). Treatment for non-epileptic attack disorder. Cochrane database of Sysematic Reviews, 24, CD006370. Binder, L.M., & Salinsky, M.C. (2007). Psychogenic nonepileptic seizures. Neuropsychology Review, 17, 405-412. Blumer, D. (2000). Dysphoric disorders and paroxysmal effects: Recognition and treatment of epilepsy-related psychiatric disorders. Harvard Review of Psychiatry, 8, 8-17. Bodde, N.M.G., Janssen, A.M.A.J., Theuns, C., Vanhoutvin, J.F.G., Boon, P.A.J.M., & Aldenkamp, A.P. (2007). Factors involved in the long-term prognosis of psychogenic nonepileptic seizures. Journal of Psychosomatic Research, 62, 545-551. Bowmand, E.S., & Markand, O.N. (1996). Psychodynamics and psychiatric diagnoses of pseudoseizure subjects. American Journal of Psychiatry, 153, 57-63. Brown, S.B., & Fenwick, P.B.C. (1989). Evoked and psychogenic seizures: II Inhibition. Acta Neurologica Scandinavica, 80, 535-540. Castellanos, F.X., Lee, P.P., Sharp, W., Jeffries, N.O., Greenstein, D.K., & Clasen, L.S. (2002). Developmental trajectories of brain volume abnormalities in children and adolescents with attention-deficit/hyperactivity disorder. Journal of the American Medical Association, 288, 1740-1748. Cragar, D.E., Berry, D.T.R., Schmitt, F.A., & Fakhoury, T.A. (2005). Cluster analysis of normal personality traits in patients with psychogenic non-epileptic seizures. Epilepsy and Behavior, 6, 593-600. Dahl, J., Melin, L., Brorson, L-O., & Schollin, J. (1985). Effects of a broad-spectrum behavior modification treatment program on children with refractory epileptic seizures. Epilepsia, 26, 303-309. Dahl, J., Melin, L. & Lund, L. (1987). Effect of a contingent relaxation treatment program on adults with refractory epileptic seizures. Epilepsia, 28, 125-132. De Souza, E.A.P., & Salgado, P.C.B. (2006). A psychosocial view of anxiety and depression in epilepsy. Epilepsy & Behavior, 8, 232-238.

Literatuur Dunn, D.W., Austin, J.K., Harezlak, J., & Ambrosius, W.T. (2003). ADHD and epilepsy in childhood. Developmental Medicine & Child Neurology, 45, 50-54. Fisher, R.S. (2000). Epilepsy from the patient’s perspective: Review of results of a community-based survey. Epilepsy & Behavior, 1, S9-S14. Giedd, J.N., Blumenthal, J., Molloy, E., & Castellanos, F.X. (2001). Brain imaging of attention deficit/hyperactivity disorder. Annals of the New York Academy of Sciences, 931, 33-49. Goldstein, L.H., McAlpine, M., Deale, A., Toone, B.K., & Mellers J.D.C. (2003). Cognitive behaviour therapy with adults with intractable epilepsy and psychiatric co-morbidity: Preliminary observations on changes in psychological state and seizure frequency. Behaviour Research and Therapy, 41, 447-460. Grabowska-Grzyb, A., Jedrzejczak, J., Naganska, E., & Fiszer U. (2006). Risk factors for depression in patients with epilepsy. Epilepsy and Behavior, 8, 411-417. Hauzer, W.A. (1992). Seizure disorders: The changes with age. Epilepsia, 33 (Suppl. 4), S6-S14. Hendriks, M.P.H. (2006). Epilepsie. In W. Everaerd, C. van der Staak, M. van Son, M. van Hout, H. Derksen, H. Diesveldt, A. Bak, P. Vertommen, P. van Oost, A. Kerkhof, & C. Schaap, C. (red.), Handboek Klinische Psychologie (pp. 2001-2022). Houten: Bohn Stafleu van Loghum. Hendriks, M., Renier, W., & Eling, P. (2004). Epilepsie. In B. Deelman, P. Eling, E. de Haan & E. van Zomeren (red.), Klinische Neuropsychologie (pp. 394-410). Amsterdam, Boom. Hermann, B.P., & Whitman, S. (1991). Neurobiological, psychosocial and pharmacological factors underlying interictal psychopathology in epilepsy. Advances in Neurology, 55, 439452. Hermann, B., Jones, J., Dabbs, K., Allen, C.A., Sheth, R., Fine, J., McMillan, A., & Seidenberg, M. (2007). The frequency, complications and aetiology of ADHD in new onset paediatric epilepsy. Brain, 30, 3135-3148. Hesdorffer, D.C., Ludvigsson, P., Olafsson, E., Gudmundsson, G., Kjartansson, O., & Hauser, W.A. (2004). ADHD as a risk factor for incident unprovoked seizures and epilepsy in children. Archives of General Psychiatry, 61, 731-736. Jacoby, A. (1992). Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy. Social Science and Medicine, 43, 657-666. Jacoby, A., Baker, G.A., Steen, N., Potts, P., & Chadwick, D.W. (1996). The clinical course of epilepsy and its psychosocial correlates: Findings from a U.K. community study. Epilepsia, 37, 148-161. Kanner, A.M., & Balabanov, A. (2002). Depression and epilepsy: How closely related are they? Neurology, 58, S27-S39. Ketter, T.A., Malow, B.A., Flamini, R., White, S.R., Post, R.M., & Theodore, W.H. (1994). Anticonvulsant withdrawal-emergent psychopathology. Neurology, 44, 55-61. Kindermans, G. (2007). Het ontsporende brein: Epilepsiepsycholoog Bert Aldenkamp. De Psycholoog, oktober, 560-563. Kooij, J.J.S. (2002a). ADHD bij volwassenen: Inleiding in diagnostiek en behandeling. Lisse: Swets & Zeitlinger. Kooij, J.J.S. (2002b). ADHD en slaap. Impulsief, oktober, 12-14. Krishnamoorthy, E.S. (2003). Treatment of depression in patients with epilepsy: Problems, pitfalls, and some solutions. Epilepsy & Behavior, 4, S46-S54. Lafrance, W.C., & Barry, J.J. (2005). Update on treatments of psychological non-epileptic seizures. Epilepsy & Behavior, 7, 363-364.

