MUDr. Lenka Záhlavová Mgr. Irina Kolaříková

INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY

VÍDEŇSKÁ 1958 / 9

ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK

140 21 PRAHA 4 – KRČ

AAnnnnuuaall RReeppoorrtt 22001100 Introduction to CSCR Contact address:

Phone: E-mail: www: Head of CSCR:

Chief physician Phone: E-mail: Registry oordinators Contact persons: Phone: E-mail: Donor Centre Contact persons: Phone: E-mail: Financial Dpt., Administration Contact persons : Phone: E-mail: Transplant Centres

Institute for Clinical and Experimental Medicine Czech Stem Cells Registry (CSCR) Vídeňská 1958/9 140 21 Prague 4 Czech Republic + 420 261 361 011, 261 362 363, 261 362 346 [email protected] www.darujzivot.cz Mgr. Marie Kuříková +420 261 361 011 [email protected] MUDr. Lenka Záhlavová + 420 261 362 363 [email protected] Mgr. Irina Kolaříková + 420 261 361 011 [email protected] MUDr. Jana Švarcová, Mgr. Ludmila Březinová + 420 261 362 359 / 261 363 383 [email protected] / [email protected] Iveta Böhmová + 420 261 362 346 [email protected] Institute of Hematology and Blood Transfusion (IHBT) U Nemocnice 2094/1 128 20 Prague 2, Czech Republic www.uhkt.cz Chief physician - transplant unit: MUDr. Antonín Vítek University Hospital Brno Department of Hematology and Oncology Jihlavská 20 625 00 Brno, Czech Republic www.fnbrno.cz Chief Physician: prof. MUDr. Mayer, CSc. University Hospital Motol Department of Paediatric Hematology and Oncology V úvalu 84, 150 06, Prague 5 - Motol, Czech Republic http://kdho.fnmotol.cz Chief physician - transplant unit: Doc. MUDr. Petr Sedláček, CSc.

Other Cooperation:

Cord Blood Bank Czech Republic

Address: Institute for Clinical and Experimental Medicine Czech Stem Cells Registry – Bldg. Z4 Vídeňská 1958/9 140 21 Prague 4 Czech Republic

Tel.:+420 26136 1011, +420 26136 2346 Fax:+420 26136 2370, +420 24171 2242





International Cooperation:

Bone Marrow Donors Worldwide – BMDW World Marrow Donor Association – WMDA European Marrow Donor Information System - EMDIS

Czech Stem Cells Registry, former Czech Bone Marrow Donor Registry, was founded in 1991 in the Institute for Clinical and Experimental Medicine (IKEM) in Prague. In the same year, it became member of the international network of unrelated bone marrow donor registries managed from the coordinating centre in Leiden, The Netherlands. CSCR is member of BMDW and WMDA. CSCR gradually established contacts and joined other cooperating registries and information networks: e.g. National Marrow Donor Program (NMDP) in Minneapolis, USA in 1997 and European Marrow Donor Information System (EMDIS) in Ulm, Germany in 2003. CSCR searches in its database HLA matched donors for Czech and international patients as well. Donor testing is carried out in collaboration with the Department of Immunogenetics, IKEM. In 2010 HLA laboratory received a renewal of accreditation from EFI (European Federation For Immunogenetics). CSCR holds ISO 9001 certification dated September 2007.

WHAT WE DO: Our services include all steps from search process to transplantation from unrelated donor. We also prepared some campaigns for recruitment of prospective unrelated donors of hematopoietic stem cells. Last year we released a new information leaflet and a new poster, we organized several information seminars for students from secondary schools. We also started our own Facebook profile and gathered many Facebook supporters. Together with the family of one of our patients we arranged a Photography Exhibition (aerial views) taken by the patient during his own flights above South Bohemia. The exhibition was held under the auspices of our Registry and took place in Tábor, České Budějovice and Prague. It was a charity event in support of the CSCR. JOINING THE REGISTRY: Donors who are willing to join CSCR registry can fill out the registration form on our website or they can contact us by phone, email or in person. After the recruitment/information session the donors are asked for a small blood sample for HLA typing. What’s new? For people who can’t make an appointment for blood drawing, we have prepared a SALIVA TESTING KIT and instructions for use which can be sent to them by mail. The donors are asked to send us back our registration form filled in and signed and the saliva sample.


Tel.:+420 26136 1011, +420 26136 2346 Fax:+420 26136 2370, +420 24171 2242





REPORT: Number of donors/cord blood units newly added in the Registry during the year 2010: In 2010, CSCR recruited and performed HLA typing on 529 donors. Entry in the registry is restricted by age (18-35 years) and good health. Donors can register via website, by phone or by submitting the application form to the registry address. Registration of cord blood units is performed in cooperation with the Cord Blood Bank Czech Republic.

Number of donors/CBU newly added to the registry during the year 2010

310 number of donors

529

I.

number of CBU

Number of registered donors as of 31 December 2010: At the end of December 2010, total 23 811 donors were registered in CSCR. 25000

20000

16980

17913

19178 19206 18538 19098

20015 20199

15000

numbers of donors numbers of CBU 10000

5000

1850 1044 1394

3317 3612 2463 2792 2994

0

2003 2004 2005 2006


2007 2008 2009 2010

Tel.:+420 26136 1011, +420 26136 2346 Fax:+420 26136 2370, +420 24171 2242





II.

CSCR donors by age and gender: Age of CSCR donors 9 000 8 000

3 570 7 000

3 442

6 000 5 000 4 000

Females

4 392

Males

2 156

3 000

3 103

2 000

1 568

1 000 0

631 346 18 - 25

563 428 26 - 35

36 - 45

46 -55

> 55

Age

Sex of CSCR donors

Males 10 362


9 837

Females

Tel.:+420 26136 1011, +420 26136 2346 Fax:+420 26136 2370, +420 24171 2242





Number and type of donations in the year 2010: In 2010, 10 transplants from CSCR donors were performed in Czech and international patients.

III.

The total number of CBUs exported for international patients was 13. The total number of donations for Czech patients organized by CSCR in cooperation with other registries was 65. Number and type of donations of CSCR donors for patients in CR and abroad 14

13

12 10

Bone Marrow PBSC

8

CBU

6

DLI 3

4

2

2

2 1

2

0

0

0

Donations for patients abroad

Donations for patients in CR

Type of donations for patients in CR organized by CSCR in cooperation with other registries

1 5

17

Bone Marrow PBSC CBU

42


DLI

Tel.:+420 26136 1011, +420 26136 2346 Fax:+420 26136 2370, +420 24171 2242





IV.

Search requests for Czech patients: The total number of search requests sent from TCs in Czech Republic was 148 in 2010.

Search requests for patients in CR 200

174

180

148

146

160

127

140 120

133

123 101

97

100 80 60 40 20 0 2003

2004

2005

2006

2007

2008

2009

2010

year

V.

Search requests for international patients: The total number of search requests for patients abroad was 16 677 in 2010.

Requests for the search of a donor for patients abroad 18000

16677 15136

16000

14062 14000

12700 11000

12000

9943 10000 8000 6000 4000 2000

1425 382

0 2003

2004

2005

2006

2007

2008

2009

2010

year


Tel.:+420 26136 1011, +420 26136 2346 Fax:+420 26136 2370, +420 24171 2242

MUDr. Lenka Záhlavová Mgr. Irina Kolaříková

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