“Nothing About Us Without Us” Agenda Setting Workshop and Consultation Forum on Cross-Sectoral Disability Inclusion Jakarta, 3-5 June 2013 Facilitated and reported by Galuh Wandita (AJAR) and Herizal Arifin BACKGROUND As a concrete step after the Government of Indonesia ratified the UN Convention on the Rights of Persons with disabilities in November 2011, the Coordinating Ministry for People’s Welfare (Kemenko Kesra) and the PNPM Support Facility sponsored a consultative forum to discuss cross-sectoral disability inclusion strategies within community empowerment programs. The two and one-half day consultative gathering aimed to: 1. Provide an opportunity for organizations and persons with disabilities in Indonesia to share their aspirations, experiences, and challenges in advocating for the rights of persons with disabilities at both grassroots and higher policy levels 2. Obtain inputs on a Multi Stakeholder Forum component in the PNPM Disability Program (PNPM DPO Window), including building a shared vision about goals, priorities, forum membership and organizational structure 3. Develop an agenda and follow up plans for the Multi Stakeholder Forum To ensure full participation of persons with disabilities, the Disabled People Organizations (DPOs) were given one and one-half day from June 3rd to 4th to identify, discuss and prioritize issues for the agenda during the preparatory forum on June 5th. Disability activists, organizations of persons with disabilities, disability-specific organizations, nongovernmental organizations, relevant government representatives and donor agencies attended this preparatory session. [See List of Participants under APPENDIX 1]
Page 1 of 21
A. DPO-Oriented Workshop, June 3rd and 4th 2013 1. Intorduction and Expectations Day One (June 3) session included introductions, participants’ expectations on workshop, workshop orientation (such as agreement on schedule and guidelines for participation). On Day Two (June 4th), the workshop continued with brainstorming ideas about the Multi Stakeholder Forum. The discussion revolved around structure, agenda, and membership of the forum. The forum is envisioned as a means for persons with disabilities push and monitor for rights based disability inclusion as mandated by the 1945 Constitution and the UN Convention on the Rights of Persons with Disabilities.
2. Mapping: obstacles, achievements, and strengths of DPOs This session started with paired discussion to answer question What are our challenges, achievements and strengths and map the experiences of DPOs.
Page 2 of 21
Discrimination and Access
Funding, Regulatory Framework, Policies and Programs
Identified Obstacles Unequal treatment and exclusion of persons with disabilities from decision-making processes and other social development programs Lack of ICT access, for example, access to sign language interpreter and assistive devices for blinds in various events, workshops, seminars, etc Lack of access to public facilities and infrastructure Lack of health insurance for adults with disabilities Rejection in business sector, minimum wage inappropriate for persons with disabilities Limited job opportunities and trainings for persons with disabilities Not allowed to participate in television auditions
Achievements Increased government attention on rights of persons with disabilities Improved access to health services for persons with disabilities and access to transportation and other public services Availability of social security for persons with disabilities (in some regions) Participation in religious events
Legalization of UU No.19/ 2011 that support UNCRPD More regional bylaws on disabilities (PERDA) in various provinces although the substance and implementation of PERDA remained to be seen Increased budget earmarked for disability inclusion in some provinces Increased coordination between Regional Governments and Social Services at district level More persons with disabilities employed as civil servants Laws on rights of persons with disabilities to vote and to be elected
Limited access to budget information from regional and national government level Inconsistent funding support for disability Corruption of funds earmarked for disabilities Discrimination by the government, for example, persons with disabilities have difficulty in accessing funding and community block grants Inadequate government attention and support to livelihood, education and health sectors targeting people with disabilities Limited access to budget information from regional and national government level Lack of coordination between central and regional governments Inadequate law enforcement regarding disabilities and discriminatory law enforcement apparatus Unsustainable Regional Government Working Units (SKPD) Limited awareness among government on Disability Bylaw (PERDA) 14/2009
Education and language rights
National curriculum does not include education or skills training for persons with disabilities Lack of resources to support Inclusive Education (IE), e.g., lack of awareness on inclusive teaching practices among teaching assistants and teachers, inclusive schools often seek assistance from SLB teachers, etc Lack of recognition of Bisindo [Indonesian Sign Language] use in Special Schools (SLB) Gap in participation of deaf and hard of hearing persons and persons with visual disability in events, workshops, seminars and other activities