191

192

Psychosociale zorg bij chronische ziekten Lafrance, W.C., & Devinsky, O. (2002). Treatment of nonepileptic seizures. Epilepsy & Behavior, 3, S19-S23. Mackie, S., Shaw, P., Lenroot, R., Pierson, R., Greenstein, D.K., & Nugent, T.F. III (2007). Cerebellar development and clinical outcome in attention deficit/hyperactivity disorder. American Journal of Psychiatry, 164, 647-655. McConnell, H.W., & Duncan, D. (1998). Treatment of psychiatric comorbidity in epilepsy. In H.W. McConnell, & P.J. Snyder (eds.), Psychiatric comorbidity in epilepsy: Basic mechanisms, diagnosis and treatment (pp. 245-361). Washington, DC: American Psychiatric Press. Reuber, M. (2008). Psychogenic nonepileptic seizures: Answers and questions. Epilepsy & Behavior, 12, 622-635. Reuber, M., Mitchell, A.J., Howlett, S., & Elger, C.E. (2005). Measuring outcome in psychogenic non-epileptic seizures: How relevant is seizure remission? Epilepsia, 46, 1788-1795. Schachter, S.C. (2005). Improving quality of life beyond seizure control. Epileptic Disorders., 7 (Suppl 1), S34-S38. Schmid-Schönbein, C. (1998). Improvement of seizure control bij psychological methods in patients with intractable epilepsies. Seizure, 7, 261-270. Shackleton, D.P., Kasteleijn-Nolst Trenite, D.G., De Craen, A.J., Vandenbroucke, J.P., & Westendorp, R.G. (2003). Living with epilepsy: Longterm prognosis and psychosocial outcomes. Neurology, 61, 64-70. Sherman, E.M., Slick, D.J., Connolly, M.B., & Eyrl, K.L. (2007). ADHD, neurological correlates and health-related quality of life in severe pediatric epilepsy. Epilepsia, 48, 1083-1091. Shorvon, S. (2005). Handbook of epilepsy treatment. Oxford: Blackwell Science. Sillanpää, M., Jalava, M., Kaleva, O., & Shinar, S. (1998). Longterm prognosis of seizures with onset in childhood. New England Journal of Medicine, 338, 1715-1722. Snead, K., Ackerson, J., Bailey, K., Schmitt, M.M., Madan-Swain, A., & Martin R.C. (2004). Taking charge of epilepsy: The development of a structured psychoeducational group intervention for adolescents with epilepsy and their parents. Epilepsy & Behavior, 5, 547556. Sowell, E.R., Thompson, P.M., Welcome, S.E., Henkenius, A.L., Toga, A.W., & Peterson, B.S. (2003). Cortical abnormalities in children and adolescents with attention deficit hyperactivity disorder. Lancet, 362, 1699-1707. Spector, S., Cull, C., & Goldstein, L.H. (2000). Seizure precipitants and perceived self-control of seizures in adults with poorly controlled epilepsy. Epilepsy Research, 38, 207-216. Swinkels, W.A., Shackleton, D.P., & Kasteleijn-Nolst Trenite, D.G. (2000). Psychosocial impact of epileptic seizures in a Dutch epilepsy population: A comparative Washington Psychosocial Seizure Inventory study. Epilepsia, 41, 1335-1341. Torres, A.R., Whitney, J., & Gonzalez-Heydrich, J. (2008). Attention-deficit/hyperactivity disorder in pediatric patients with epilepsy: Review of pharmacological treatment. Epilepsy & Behavior, 12, 217-233. Trimble, M.R. (1998). New antiepileptic drugs and psychopathology. Neuropsychobiology, 38, 149-151.

Hoofdstuk 11 Epiloog: slotthema’s, balans, nieuwe ontwikkelingen Bennet, G.G., & Glasgow, R.E. (2009). The delivery of public health interventions via the Internet: Actualizing their potential. Annual Review of Public Health, 30, 273-292. Cuijpers, P., & Van Osch, B. (2004). Leven met een chronische ziekte. Baarn: HBuitgevers.

