133
DAFTAR PUSTAKA
Ali, K., Sutaryo, Purwanto, I., Mulatsih, S., Supriyadi, E., Widjajanto, P.H., Sumadiono, Nurse, J. 2010. ‘Yogyakarta pediatric cancer registry: an international collaborative project of University Gadjah Mada, University of Saskatchewan, and the Saskatchewan cancer agency’, APJCP, 11(1):131136. Al-Momani, S.M., 2013, ‘Informal social support: a collaborative stress management initiative for mothers of cancer children’, Int J Psychol Stud, 5(2):19-31. American Cancer Society, 2014, Children Diagnosed With Cancer: Dealing With Diagnosis, diakses di www.cancer.org pada 1 November 2014 Arikunto, S. 2005, Manajemen Penelitian, Penerbit Rineka Cipta, Jakarta. Bary, P.D. 1996, Psychosocial nursing care of physically ill patients and their families, 3rd edn, Lippincott, Philadelphia, 303. Canadian Cancer Society, 2014, Emotion and cancer, http://www.cancer.ca/en/cancer-information/cancer-journey/recentlydiagnosed/emotions-and-cancer, diakses tanggal 5 Januari 2014. Cancer Research UK, 2014, Childhood cancer survival statistics, http://www.cancerresearchuk.org/cancerinfo/cancerstats/childhoodcancer/sur vival/childhood-cancer-survival-statistics, diakses tanggal 22 April 2014. Cohen, S., Gottlieb, H.H. & Underwood, L.G. 2000, How social relationship influence health, in Social relationship and health, Oxford University Press, New York, 10-14. Cohen, S. & Pressman, S. 2004, The stres-buffering hypothesis. In N. Anderson (Ed.), Encyclopedia of health and behavior, Sage Publications: International educational and professional publisher, Thousand Oaks, 780-781. Cohen, S. & Syme, S.L. 1985, Issues in the study and application of social support in:social support and health, in Social support and Health, Academic Press Inc, San Fransisco, 4-11. Cresswell, J.W. 2008, Research design: qualitative, quantitative, and mixed methods approaches,3 rd edn, Sage Publication. California. Terjemahan A. Fawaid. 2010. Research design:pendekatan Kualitatif, Kuantitatif, dan Mixed, edk 1, Pustaka Pelajar, Yogyakarta, 314-337.
134
Cresswell, J.W. & Clark, V.L.P. 2011, Designing and conducting mixed methods research, SAGE publication : International educational and professional publisher, United States of America, 69-81. Dempsey, P.A. dan Dempsey, A.D. 2002, Riset keperawatan:buku ajar dan latihan, Penerbit Buku Kedokteran EGC, Jakarta. Dijk, J.V., Grootenhuis, M.A., Imhof, S.M., Kettenis, P.T.C., Moll, A.C., Huisman, J. 2009, ‘Coping strategies of retinoblastoma survivors in relation to behavioural problems’, Psycho-Oncology, 18(12):1281–1289. Dockerty, J.D., Williams, S.M., McGee, R. dan Skegg, D.C. 2000, ‘Impact of childhood cancer on the mental health of parents,’, Med Pediatr Oncol, 35(5):475–483. Dowell, I.M. 2006, Measuring health: A guide to rating scale and questionnaire, 3rd edn, Oxford University Press, New York, 277-278. Dunn, J., Kay Ng, S., Holland, J., Aitken, J., Youl, P., Baade, P.D., dan Chambers, S.K. 2013, ‘Trajectories of psychological distress after colorectal cancer’, Psycho-Oncology, 22(8):1759–1765. Eiser, C. 1993, Growing up with a chronic disease : the impact on children and their families, Jessica Kingsley Publisher, London, 137-138. Fletcher, P.C. 2011, ‘My child has cancer : Finding the silver lining in every mother’s nightmare’, Issues Compr Pediatr Nurs., 34(1):40-55. Friedman, M.M. 2013, Keperawatan keluarga : teori dan praktik, Penerbit Buku Kedokteran EGC, Jakarta, 439-456. Gamayanti, I.L. 2006, ‘Stres, koping dan pencapaian adaptasi anak yang menderita leukemia limfoblastik akut’, Desertasi tidak diterbitkan, Fakultas Kedokteran Universitas Gadjah Mada. Han, H.R. 2003, ‘Issues and innovations in nursing practice : korean mothers’ psychosocial adjustment to their children’s cancer’, J Adv Nurs, 44(5): 499–506 Hurlock, B.E. 1999, Psikologi perkembangan : suatu pendekatan sepanjang rentang kehidupan, edk 5, Penerbit Erlangga, Jakarta. Hutomo, P. 2006, ‘Sumbangan kecemasan ibu terhadap kecemasan anak yang sedang dirawat inap di Rumah Sakit Khusus Anak Empat Lima’, Skripsi tidak diterbitkan, Fakultas Kedokteran Universitas Gadjah Mada.