More persons with disabilities attending public schools and inclusive schools Better recognition and acceptance of Bisindo [Indonesian Sign Language] through advocacy in SLB Improved access to sign language interpreters Many deaf and hard of hearing persons have talents
Stigma and Paradigm
Draft report regarding human rights violations by PDIS has been submitted to the UN (after CRPD, disability became sexy issue) Exposure to International community about disability issues in Indonesia Increased positive media exposure on issues and persons with disabilities to reduce prevailing stigma More successful persons with disabilities to serve as role models
DPOs Capacity and Networks
Limited capacity and resources among DPOs Differing visions and missions among DPOs that limit cooperation among DPOs Lack of cooperation between District Social Services and DPOs
Proliferation of branch DPOs in other regions Solid cooperation among umbrella DPOs at the national level and improved cooperation among DPOs at the central and regional levels
Data
Inadequate mapping and data collection on organizations and persons with disabilities
Validation of disability data
Negative stigma on self and from the society. Often persons with disabilities are seen as ‘invalid’ Dominant charity-based mindset toward disabilities instead of rights based Unsatisfactory handling of disabilities issues, especially with charity-based programs Persons with disabilities are exploited for panhandling
Page 3 of 21
According to the DPOs participants, the achievements are connected to existing strengths: People with disabilities are now considered experts on disability issues Common vision and mission among DPOs, especially on principles of UN Convention on Rights for Persons with disabilities (CRPD) Ratification of UNCRPD by the government and formalization of Regulation No. 19/2011 (rights based disability regulations) DPOs’ understanding of disability issues, especially increased awareness of disability rights and approaches in handling disability issues Support for Indonesian DPOs from international DPOs and networks Increased government budget for rights-based disability inclusion programs and activities in some provinces DPOs as frontliners to push for ratification of CRPD and actively involved in policy making and legalization of Regional Bylaws on Disability (PERDA) Resilience in the struggle for disability inclusion 3. Presentation of Results from the DPOW Scoping prior to Multi Stakeholder Forum This session explained the MSF component within PNPM DPO Window and allowed DPOs to ask questions and understand where DPO Window stands within umbrella PNPM Mandiri. Summary on Initiative for Establishment of Multi Stakeholder Forums (MSF) The consultations and preliminary DPO Window field findings confirmed the need for a more unified disability inclusion strategy and work plan across the government, key ministries, international and local donors, civil society and academic sectors in Indonesia. It also highlighted the importance of involving DPOs in the initiative and led to formation of a multi stakeholder forum. The forum is envisioned as one of crucial strategies to ensure substantive collaboration and coordination of resources among many disability programs in Indonesia. The MSF will enable DPOs to increasingly play key roles in shaping and improving disability inclusion programs and connect the DPOs to the highest levels of government through the strategic oversight and management of Menko Kesra under technical assistance of PNPM- DPOW (Disabled People Organizations Window). ISSUES FOR CONSIDERATION The consultations identified a number of key issues that affect existing disability-related programs: Non-existent information on (grassroots) DPOs outside Jakarta and Java island Lack of access to funding information and resource for DPOs Lack of communication and clear roles on who should be doing disability among key ministries Lack of effective and integrated national policies to address disability inclusion among various government’s social development programs Lack of donors’ coordination as evidenced by parallel programs in some areas Limited and weak networks among DPOs, which hampers more intensive and meaningful participation of DPOs at both grassroot and policy level advocacy
Page 4 of 21
The need for coordination between central and regional governments to promote organizational capacity of DPOs Although the CRPD has been ratified, many programs still see persons with disabilities as beneficiaries, rather than key players The need for affirmative action for persons with disabilities Lack of consensus on definition of persons with disabilities – the government and DPOs need to meet and agree on this issue
4. Critical Discussion – What is the Multi Stakeholder Forum for? The DPOs participants critically questioned the purpose of establishing a “multi stakeholder forum”. Although some participants from the national umbrella DPOs based in Jakarta felt the importance of this initiative under the Coordinating Minister for People’s Welfare, they are concerned as to how the forum may overlap with existing consultative forums. What relationship exists between this forum and the National Action Plan (Rencana Aksi Nasional) coordinated by the Ministry of Social Affairs (Mensos). Deep discussion ensued on whether DPOs role will be as participants in this forum or as working partners.