Literatuur Cuijpers, P., Muñoz, R.F., Clarke, G.N., & Lewinsohn, P.M. (2009). Psychoeducational treatment and prevention of depression: The “coping with depression” course thirty years later. Clinical Psychology Review, 29, 449-458. Elzen, H., Slaets, J.P.J., Snijders, T.A.B., & Steverdink, N. (2007). Evaluation of the chronic disease self-management program (CDSMP) among chronically ill older people in the Netherlands. Social Science and Medicine, 64, 1832-1841. Evers, A.W.M., Duller, P., Van de Kerkhof, P.C.M., Van der Valk, P.G.M, Gerritsen, M.J., Otero, M.E., Verhoeven, E.W.M., & Kraaimaat, F.W. (2007). Invloed van huidaandoeningen op het dagelijkse leven (IHDL). Een ziektespecifiek en generiek meetinstrument voor chronische huidaandoeningen. Psychologie & Gezondheid, 35, 40-49. Fortin, M., Dubois, M.F., Hudon, C., Soubhi, H., & Almirall, J. (2007). Multimorbidity and quality of life: A closer look. Health Quality of Lives Outcomes, 5, 52. Gijsen, R., Hoeymans, N., Schellevis, F.G., Ruwaard, D., Satariano, W.A., & Van den Bos, G.A.M. (2001). Causes and consequences of comorbidity: A review. Journal of Clinical Epidemiology, 54, 661-674. Jonge, P. de (2009). Hart en/of ziel? Werkelijkheid en fictie in de relatie tussen volksziekten 1 en 2 - hart- en vaatziekten en depressie. Psychologie & Gezondheid, 37, 15-24. Lorig, K.R., Ritter, P.L., Dost, A., Plant, K., Laurent, D.D., & McNeil, I. (2008). The expert patients programme online, a 1-year study of an Internet-based self-management programme for people with long-term conditions. Chronic Illness, 4, 247-256. Lorig, K.R., Ritter, P.L., Laurent, D.D., & Plant, K. (2006). Internet-based chronic disease self-management. A randomized trial. Medical Care, 44, 964-971. Lorig, K., Ritter, P.L., & Plant, K. (2005). A disease-specific self-help program compared with a generalized chronic disease self-help program for arthritis patients. Arthritis & Rheumatism, 53, 950-957. Lorig, K., Ritter, P.L., Villa, F.J., & Armas, J. (2009). Community-based peer-led diabetes selfmanagement. A randomized trial. The Diabetes Educator, 35, 641-651. Mérelle, S.Y.M., Sorbi, M.J., Duivenvoorden, H.J, Van Doornen, L.J.P., & Psschier, J. (2010). Meer grip op migraine 6 maanden na de gedragsmatige zelfmanagement training door lekentrainers met migraine. Psychologie & Gezondheid, 38, 5-17. Robinson-Whelen, S., Hughes, R.B., Taylor, H.B., Colvard, M., Mastel-Smith, B., & Nosek, M.A. (2006). Improving the health and health behaviours of women aging with physical disabilities: A peer-led health promotion program. Women’s Health Issues, 16, 334-345. Sorbi, M.J., & Riper, H. (2009). E-Health – gezondheidszorg via internet. Psychologie & Gezondheid, 37, 191-201. Slaets, J.P.J. (2006). Vulnerability in the elderly: Frailty. Medical Clinics of North America, 90, 593-601. Smeulders, E.S.T.F., Van Haastregt, J.C.M., Dijkman-Domanska, B.K., Van Hoef, E.F.M., Van Eijk, J.Th.M., & Kempen, G.I.J.M. (2007). Nurse- and peer-led self-management programme for patients with an implantable cardioverter defibrillator; a feasibility study. BMC Nursing, 6, 6. Wanner, M., Martin-Diener, E., Braun-Fahrländer, C., Bauer, G., & Martin, B.W. (2009). Effectiveness of Active-Online, an individually tailored physical activity intervention, in a real-life setting: Randomized controlled trial. Journal of Medical Internet Research, 11, e23. Van Weel, C., & Schellevis, F.G. (2006). Comorbidity and guidelines: Conflicting interests.

193

Bijlage

Overzicht van dissertaties die op het gebied van psychologisch onderzoek bij patiënten met astma en COPD in Nederland en België zijn verschenen.

Auteur

Univer-

(jaar)

siteit

Titel

Aard interventie?

Illness perceptions and treatment per-

X

Gegeven door:

2010 Dhr. M.J.

Leiden

Fischer

ceptions in pulmonary rehabilitation for patients with COPD

2009 Mw. T.W.

Nijme-

Self-management in patients with

Effing-

gen

COPD: the COPE-II study

Zelfmanagement

Tijdhof Mw. J.M.

Longverpleegkundige, fysiotherapeut

UvA

Habraken

Palliative care needs of patients with

X

advanced COPD: an exploration of illness experiences

Dhr. T.

Leuven

Janssens

Context-dependent perception for

X

asthma symptoms and its importance for asthma treatment.

Mw.

Rotter-

Improving Chronic Care: Developing

K.M.M.

dam

and testing disease-management

Lemmens

Diseasemanagement

Praktijk-ondersteuner

interventions applied in COPD care

Mw. A.D.

Rotter-

Asthma-related symptoms and health-

Mohan-

dam

related quality of life in children

X

goo

J. Jaspers, H. van Middendorp, Psychosociale zorg bij chronische ziekten, DOI 10.1007/978-90-313-8231-6, © 2010 Bohn Stafleu van Loghum, onderdeel van Springer Uitgeverij

196

Psychosociale zorg bij chronische ziekten

Auteur

Univer-

(jaar)

siteit

Titel

Aard interventie?