135
Hockenbery & Wilson, 2011, Wong’s essentials of Nursing, 8th edn, St.Louis, Mosby, New York, 46-59. House, J. S. & Kahn, R. L. (1985). Measures and concepts of social support. In S. Cohen & S. L.Syme (Eds.), Social support and health, Academic Press, New York, 83-108. Hutter, J.J. 2010, ‘Childhood leukemia’, Pediatr Rev, 31(6):234-240. International Union Against Cancer 2009, Global Action Against Cancer. International Union Against Cancer dan World Health Organization, Geneva, 1-21. Ismanto, S.H. 1999, ‘Kontribusi dukungan sosial terhadap kesembuhan gangguan psikosomatik asma bronkhiale di RSUP. Dr. Sardjito Yogyakarta’, tesis tidak diterbitkan, Fakultas kedokteran Universitas Gadjah Mada. James, S.R. & Ashwill, J.W. 2007, Nursing care of childreen principles & practice, WB Sauders Elsevier, Canada, 754-783. Jenice, R.E. & Nowlish, E.A. 1994, Nursing&human need approach, 5th edn, Lippincott, Philadelphia,350. Jignasa, B. & Mandakini P. 2011, ‘Profile of pediatric malignancy: a three year study’, NJCM, 2(1):24-27 Kaplan, H.I. & Saddock, D.J. 1997, Comprehensive textbook of psychiatry, Lippincott, Philadelphia. Ka¨ stel, A., Enska¨ r, K. & Bjo¨ rk, O. 2011, ‘Parents’ views on information in childhood cancer care’, EJON, 15(4):290–295. Kail, R. V. dan Cavanaugh, J.C. 2013, Human development: A life-span view, 6th edn, Belmont CA: Wadsworth, America. Kodish, E., Noll, R., Ruccione, K., Lange, B., Angiolillo, A., dan Pentz, R. 2004, ‘Communication of randomization in childhood leukemia trials’, JAMA, 291(4):470-475. Kohlsdorf, M. 2012, ‘Psychosocial impact of pediatric cancer on parents: a literature review’, Paidéia, 22(51):119-129. Lemeshow, S., Hosmer Jr,. D.W., Klar, J. dan Lwanga, S.K. 1997, Edisi bahasa Indonesia :besar sampel dalam penelitian kesehatan, Gadjah Mada University Press, Yogyakarta.
136
Linet, M.S., Wacholder, S. dan Zahm, S.H. 2003, ‘Interpreting epidemiologic research:lesson from studies of chilhood cancer’, Pediatrics, 112(1):218-232. Masa'Deh, R., Collier, J. dan Hall, C., 2012, ‘Parental stres when caring for a child with cancer in Jordan: a cross-sectional survey’, HQLO, 10:1-7. Matt, G.E. dan Dean, A. 1993, ‘Social support from friends and psychological distres among elderly persons: moderator effects of age’, J Health Soc Behav, 34(3):187-200. Miedema, B., Easley, J., Fortin, P., Hamilton, R. dan Mathews, M. 2008, ‘The economic impact on families when a child is diagnosed with cancer’, Curr Oncol, 15(4): 8-13. Miles, M.B & Huberman, A.M. 1994. Qualitative data analysis, 2nd ed, SAGE Publication: International educational and professional publisher, California, 24-26. Moleong, L.J. 2006, Metodologi penelitian kualitatif, PT Remaja Rosdakarya, Bandung. Mulatsih, S., Sunarto dan Sutaryo 2009, 'Fusi gen translocation est leukemia acute myeloid leukemia (tel aml1) sebagai faktor prognosis pada leukemia limfoblastik akut anak'. Sari Pediatri , 10(6):404-409 Mulatsih, S., Sutaryo, dan Purwanto, I. 2005, ‘The outcome of childhood Acute Lymphoblastic Leukemia (ALL) in DR. Sardjito Hospital with WK-ALL protokol’, KONIKA XIII, Child Health Department Hasan Sadikin General Hospital. Murray, J.S. 2001, ‘Social support for school-aged siblings of children with cancer: a comparison between parent and sibling perceptions’, J Pediatr Oncol Nurs, 18(3):90-104. Nelson 2000, Nelson teksbook of pediatrics, 15th edn : Alih Bahasa oleh Behrman, Kliegman, Arvin, Penerbit buku kedokteran EGC, Jakarta. Niven, N. 2008, Psikologi kesehatan : Pengantar untuk perawat & professional kesehatan lain, edk 2: alih bahasa oleh Agung Waluyo, Penerbit Buku Kedokteran EGC, Jakarta, 121-138. Norberg, A.L., Lindblad, F., dan Boman, K.K. 2006, ‘Support-seeking, perceived support, and anxiety in mothers and fathers after children’s cancer treatment’, Psycho-Oncology, 15(4):335–343.