The group agreed that it is important to:
determine main goals to be realized through the PNPM-DPOW initiative define how this program differs from other disability targeted programs. Some participants suggested that the goal and focus of this program should pertain to areas and issues that have not been addressed by other existing programs
Page 5 of 21
if possible, align the works of PNPM DPOW with other existing disabilities programs under other Ministries/Agencies, for instance, the Ministry of Social Affairs, Ministry of Foreign Affairs, TNP2K and others to avoid reduplication and stagnation of program activities align MSF with the framework of National Action Plan, including processes and implementation A working group was tasked to formulate agenda and mechanisms for discussion at the Preparatory Workshop on June 5th 2013. The group envisioned the scope of process, issues to be addressed, stakeholders and potential participants and the constraints of the forum and its processes. 5. Outcomes of DPOs Workshop
Priority Issues Stigmatization and discrimination toward persons with disabilities Weak legal instruments and access to justice for victims with disabilities Lack of DPO mainstreaming and funding for capacity building Inadequate attention to persons with disabilities in conflict areas, women and children with disabilities Limited access to information (e.g., to sign language interpreters) and access to persons with disabilities as resource persons Lack of Assistive (Device) Technology to support persons with disabilities Lack of access to education, livelihood opportunities and job and skills training, along with coordination support from relevant agencies Lack of quality research on disability issues in academia Gaps and lack of coordination and communication among DPOs inside Java and outside of Java Limited DPOs existence in Eastern Indonesia Lack of dedicated funding allocation for programs targeting persons with disabilities and budgeting process not transparent and disability inclusive Recommendations on MSF Establishment
The MSF is seen as necessary to bring together stakeholders from various sectors and diverse actors, particularly DPOs and persons with disabilities to address the above mentioned issues. The main functions and scope of MSF need to encompass: 1. Coordination that include clear and informed work plans; 2. Mechanisms to address the capacity gap between DPOs in Java and Eastern Indonesia. The forum is expected to serve to bridge the gap by forming a special cluster to promote the capacity of DPOs in the eastern regions; and, 3. Mechanisms to enable DPOs to implement monitoring and evaluation of disability inclusiveness of programs for people with disabilities and other poverty reduction programs All DPO representatives in this consultative session were highly enthusiastic about being involved in the MSF. Although those attending this meeting maybe identified by those involved in official planning, others with interests at stake that have yet to be identified or experience high level forum might be overlooked. In order to mitigate the risk of exclusion and balancing different views, the outreach should be directed well beyond national umbrella organisations and outside Java as much as possible. There should be ample opportunity for CSOs, businesses, and other interested parties to “self-identify”.
Page 6 of 21
The selection of MSF members, like the program design and planning, ideally should happen prior to the actual MSF. Some of the suggestions regarding the selection process for MSF membership include: 1. Selection Committee – it will be neutral and members will not participate in the MSF 2. Open and transparent process, where each DPO submits organization’s CV for review by the Selection Committee. 3. Special mechanism to enable each DPO to participate and contribute to the MSF 4. Periodic evaluation on MSF members’ performance every six months
Remarks Matters to be immediately addressed:
(1) Agreement on definitions of Disabled People Organizations, and (2) creation of a mailing list for the forum B. Agenda Setting Multi Stakeholder Forum June 5th, 2013 Stakeholders of disability inclusion and issues comprised of relevant government agencies, DPOs, NGOs, media, academia, and donor agencies gathered for the workshop on day three. In his opening speech, Sujana Royat, the Deputy Coordinating Ministry of People’s Welfare and National Program for Community Empowerment (PNPM Mandiri) shared his perspective as well as some of the government efforts on disability inclusion and key reasons why the MSF is crucial in order to build and strengthen disability inclusion in coordinated and strategic way. According to Sujana Royat, existing strategy for poverty alleviation has yet to consider and place persons with disabilities and DPOs as development actors hence Kemenko Kesra took the initiative to address inclusion of persons with disabilities within the National Program for Community Empowerment (PNPM) DPO Window. The DPO Window is not a charity-based program but rightsbased and social justice platform for people with disabilities and DPOs to advocate for their inclusion within social development and poverty reduction programs. During the Question & Answer session, several participants raised similar suggestion on strategies that foster community and society’s understanding and acceptance toward people with disabilities through upward spiral and sustained advocacy, inclusion of disabilities awareness in school curricula and increasing implementation and safeguarding of national and local regulations that protect and guarantee the rights of people with disabilities.