Gegeven door:

2008 Dhr. D.

Maas-

Confronting smokers with previously

Informatie over ver-

Verpleegkun-

Kotz

tricht

undetected airflow limitation (COPD)

stoorde longfunctie,

dige

for smoking cessation

nortriptyline

Adherence to inhaled corticosteroids

X

Mw. T.T.

Utrecht

Mencke-

and patient perception: Towards a bet-

berg

ter understanding and individualised care

Mw.

Nijme-

Breathe in life: intrapersonal deter-

M.O.M

gen

minants of quality of life and smoking

van de Ven

X

behaviour in adolescents with asthma

Dhr. T.W.

Gronin-

Improving care in paediatric asthma:

Apothekers volgen

Onderzoeker,

de Vries

gen

patients, prescriptions, pharmacovigi-

protocol over beter

apothekers

lance, pathogens, and particles

voorschrijven astmamedicatie

Mw.

Maas-

Nurse-led telemonitoring in asthma:

Begeleid telemonito-

Verpleegkun-

D.C.M.

tricht

process, outcomes and cost-effecti-

ringprogramma versus

dige

veness

gebruikelijke poliklinische

Willems

zorg 2007 Mw. Q.M.

UvA

van Dellen

Asthma care in children from different

x

ethnic origins: a study among children from Moroccan, Turkish, Surinamese and Dutch origin with asthma living in Amsterdam, the Netherlands

Mw. B.

Maas-

Promotion of exclusive breastfeeding

Gijsbers

tricht

for six months in asthmatic families

Mw. W.

UvA

X

Towards asthma control in children in

Implementatie van

Hagmolen

general practice: asthma insights and

NHG-standaard ‘Astma

of ten

reality

bij kinderen’ in de huis-

Have

artspraktijk. Bijscholing van huisarts en individuele behandeladviezen voor de deelnemende kinderen

Onderzoekers

Bijlage

197

Auteur

Univer-

(jaar)

siteit

Mw. V.

Leuven

Titel

Aard interventie?

Gegeven door:

Asthma and self-management

Groepseducatie: psycho-

Psycholoog

Lemaigre

educatie, cognitieve herstructurering, zelfmonitoring + 1 individuele sessie met focus op gekozen onderwerp (keuze uit: emoties, fysieke conditie, therapietrouw, stressreductie, assertiviteit)

Dhr. R.

Nijme-

Waiting to inhale: psychosocial factors

Otten

gen

of smoking in adolescents with and

X

without asthma 2006 Mw. L.

Twente

Christen-

Nieuwe RookStopTherapie voor rokers

Minimale Interventie

met COPD

Strategie (MIS)

husz

?

(= individuele counseling, telefonisch contact, Zyban optioneel) versus RookStopTherapie (= MIS + groepscounseling, Zyban standaard, “recycling” bij terugval)

Mw. K. H.

Nijme-

Determinants of future work disability

Orbon

gen

in asthma and COPD

X

Mw. M.P.

Maas-

Asthma control in general practice: the

Training in afstemmen

Huisarts,

de Vries

tricht

effect of self-management and aller-

medicatiegebruik op

gespeciali-

gen avoidance

klachten

seerde onderzoeks-verpleegkundige

2005 Mw. B.C.T.

Gronin-

Assessment of quality of life in children

Flapper

gen

with asthma and developmental coordination disorder: consequences for paediatric practice

X

198

Psychosociale zorg bij chronische ziekten

Auteur

Univer-

(jaar)

siteit

Mw. A.J.

Utrecht

Janse

Titel

Aard interventie?

Quality of life of chronically ill children.

X

Gegeven door:

Perception of patients, parents and physicians

Dhr. S. de

Leuven

Peuter

Symptom perception in asthma: the

X

role of psychological processes

Dhr. E.J.

Maas-

Cigarette smoking, COPD and psycho-

Wagena

tricht

logical problems: the use of antidepres-

X

sants for smoking cessation in patients with COPD Mw.

Gronin-

Smoking cessation in chronic obstruc-

Cognitief-gedragsmatige

Gespeciali-

B.W.M.

gen

tive pulmonary disease

aanpak, terugvalpreven-

seerde ver-

tie, versterken motivatie

pleegkundige

Willemse 2004 Mw. R.

Gronin-

Quality of life in chronic obstructive

Arnold

gen

pulmonary disease and chronic heart

X

failure: disease-specific and generic factors in adaptation to illness Mw. C.R.L.

Nijme-

Sick leave in asthma and COPD: the

Boot

gen

role of the disease, adaptation, work,

X

psychosocial factors and knowledge 2003 Mw. A.E.

VU

Hesselink

Educating asthma and COPD patients

Individuele educatie

Praktijkas-

in general practice

gericht op inhalatietech-

sistent van de

niek, coping

huisarts

Mw. E. M.

Nijme-

Medical and behavioural interventions

Groepseducatie gericht

Gespeciali-

Monnink-

gen

in COPD. The COPE study

op zelf-management

seerde ver-

hof &

(coping, actieplan t.a.v.

pleegkundige

Dhr.

exacerbaties, fitness-

P.D.L.P.M.

motivatie, voeding,

van der

communicatie & sociale

Valk

relaties)

2002 Mw. M. Scharloo

Leiden

Illness perceptions, coping and functional status in chronic patients

X

Bijlage

199

Auteur

Univer-

(jaar)

siteit

Titel

Aard interventie?