Page 7 of 21
3. Presentation of DPO Formulation Antoni Tsaputra, West Sumatera Indonesian Disabled People’s Association (PPCI) representative, delivered a map of issues to be prioritized, rationale and recommendations that the DPO participants had brainstormed. The identified problems are categorized into three spheres, namely policy (regulation, program, handling or response of the government case-by-case); structural (behavior and practices in the administration of state services by state agents), and cultural (behavior and worldview of the society). The presentation was followed by a series of panel presentation on Services for Children with Disabilities in Remote Regions by Subasno from Bhakti Luhur Foundation in Malang, Cases of Violence Against Women with Disabilities in 3 Provinces by Nurul Andriani from SAPDA, The Difabled Youths by Serafina Bete from Persani, Kupang and Livelihoods Opportunities for persons with disabilities by Nurlaili Ramdani drom LP3C Sumbawa. (Delivered presentation notes available in Appendix 2)
Page 8 of 21
4. Group Discussion on Formulating the Agenda for Multi Stakeholder Forum. The workshop participants were divided into four groups: Social Protection and Assistance, Employment and Skills Training Issues, Accessible Infrastructure and Education. Each group was comprised of representatives from DPOs, government agencies, NGOs, and donors. The facilitators provided the groups with guiding questions: 1) What is the long-term goal of MSF? 2) What agenda or program to be prioritized in MSF? 3) What are expected outcomes from ongoing 2-year MSF? 4) What are the mechanisms for participation, accountability, and communication in the MSF? 5) What other issues to bring into the table? Detailed discussion results from each group can be found in Appendix 3. 9. Reflections from Facilitators In this section, we attempted to summarize the ideas for the Multi Stakeholder Forum design based from discussions above. A. Long term goal Need to be in line the national legal frameworks (National Action Plan, Laws, Ministerial Decrees) and international law UNCRPD, for instance increase 1% quota and accessibility to employment for persons with disabilities Include monitoring and evaluation on public facilities and infrastructure to achieve a 30% accessibility rate in 10 years Geographical scope of program implementation need to reach regional level government (PEMDA) and involve branch and grassroot DPOs, not only central level and umbrella DPOs
Page 9 of 21
B.
Coordination and collaboration on social protection and assistance programs. Key actors should include persons with disabilities from various districts and municipalities to ensure mainstreaming, monitoring and to provide recommendations for improvement MSF to bridge to solve issues related to disability inclusion
Main agenda Identifying needs, monitoring and evaluation and provide good practice guidelines (success stories and awards to various government agencies, companies, universities and private sectors that meet 1% quota of employing people with disabilities) Promote legalization and implementation of regional disabilities regulations and laws (UU PERDA) Campaign for full access and participation of DPOs in planning and budgeting processes through Musrenbang, including monitoring the implementation mechanisms Increase the organizational capacity of DPOs
C. RECOMMENDATION The recommendations below are based on the facilitators’ observation during discussion process and dynamics of interactions among DPOs themselves and with others. 1.
DPO Window should promptly implement a number of follow up commitments agreed at the end of the workshop to maintain the trust, interest and enthusiasm of participants postworkshop and speed up the establishment of the MSF. The workshop results and reports should be distributed when ready and create mailing list so participants can come up with ideas how to further develop the capacity of DPOs through MSF.
2.
After the establishment of the MSF, it is important to consider placing DPOs group as the forefront of disability inclusion programs at both national and regional level because they understand disability inclusion better. Kemenko Kesra as MSF leading oversight states in his opening speech: “ … A strong organization is defined by the strength of its stakeholders at the lower levels. The government will provide all types of necessary support necessary, but will restrain itself and will not be involved too deeply because the realization of aims of this program entirely depends on the aspirations and decisions of persons with disabilities and DPOs themselves.”
3.
PNPM DPO Window should consider the MSF as a strategic forum or “mechanism” not as program delivery. It is important to build “understanding and acceptance among the society and the state toward persons with disabilities” through: (1) upward spiral and sustained advocacy, (2) inclusion of disabilities awareness in school curricula, and (3) increased implementation and safeguarding of national and local regulations that protect and guarantee the rights of people with disabilities.
4.