Gegeven door:

Dhr. B.P.A. Thoonen

Nijme-

Self-management of asthma in gene-

Individuele educatie

Huisarts

gen

ral practice

gericht op vaardigheden m.b.t. inhalatie & piekstroommeter, informatie over mechanismen & oorzaken, symptoomperceptie, medicatiedosering

Mw.

VU

H.A.H.

Disease severity and control in asthma

X

and COPD patients

Wijnhoven 2001 Mw.

UvA

Health-related quality of life and

J.G. van

comorbidity in COPD patients in gene-

Manen

ral practice

Mw. C. Put

Leuven

Symptom perception in asthma: medi-

X

X

cine meets psychology 2000 Mw. I.D.

Nijme-

Perception of asthma symptoms: the

Bijl-Hof-

gen

influence of medication

UvA

Quality of life in asthma and COPD:

X

land Mw. A. R. Maillé

X

development of a disease-specific questionnaire

Mw. I.

Leiden

Röder

Stress in children with asthma: coping

X

and social support in the school context

1999 Mw. S.M.

VU

van Es

Mw. J. Bruil

Leiden

Adherence to asthma medication in

Groepsinterventie gericht

Gespeciali-

adolescents

op therapietrouw t.a.v.

seerde ver-

medicatie

pleegkundige

Development of a quality of life questionnaire for children with a chronic illness

X

200

Psychosociale zorg bij chronische ziekten

Auteur

Univer-

(jaar)

siteit

Titel

Aard interventie?

Children with asthma: relevance of

X

Gegeven door:

1998 Mw. E.M.

UvA

le Coq

early recognition, quality of life measurement

Mw. A.S.

Leiden

Panic in asthma and non-cardiac chest

van Peski-

pain: implications for cognitive behavi-

Ooster-

oural therapy

X

baan 1996 Dhr.

Gronin-

Patient health-education and self-

Multidisciplinaire

o.a.

T.A.M.

gen

management: a medical-psychological

groepseducatie. Psycho-

Klinisch psy-

intervention study on severe asthma

sociale sessies gericht

choloog

and COPD in a high altitude clinic

op: negatieve emoties,

Deenen

acceptatie, sociale vaardigheden, cognitieve herstructurering Mw. C.A.J.

Maas-

Aftercare and specialised community

Individuele educatie,

Gespeciali-

Ketelaars

tricht

nursing: implications for patients with

adviezen

seerde versus

chronic obstructive pulmonary disease

niet-gespecialiseerde verpleegkundige

Dhr. S.

UvA

Rietveld

Symptom perception and breathles-

X

sness in children with asthma

Dhr.

Maas-

Kwaliteit van leven van Cara-patiënten

T.A.W. van

tricht

in het Nederlands Astmacentrum

der Schoot

X

Davos: beloop en determinanten

1995 Mw. A.H.S. van den Broek

Leiden

Patient education and chronic obstruc-

Multidisciplinaire

Longarts, dië-

tive pulmonary disease

groepseducatie. Cog-

tist, fysio- en

nitief-gedragsmatige

ergotherapeut,

aanpak, gericht op

maatschap-

zelfmanagement (kennis

pelijk werker,

over ziekte, medicatie,

gezondheids-

voeding, fysiotherapie,

psycholoog

energie, sociaal functioneren, stressreductie)

Bijlage

201

Auteur

Univer-

(jaar)

siteit

Titel

Aard interventie?

Gegeven door:

Dhr. P.J. Wijkstra

Gronin-

Home rehabilitation in patients with

Supervisie (1 x per

Verpleegkun-

gen

chronic obstructive pulmonary disease:

maand) bij thuisrevalida-

dige

the short-term and long-term effects

tie. Individuele educatie over ziekte, behandeling, medicatiegebruik, coping

1994 Mw. A.M.

UvA

Meijer

Gezinsinvloeden bij astma: over facto-

x

ren, die een beheersbaar van een nietbeheersbaar astma onderscheiden

1993 Mw. E.H.

VU

Collette Dhr. F.W.

Astmapatiënten in eerste en tweede

X

lijn. Overeenkomsten en verschillen Leiden

Dekker

Asthma and COPD in general practice:

X

studies on the quality of care

Mw. E.P.E.

Maas-

Infants with asthma: towards a mul-

Protocol voor huisartsen

Huisarts,

Mesters

tricht

tidisciplinary education protocol for

om betere astmacon-

gespeciali-

primary care

trole te stimuleren bij

seerde ver-

ouders van kinderen met

pleegkundige

astma m.b.v. educatiemodules (kennis over ziekte, zelf-management) 1992 Mw.

Multidisciplinaire

Longspecialist,

M.A.G.

Leiden

Self-management and asthma

groepseducatie. Cogni-

fysiotherapeut,

Schlösser

tieve aanpak, gericht op

apotheker,

zelfmanagement (kennis

maatschap-

over ziekte; bewegings-,

pelijk werker,

ademhalings- en ont-

diëtist, gezond-

spanningsoefeningen;

heids-psycho-

medicatiegebruik; werk/

loog

uitkeringen; voeding; negatieve emoties; sociale contacten; vrijetijdsactiviteiten)

202

Psychosociale zorg bij chronische ziekten

Auteur

Univer-

(jaar)

siteit

Titel

Aard interventie?