Building on the ideas suggested by the DPOs, PNPM DPO Window needs to consider an opportunity to synergize with other disability programs conducted by other government ministries, such as the Ministry of Social Affairs, Ministry of Foreign Affairs, TNP2K, etc. This effort needs to be carefully considered in order to avoid duplication and delay in program activities. DPOs expect to play crucial role in MSF, both in process and implementation stages to ensure that existing disability inclusion programs can be aligned with national and international rights-based laws and National Action Plan (RAN). Page 10 of 21
APPENDIX 1
LIST OF PARTICIPANTS Disabled People Organizations (DPOs)
NO
Organizations
Representative
LP3C Al Mujadalah
Nurlaili Ramdhani
2
Yayasan Penca Garuda Rinjani & PPCI NTB
Budi Cahyono
Lombok, NTB
3
Persani
Serafina Bete
Kupang, NTT
4
KPPC Kita Juga
Anselmus Gabies Kartono
Labuan Bajo, NTT
5
HWDI Ambon
Mince Agisty Rumlaklak
Ambon, Maluku
6
PPDI Papua
Nyong Roby
Jayapura, Papua
7
HWDI Gorontalo
Risna Karim
Gorontalo
081219611965
[email protected]
8
Persatuan Tuna Netra Indonesia (Pertuni) Kalimantan Selatan
Agus Hidayat
Martapura Kota, Banjar, Kalimantan Selatan
082153257753; 0511-6223529
[email protected]
9
Bandung Independent Living Center (BILIC)
Yuyun Yuningsih
Bandung
10
PPDI Padang
Antoni Tsaputra
Padang, Sumatera Barat
11
Pertuni Sumatera Utara
Hairul Batubara
Medan, Sumatera Utara
12
Konas Difabel
Risnawati Utami
Yogyakarta
Muhammad Joni Yulianto
Yogyakarta
085878469692
[email protected]
Nurul Saadah Andriani
Yogyakarta
0274-384066; 081917636228
[email protected];
[email protected]
1
13
14
Sasana Integrasi dan Advokasi Difabel (SIGAB) SAPDA (Sentra Advokasi Perempuan Difabel dan Anak
Region Sumbawa, NTB
Contact Details
[email protected] 085 239 985 6321 081917636228
[email protected]; yysnpemberdayaan
[email protected] 085692183897 082174873921
[email protected] [email protected] 08563998090 082145272095 081322612769
[email protected] 082397876017
[email protected] 081310151801
[email protected]
085322787080
[email protected];
[email protected];
[email protected] 085692183897; 082174873921
[email protected] m;
[email protected] [email protected]. co http://padang.ppdi.co 081376563736 Dpd.pertunisumaterautara@g mail.com 0812542315; 081227289686
[email protected]
Page 11 of 21
Disabled People Organizations (DPOs) NO
Organizations
Representative
Region
Contact Details
15
Pusat Pengembangan dan Rehabilitasi Berbasis Masyarakat Solo (PPRBM)
Sunarman Sukamto
Solo
0271-781743; 780829; 780976 081329203898
[email protected]
16
YAKKUM Bali
I Nengah Latra
Bali
0361-7444620/94333; 08123990701
[email protected]
Gufroni Sakaril
Jakarta
0811949592
[email protected]
Maulani Rotinsulu
Jakarta
021-49041858; 08128253598
[email protected]
17
18
Perhimpunan Penyandang Disabilitas Indonesia (PPDI) Pusat Himpunan Wanita Disabilitas Indonesia (HWDI) Pusat
19
Yayasan Tuna Rungu Sehjira
Rachmita Harahap
Jakarta
021-36086952/5840813
[email protected]
20
Gerakan Kesejahteran Tuna Rungu Indonesia Pusat
Juniati Effendi
Jakarta
081807900275
[email protected]
21
Yayasan Mitra Netra
Aria Indrawati
Jakarta
22
Bhakti Luhur
Yohanes Subasno
Malang
021-7651386; 081511478478
[email protected] [email protected] 085234107601
[email protected] [email protected]
Academics and Media NO
Organizations
Representative
Region
Contact Details
23
Majalah Diffa
Jonna Damanik
Jakarta
021-44278887; 087888457889
[email protected]
Ro'fah Mudzakir
Yogyakarta
081281614842
[email protected]
Slamet Thohari
Malang
082122222686
[email protected]
24
25
Pusat Studi dan Layanan Disabiltas UIN Sunan Kalijaga Pusat Studi dan Layanan Disabiltas Universitas Brawijaya
Page 12 of 21
Government No
Ministry/Institution
Section/Position
1
Kementerian Koordinator Kesejahteraan Rakyat
Kepala Bidang Pemberdayaan Masyarakat, Deputi 7 Asisten Deputi VII untuk Urusan Pengawasan Kebijakan dan Anggaran
Kementerian Sosial
Direktorat Rehabilitasi Sosial Orang dengan Kecacatan
2
3
4
Kementerian Tenaga Kerja dan Transmigrasi
Kementerian Kesehatan
5
Kementerian Pekerjaan Umum
6
Kementerian Pendidikan
7
Kementerian Dalam Negeri