Gegeven door:

Leren omgaan met astma: interventie-

Groepseducatie. Kin-

Twee trainers

methoden voor kinderen en ouders

dergroep & Oudergroep:

per sessie:

kennis over ziekte,

kinder-psy-

medicatie, symptomen,

chotherapeut+

coping, communicatie,

kinderpsycho-

emoties, cognities, ont-

loog

1990 Mw. V.T.

UvA

Colland

spanningsoefeningen, gezond gedrag Mw. I.S.Y.

UvA

Omgaan met astma

Vromans

Multidisciplinaire

Psycholoog +

groepseducatie. Cogni-

ademthera-

tief-gedragsmatige aan-

peut

pak (kennis over ziekte, omgaan met benauwdheid, assertiviteit, stressreductie, actieve coping) 1982 Dhr. A.A.

VU

Illness behavior of patients with asthma

X

Utrecht

The self-care of children with asthma

X

UvA

Asthma-bronchitis en industriële

X

Kaptein Dhr. L.M.H. Robbroeckx 1962 Dhr. R. Jensema

arbeid: een onderzoek naar belastbaarheid, last en belasting

1954 Dhr. J.T.

UvA

De hypothese der psychosomatische

Baren-

specificiteit getoetst aan de Rorschach-

dregt

reacties van patiënten lijdende aan

X

asthma bronchiale 1929 Dhr. P.N.

Leiden

Het uitschakelen van de exogene oor-

Tissot van

zaken van het klimaatastma als the-

Patot

rapeutische maatregel: allergeenvrije kamers in particuliere huizen

X

Over de auteurs

Dr. Frans A. Albersnagel (klinisch psycholoog/psychotherapeut) is als universitair hoofddocent verbonden aan de afdeling maag-, darm- en leverziekten van het Universitair Medisch Centrum Groningen. Hij maakt deel uit van de Richtlijnwerkgroep Diagnostiek en behandeling van inflammatoire darmziekten bij volwassenen. Prof. dr. Aldenkamp (klinisch neuropsycholoog/diensthoofd) is werkzaam op de Gedragswetenschappelijke Dienst binnen Epilepsiecentrum Kempenhaeghe. Hij is tevens verbonden aan de vakgroep neurologie van het Maastricht Universitair Medisch Centrum. Drs. N.M.G. Bodde (klinisch psycholoog/psychotherapeut) is werkzaam op de Gedragswetenschappelijke Dienst binnen Epilepsiecentrum Kempenhaeghe. Drs. S. Boelen (GZ-psycholoog) is verbonden aan het Universitair Medisch Centrum St Radboud te Nijmegen, en is werkzaam op de Gedragswetenschappelijke Dienst binnen Epilepsiecentrum Kempenhaeghe. Dr. Gerard Dijkstra (maag-darm-leverarts) is als universitair hoofddocent verbonden aan de afdeling maag-, darm- en leverziekten van het Universitair Medisch Centrum Groningen. Hij maakt deel uit van de Richtlijnwerkgroep Diagnostiek en behandeling van inflammatoire darmziekten bij volwassenen. Drs. Jos van Erp (psycholoog) is programmaleider Hart voor Mensen, Nederlandse Hartstichting. Dr. Andrea W.M. Evers is werkzaam bij de Afdeling Medische Psychologie, Universitair Medisch Centrum St Radboud Nijmegen. Dr. M.J. Fischer is als post-doc werkzaam bij de sectie Medische Psychologie van het Leids Universitair Medisch Centrum.

J. Jaspers, H. van Middendorp, Psychosociale zorg bij chronische ziekten, DOI 10.1007/978-90-313-8231-6, © 2010 Bohn Stafleu van Loghum, onderdeel van Springer Uitgeverij

204

Psychosociale zorg bij chronische ziekten

Dr. J. Hendriksen (klinisch psycholoog/kinder- en jeugdpsycholoog-specialist) is verbonden aan de vakgroep neurologie van het Maastricht Universitair Medisch Centrum, en is werkzaam op de Gedragswetenschappelijke Dienst binnen Epilepsiecentrum Kempenhaeghe. Dr. Jan P.C. Jaspers is werkzaam als klinisch psycholoog/psychotherapeut bij het Universitair Medisch Centrum Groningen. Prof.dr. A.A. Kaptein is als hoogleraar werkzaam bij de sectie Medische Psychologie van het Leids Universitair Medisch Centrum. Dr. J.C. Keers is als psycholoog werkzaam bij de Afdeling Endocrinologie en is staflid bij de LifeLines biobank van het Universitair Medisch Centrum Groningen. Drs. Saskia van Koulil is werkzaam bij de Afdeling Medische Psychologie, Universitair Medisch Centrum St Radboud Nijmegen. Prof.dr. Floris W. Kraaimaat is werkzaam bij de Afdeling Medische Psychologie, Universitair Medisch Centrum St Radboud Nijmegen. Dr. Henriët van Middendorp is werkzaam als universitair docent bij de Universiteit Utrecht, Afdeling Klinische en Gezondheidspsychologie. Dr. Grieteke Pool is werkzaam als psychotherapeut/wetenschappelijk onderzoeker bij het Ambulatorium Medische Psychologie, Gezondheidswetenschappen/Health Psychology, Universitair Medisch Centrum Groningen/ RijksUniversiteit Groningen. Dr. F. Pouwer is als medisch psycholoog werkzaam bij CoRPS, Center of Research on Psychology in Somatic diseases, Afdeling Medische Psychologie, Universiteit van Tilburg. Hij is tevens verbonden aan VU Medisch Centrum, Afdeling Medische Psychologie. Prof.dr. Piet L.C.M. van Riel is werkzaam bij de Afdeling Reumatologie, Universitair Medisch Centrum St Radboud Nijmegen. Dr. M. Scharloo is als universitair docent werkzaam bij de sectie Medische Psychologie van het Leids Universitair Medisch Centrum. Karen Schipper (gezondheidszorgpsycholoog) is promovenda bij het VUmc en als gedragskundige werkzaam bij Reinaerde. Dr. Cees Tromp (klinisch psycholoog) is werkzaam bij de Dienst Psychosociale Begeleiding van het Universitair Medisch Centrum Groningen.