8
TNP2K
9
Sekretaris PokJa Pengendali PNPM-Kesra
Kepala Seksi Penempatan Tenaga Kerja Muda dan Wanita Staff Penempatan Tenaga Kerja Rentan Staf Subdi RS. Privat Direktorat Bina Rujukan Direktur Penataan Bangunan dan Lingkungan (PBL) Kasubdit Turbin Dit. PBL Staff Staff Staff Kepala Seksi Pemantauan & Evaluasi, Dit. Pengembangan Permukiman Kasubdit Program Dir. PKLK Pendidikan Menengah Pembinaan Sekolah Menengah Pertama Direktur DKM dan PDN Staff Biro Hukum Kasubdit Pemetaan
Representative
Contact Details
Wijanarko Setiawan
085298058082
Hadi Santoso
081381272286
Drs. Kiki Ritol, MSi
08170946105
Dewi Anggraini
08121360678
Atiek Widiawati
081213605077
[email protected]
dr. M. Riki dr. Eldy Akhirul Akbar
081315293096 081318600573
Ir. Guratno Hartono, MBC Dian Irawaty Agustine E Putri Esthi Dwityanti (staff) Duty R (staff) Kusumawardhani
0816874388
Jk Kannaha Putri, SPd, MA Ninik Purwaning
081283219877
[email protected] 08151600932
Heri Kusuanto Siti Avianti Farid Chandra Fiona Fowell
081316171819 /
[email protected] 085697097818 08129498001 085715420830
Jan Priebe
081316542802
Taufik Rinaldi
0811881218
021-72799246
[email protected] 085312307967 021-72799246 021-72797427
Social Assistance Policy Advisor
APPENDIX 2
OAC Specialist
PANELIST PRESENTATION NOTES
KESEMPATAN PEMBERDAYAAN EKONOMI PENYANDANG DISABILITAS NURLAILI LEMBAGA PEMBINAAN DAN PELATIHAN PENYANDANG CACAT, AL MUJADALAH, KABUPATEN SUMBAWA PROFIL LP3C AL MUJADALAH
Sejak 2007, dengan anggota 200 orang dari seluruh kecamatan di Sumbawa Page 13 of 21
Tuna netra, rungu, daksa, grahita dan disabilitas ganda Sebagian memiliki pekerjaan (produktif), sebagian masih bergantung pada keluarga Yang produktif bergerak di perdagangan (kios), perikanan, peternakan dan pertanian Program LP3C: pembinaan dan pembangunan karakter, ketrampilan dan menyalurkan program pemerintah Mitra pemerintah adalah Kementeriaan sosial, dalam bentuk bantuan kebutuhan dasar, bantuan langsung tunai PERMASALAHAN Bantuan pemerintah: o Ada yang tidak tepat sasaran o Ada yang hanya bisa dinikmati sementara (tidak memandirikan) o Bantuan makanan perlu, tapi tidak cukup hanya program itu
Kurangnya pendidikan dan pelatihan yang bermutu Kurangnya akses permodalan Rendahnya ketrampilan manajemen usaha Data yang kurang akurat dan kurang lengkap. Pemahaman bahwa penyandang disabilitas memiliki kebutuhan yang berbeda-beda
UPAYA YANG PERLU DILAKUKAN Memberikan pendidikan untuk masuk ke sektor formal Memberikan pelatihan wirausaha Memfasilitasi akses peminjaman modal Penyandang disabilitas membentuk koperasi dari, oleh dan untuk penyandang disabilitas
HARAPAN Tindakan nyata yang lebih dari pemerintah Bantuan permodalan untuk yang mau berwirausaha Kemandirian dan taraf hidup yang lebih baik Berkontribusi aktif dalam masyarakat
Page 14 of 21
TEMUAN KASUS KEKERASAN TERHADAP PEREMPUAN DENGAN DISABILITAS NURUL SAADAH ANDRIANI SAPDA 2013 Ruang Lingkup Kekerasan Berbasis Gender & Disabilitas “Adalah kekerasan yang terjadi karena dia seorang perempuan & dia adalah perempuan dgn disabilitas” dapat terjadi di : dalam lingkungan keluarga dalam lingkungan sosial dalam panti dalam sekolah dalam lingkungan kerja di jalan –jalan Ruang Lingkup dan Pelaku Kekerasan Jenis Kekerasan di DIY dan Jawa Tengah
sterilisasi paksa anak perempuan dengan disabilitas mental/intelektual yang telah menstruasi di beberapa SLB Pemasungan orang dengan disabilitas mental psikososial Diskriminasi pendidikan dan pekerjaan Penanganan kasus kekerasan terhadap perempuan difabel yang tidak efektif Kenapa ini terjadi & terus terjadi Stigma Negatif keluarga dan masyarakat bahwa perempuan disabilitas tidak mandiri Kasus tidak terungkap: keluarga/ korban malu, keluarga adalah pelaku, tidak paham kalau perlakuan tersebut merupakan kekerasan Perlindungan hukum belum memadai Dukungan dari kelompok disabilitas belum kuat
Bagaimana menghentikan ? Penguatan kepada perempuan dengan disabilitas Mendorong daya dukung dari komunitas Menyiapkan sistem & perangkat hukum dengan perspektif disabilitas Mendorong kebijakan, program & anggaran yang berpihak kepada penyandang disabilitas Kampanye ……..