Register

cognitieve herstructurering

A aanpassingsproblematiek aanpassingsproces

4, 9

149, 152, 153

10, 31, 32, 33, 36, 37, 39, 42,

coping

45, 46, 151 aanpassingsvermogen acceptatie

copingstijl

10, 25, 33, 44, 100, 101, 116, 117, 120,

11, 66, 67, 113

copingstrategie

122, 143, 144, 147 155

ademhalingstechnieken

11, 87, 146

ADHD

9, 44, 71, 113, 143

culturele achtergrond cultuur

13, 16 13, 14, 16

12, 142, 145, 140

adherentie angst

4, 31, 44, 53, 65, 67, 68, 70, 76, 91, 104,

105, 106, 113, 117, 120, 122, 152

3, 18, 126

ACT

11, 56, 144

comorbiditeit 4, 12, 13, 19, 27, 142, 143, 145, 146,

63, 64

4, 9, 19, 24, 34, 38, 41, 46, 47, 52, 53, 54,

D depressie

100, 106, 112, 122, 123, 132, 141, 145, 152, 153

122, 126, 127, 129, 131, 132, 135, 142, 143 angststoornissen

11, 12, 18, 19, 21, 24, 27, 35, 38, 39,

41, 43, 46, 48, 53, 65, 67, 69, 71, 82, 83, 88, 98,

62, 66, 67, 69, 71, 74, 76, 80, 82, 85, 87, 88, 101, 12, 18, 25, 27, 34, 126, 142

disability

36, 198

arts-patiëntrelatie

6, 76

diseasemanagement

at risk

13, 59

distress

autonomie

belastbaarheid belasting

132, 152

15, 41, 43, 117

B 11, 65, 114, 117

36, 90

39, 53, 54, 56, 59, 69, 120, 122, 123, 126,

draagkracht

12, 19, 41, 43, 82

draaglast

12, 19, 42, 43, 82

drop-out

16, 70, 155

11, 12, 19, 64, 101, 114, 117, 119

benefit finding

3, 10, 113

biofeedback

16, 41, 63, 84, 146

burn-out

19, 21, 24

E educatie

4, 7, 18, 21, 23, 27, 36, 42, 44, 105

educatieprogramma’s eerste lijn

C

12, 22, 42, 152

eetstoornissen

catastroferen cognitief-gedragsmatig

11, 54, 55, 104 81, 84, 85, 91, 101, 104,

e-health

57, 155

empowerment

6, 7, 22, 44, 75 35

ervaringsdeskundigheid evidence-based

144, 155 cognitieve gedragstherapie

12, 18, 20, 21, 25, 28

energieverlies

115, 117, 151 cognitief-gedragstherapeutisch 58, 101, 105, 130,

5, 20, 27, 106, 153

155 13, 69, 84, 127, 133, 143, 152

8, 11, 13, 21, 24, 28,

30, 43, 44, 51, 54, 55, 56, 57, 58, 70, 73, 87, 101,

F

106, 112, 115, 144, 145, 146, 153, 155

follow-up

34, 40, 57, 69, 85, 91, 105, 115, 152

J. Jaspers, H. van Middendorp, Psychosociale zorg bij chronische ziekten, DOI 10.1007/978-90-313-8231-6, © 2010 Bohn Stafleu van Loghum, onderdeel van Springer Uitgeverij

206

Psychosociale zorg bij chronische ziekten multimodale programma’s

functionele beperkingen 9, 51, 52, 54, 55, 56, 57,

7, 13, 56, 105, 115, 154

multimorbiditeit

58, 83 fysieke training

149, 151

38, 40, 89, 130 N nazorg

G gedragsverandering

8, 20, 25, 38, 56, 73, 103, 137

graded activity

56

groepsprogramma

105, 107, 151

39

nazorggroepen

11, 36

negatief zelfbeeld

11, 13

neuroticisme

13, 98

non-adherentie H

64, 65, 68, 74, 75

nternet

hulpeloosheid

86

11, 54, 110, 117, 120

hypervigilantie

11, 54

O ontspanning

I

41, 44, 102

ontspanningsoefeningen

38, 56, 71, 88, 102 16, 55, 146

implementatie

8, 26, 31, 40, 107, 132, 156

ontspanningstechnieken

incidentie

8, 27, 28, 30, 62, 126, 138

ontspanningstraining

individuele verschillen ingrijpende levensgebeurtenis internet

54, 66, 68, 98 5, 75, 76, 149, 155

P palliatieve zorg

46, 122

internet-based

155

passiviteit

internetinterventies

155

patiëntenorganisaties

K kennisoverdracht kosteneffectiviteit kwaliteit van leven

105, 151

4, 13, 33, 37, 151

17, 21, 43 14, 69, 106, 156 3, 5, 9, 10,

11 6, 128

patiëntenperspectief

22, 47

peer-ledinterventies

149, 155

persoonlijke groei

4, 122, 135

persoonlijkheidskenmerken

13, 65, 78

pijn 9, 11, 51, 52, 53, 55, 56, 58, 61, 62, 65, 68, 69,

18, 24, 39, 40, 43, 44, 53, 63, 67, 68, 70, 72, 76,

103, 119, 121, 122, 129, 141, 155

81, 83, 85, 87, 88, 95, 98, 104, 106, 110, 112, 129,

polyfarmacie

132, 140, 144, 147, 150, 153

posttraumatische groei

150 4, 122

proactieve coping L leefregels

5, 41, 96, 100, 150

leefstijlfactoren

13, 29, 153

leefstijlinterventies leefstijlregime

9

9, 16, 44, 56, 76, 102

protocol

18, 36, 48, 57, 72, 115

protoprofessionalisering psycho-educatie

8, 34

leefstijlveranderingen

4, 5, 8, 9, 40, 151

levensgebeurtenis

69

lichaamsbeweging

17, 29, 41, 115, 153

lotgenotencontact

11, 36, 43, 107, 155, 128

11, 110

probleemoplossend

15

5, 36, 38, 41, 43, 56, 59, 70, 72,

73, 76, 104, 114, 115, 117, 130, 144, 145, 147, 151 psychopathologie 12, 25, 34, 36, 46, 66, 139, 140, 147, 151, 152 psychosomatische ziekten

12

R M

randomized controlled trials (RCT’s)

mantelzorg

42, 44, 111, 116, 122, 134

meta-analyse

23, 38, 40, 51, 55, 58, 88, 106, 114, 116

mindfulness

57, 155

mindfulnesstraining

129

monitoren

7, 9, 15, 20, 34, 40, 84

mortaliteit

8, 38, 40, 80

motivational interviewing motiveren

20, 27 17

5, 15, 24,

26, 44, 70, 71, 85, 106, 115, 131, 133, 147, 152, 155 response shift revalidatie

10 33, 37, 38, 40, 42, 44, 47, 58, 86, 88,

89, 128, 130 revalidatieprogramma’s richtlijnen risicogroepen rolveranderingen

38, 86, 89, 92

18, 22, 25, 47, 48, 71, 72, 77, 122, 128 13, 53, 57 9, 83

Register

207 vermijding

S screening

screeningsinstrument

23, 32, 47, 59

screeningsmomenten

37, 46

shared decision making

7 11, 97

116, 119, 122, 128, 129, 152 verwerking

stoppen met roken stress

31, 32, 36, 43, 46, 130

verwerkingsproces voorlichting

sociale steun 8, 11, 40, 44, 54, 64, 68, 112, 120, 123, 139 stigmatisering

9, 15, 34, 42, 52,

53, 57, 58, 61, 68, 72, 76, 81, 83, 88, 110, 111, 114,

45, 46, 123, 127, 132

sociale afwijzing

11, 53, 58, 67, 97, 100, 110, 113, 122

vermoeidheid

4, 12, 13, 21, 23, 26, 27, 29, 37, 39, 42,

31, 36, 43, 46

5, 15, 36, 39, 40, 41, 43, 46, 48, 70,

72, 77, 104, 107, 112, 126, 127, 130

14, 98, 141 8, 68, 73, 76, 81, 86 11, 19, 25, 38, 43,

46, 48, 55, 62, 64, 66, 68, 69, 73, 77, 80, 93, 97, 98, 100, 101, 102, 110, 114, 115, 117, 122, 129, 130, 144 stressmanagement 25, 38, 41, 56, 69, 70, 72, 87,

Z zelfbeschikking zelfeffectiviteit

7 7, 8, 24, 40, 44, 83, 89, 110, 115,

116, 117, 150, 152 zelfmanagement 4, 5, 6, 7, 15, 36, 46, 56, 84, 85, 86, 89, 92, 107, 150, 152, 153, 155

101, 105, 117, 144

zelfzorg T

7, 9, 12, 15, 17, 18, 20, 25, 36, 40, 42, 80,

91, 96, 100

tailor-made

14, 51, 55

therapietrouw 9, 38, 40, 56, 63, 74, 75, 100, 104,

zelfzorgtaken zelfzorgvaardigheden zichtbaarheid

106, 150, 155, 139

ziekteactiviteit U uitkomstmaten uitkomstvariabelen

22, 39, 46, 85, 87, 91, 106, 152 5, 153

verantwoordelijkheid verliesverwerking

11, 31, 41, 44, 129

8, 55, 63, 66, 68 14

ziektegeneriek

4, 31, 46, 149, 151

ziektelast zorgstandaard

6, 7, 12, 14, 15, 120

97, 98, 100, 101, 151

ziektebeleving

zorg op maat V

6, 17 8, 82, 85, 92

14, 107 155 28, 46, 47, 48