Apa yang bisa dilakukan perempuan dengan disabilitas yang menjadi korban & komunitas ?
Page 15 of 21
KAUM MUDA DIFABEL CERITA DARI KUPANG, NTT SERAFINA BETE PERKUMPULAN TUNA DAKSA KRISTIANI (PERSANI), NTT
KONDISI YANG TERJADI DISABILITAS = KUTUK, AIB, BEBAN KELUARGA, HARUS DISEMBUNYIKAN
PENYANDANG DISABILITAS MINDER, TERTUTUP, TERPINGGIRKAN DAN MENYERAH
DISKRIMINASI
DISKRIMINASI YANG DIALAMI
Tidak dilibatkan dalam kegiatan masyarakat dan pemerintah Kurang akses ke pendidikan yang bermutu Kurangnya layanan kesehatan Tidak adanya kesempatan untuk memiliki pekerjaan layak formal dan informal Aksesibilitas fasilitas umum, transportasi, bangunan umum HARAPAN DAN KEINGINAN
Mengenyam pendidikan yang setinggi-tingginya Dipandang, diperlakukan sama, dan dilibatkan dalam kegiatan masyarakat maupun pemerintah Kemandirian dalam berbagai aspek kehidupan, misalnya melalui akses ke pekerjaan yang layak, aksesibilitas fasilitas umum Intinya tidak ada diskriminasi
Page 16 of 21
PELAYANAN BAGI PENYANDANG DISABILITAS Subasno YAYASAN BHAKTI LUHUR MALANG – INDONESIA
PELAYANAN BAGI PENYANDANG DISABILITAS Lima tahun terakhir, peran pemerintah lebih baik Legislasi: o Muncul Perda Penyandang Disabilitas o Perwali/Perbup Bidang Sosial: o Bantuan bahan makanan o Bantuan sosial PD berat o Distribusi melibatkan stakeholder lokal Bidang pendidikan: o BOS o Banyak sekolah menjadi sekolah inklusi. o Peningkatan kapasitas guru untuk pendidikan inklusi. Bidang kesehatan: o Jamkesmas-Jamkesda serta sistem rujukan. o Kerja sama dengan LSM untuk operasi medis dan pemberian alat bantu. PERANAN DPOs
o o o o
Kerja sama DPO, GO dan NGO Permata ---> Micro finance dan KUBE Pertuni ---> Low vision Yakkum Bali ---> ortose-protese Dll TANTANGAN
ID berat-sedang tidak terwakili Lebih-lebih di minus area Penguatan kapasitas paguyuban keluarga PD (FKKDAC/FKKABK?) Kebanyakan DPO besar belum sampai pelosok. Infrastruktur (kesehatan dan pendidikan) belum mencukupi Minat untuk bekerja di pelosok kurang. Pandangan negatif tentang PD Pelayanan dan sikap berorientasi charity/philantropy
Page 17 of 21
PELAYANAN PENYANDANG DISABILITAS OLEH BHAKTI LUHUR (INSTITUSI)
Sistem wisma (socio homes) Bersekolah (SLB atau inklusi) Dilengkapi dengan fasilitas penunjang Program sekolah dan penunjang diteruskan di asrama (Master-IRP)
PELAYANAN BHAKTI LUHUR MELALUI REHABILITASI BERBASIS MASYARAKAT
Pemberdayaan PD & keluarga o Akses dan atau provide fasilitas kesehatan, pendidikan, livelihood, pemberdayaan dan sosial. o Banyak sekolah menolak PD o Pelatihan pendidikan inklusif bagi guru. o Judul sekolah inklusif, tapi masih integratif. o Di desa, kasus ID (sedang-ringan) tidak dipersoalkan saat intake. Tidak semua keluarga dengan PD terbuka dan mau dibantu. Dibutuhkan tenaga terlatih untuk bekerja bersama PD di pelosok.
Page 18 of 21
APPENDIX 3
RESULTS OF GROUP DISCUSSION June 5th, 2013 LABOR GROUP
Long-term goal: Harmonization with national and international laws Increasing the number of persons with disabilities, up to 1% inclusion quota in the government Main agenda: Identification of needs, recommendations, monitoring and evaluation ensuring the implementation of laws Identification of successful programs in socializing the fulfillment of the rights of persons with disabilities Identification of access to proper work, including health insurance for workers with disabilities Promoting the achievement of 1% quota of workers with disabilities in the government Promoting the involvement of relevant institutions, for instance Ministry of the Utilization of State Apparatus, about the inclusion of persons with disabilities as Civil Servants, or the Directorate General of Taxation regarding regulation or provision of tax incentives, etc MSF membership: Representing all parties plus Ministry of the Utilization of State Apparatus, Ministry of Finance, Directorate General of Taxation, Businesses both from the government and private sector Mechanism to ensure participation, transparency and accountability: Coordinating Ministry for People’s Welfare is expected to be the leading coordinator for the sustainability of the forum in the long term The legality of the establishment of MSF must be bound in a legal document – Law, Ministerial Decree Regular meetings every 3-4 months Preparation of reports as well as periodic dissemination of public reports through social media Achieving real impacts: By mobilizing all elements of society using existing structures (Lurah, Camat, religious leaders, etc) Through a clear Work Plan
FACILITIES AND INFRASTRUCTURE GROUP Long term goal: ‘Long term’ period is 10 years Achieving 30% increase in access to public facilities, including information, publication, transportation, buildings, and worship facilities that are difabled-friendly [sic] MSF becoming a bridge between problems and solutions, between government and difabled [sic] community Main agenda: Promoting the enactment and application of bylaws in all regions regarding disabilities Providing examples by government institutions, e.g. Ministry of Public Works providing stimulus to difabled communities, socialized through forums that would chaperone implementation to regional level. Promoting budgeting process. Active participation of persons with disabilities in Regional Development Planning Consultations (Musrenbang), etc. Strengthening DPOs in sharing information, developing proposals. MSF membership: Page 19 of 21
Representatives of persons with disabilities, NGOs, government, business sector, academia. Proportion of membership to be determined later, informed by mapping. Mechanism to ensure participation, transparency and accountability: Open reports that are publicly accessible Audit and budgeting program Setting up mailing lists as online dialogue media Regular meetings on monitoring and evaluation, at least twice up to 3-4 times annually in case of a special need Achieving real impacts: By applying clear legal footing By circulars from central government to regional governments regarding involvement of [persons with] disabilities in PNPM programs By selecting right targets in order that the program fits the disability [sic] By harmonizing with National Action Plan
SOCIAL ASSISTANSHIP GROUP Long term goal: Promoting cooperation, coordination and facilitation with parties supporting social assistantship Promoting efforts to fulfil disabilities rights in regard to social assistantship Main agenda: Maping of social assistantship forms from Ministries and government as well as non-government institutions Assessment of the social assistantship programs in order to determine whether existing services have fulfilled disabilities rights, such as the rights of women an dchildren with disabilities, Jamkesmas, etc. Recommendation and revision of new social assistanship programs MSF membership: Representatives of DPOs, NGOs, government playing the role as mandate holders to support persons with disabilities beneficiaries based on the mandate focus of respective organizations, with the addition of representatives of the academia. Media should not be involved in the membership due to its independent nature. Mechanisms to ensure participation, transparency and accountability: By full participation of persons with disabilities By a process of team selection that is accessible By an open work planning. By using media to publish financial reports. Achieving real impacts: By participatory planning of stakeholders from rhe grassroots and inclusive groups.
Page 20 of 21
EDUCATION GROUP Long term goal: Location focus for the implementation of the program at the regional level, district/municipality. Implementing instructions, such as circulars from the Ministry of Home Affairs that has been socialized to regions regarding the implementation of CRPD, supporting the involvement of persons with disabilities in the planning and budgeting processes. Mainstreaming disability rights in the education sector as well as other sectors. Main agenda: Harmonizing with the implementation of the National Action Plan, especially at the regional level. MSF membership: Representatives from Ministries, DPOs, donors, academia. Furthermore, the forum must have regional reach to involve Regional Governments and DPOs in regions. Mechanisms to ensure participation, transparency and acocuntability: Initially, through mailing lists and other social media. Achieving real impacts: Identifying resources dwon to regional levels. Encouraging the involvement of regional stakeholders.
Page 21 of 21