137
Norberg, A.L. & Boman, K.K. 2007, ‘Parents’ perceptions of support when a child has cancer: a longitudinal perspective’, Cancer Nurs, 30(4):294-301 Norberg, A.L. & Boman, K.K. 2008, ‘Parent distres in childhood cancer: a comparation evalution of posttraumatic stres symptom, depression & anxiety’, Acta Oncol, 47(2):267-274. Patiño-Fernández, A.M., Pai Ahna, L.H., Alderfer, M., Hwang, W., Reilly, A., dan Kazak, A.E. 2008, ‘Acute stress in parents of children newly diagnosed with cancer’. Pediatr Blood Cancer, 50(2):289–292. Paavola, M., Vartiainen, E. dan Haukkala, A. 2004, ‘Smoking from adolescence to adulthhood :the effects of parental and own socioeconomic status’, Eur J Pub Health, 14(4):417-421 Pakenham, K.I & Bursnall, B., 2006, Relations between social support, appraisal and coping and both positive and negative outcomes for children of a parent with multiple sclerosis and comparisons with children of healthy parents, Clin Rehabil, 20: 709-723. Pedro, I.C.S, Galvão, C.M., Rocha, S.M.M., Nascimento, L.C. 2008, ‘Social support and families of children with cancer: an integrative review’. Rev Latino-am Enfermagem maio-junho,16(3):477-83. Perz, J., Ussher, J.M., Butow, P., Wain, G. 2011, ‘Gender differences in cancer carer psychological distress: an analysis of moderators and mediators’, Eur J Cancer Care, 20(5):610–619. Puspita, V.T. 2007, ‘Hubungan antara dukungan sosial dengan depresi pada pasien fraktur pasca gampa di kecamatan Jetis Kabupaten Bantul Yogyakarta’, Skripsi tidak diterbitkan, Fakultas Kedokteran Universitas Gadjah Mada. Riset Kesehatan Dasar (Riskesdas), 2013. Riset Kesehatan Dasar 2013, Badan Penelitian Dan Pengembangan Kesehatan: Kementerian Kesehatan RI, Jakarta Rosenberg, A.R., Wolfe, J., Bradford, M.C., Shaffer, M.L., Yi-Frazier, J.P., Curtis, J.R., Syrjala, K.L. dan Baker, K.S. 2013, ‘Resilience and psychosocial outcomes in parents of children with cancer’, Pediatr Blood Cancer, 61(3):552-7
138
Sahler, O.J., Fairclough, D.L., Phipps, S., Mulhern, R.K., Dolgin, M.J., Noll, R.B., Katz, E.R., Varni, J.W., Copeland, D.R., Butler, R.W. 2005, ‘Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: report of a multisite randomized trial’, J Consult Clin Psychol, 73(2):272-83. Santoso, S. 2005, Mengatasi berbagai masalah statistik dengan spss versi 11.5, Penerbit PT.Elex Media Komputindo, Jakarta. Sarafino, E.P. 1998, Health psychology:biopsychosocial interactions, 3rd edn, John Wiley&Sonc Inc, United States of America, 97-157. Sarason, I.G., Levine, H.M., Basham, R.B., dan Sarason, B.R. 1983, ‘Assesing social support: the social support questionnaire’, J Pers Soc Psychol, 44(1):127-139. Sastroasmoro, S. dan Ismael, S. 2008, Dasar-dasar metodologi penelitian klinis, edk 3, Sagung Seto, Jakarta, 78-89. Sayeed, S., Barnes,I., Cairns, B.J., Finlayson, A. dan Ali, R. 2013, ‘Childhood cancer incidence in British Indians & Whites in Leicester : 1996–2008’, PLoS ONE, 8(4):1-5 Schoenstadt, A. 2013, Anxiety and cancer, Diakses di http://anxiety.emedtv.com/anxiety/anxiety-and-cancer.html pada tanggal 16 Januari 2014. Smet, B. 1994, Psikologi kesehatan, PT.Gramedia Widiasarana Indonesia, Jakarta, 107-145. Smith, P. 2010, GABA & serotonin deficiency anxiety, Diakses dari http://www.balancingbrainchemistry.co.uk/33/GABA-DeficientAnxiety.html pada 10 Desember 2014. Speechley, K.N dan Noh, S. 1992, ‘Surviving childhood cancer, social support, and parents’ psychological adjustment’, J Pediatr Psychol, 17(1):15–31 Streisand, R., Braniecki, S., Tercyak, K.P. dan Kazak, A.E. 2001, ’Chilhood illness-related parenting stres : the pediatric inventory for parents’, J Pediatr Psychol, 26(3):155-162. Streisand, R., Kazak, A.E. dan Tercyak, K.P. 2003, ’Pediatric-specific parenting stres and family functioning in parents of children treated for cancer’, Child Health Care, 32(4):245–256.
139
Stuart, G.W. & Laraia, M.T. 2005, Principles and practice of psychiatric nursing, 8th edn, Elseiver, China, 260-294. Stuart, G.W. & Sundeen, S.J. 2006, Buku saku keperawatan jiwa, Penerbit Buku Kedokteran EGC, Jakarta. Sugiyono, 2013, Cara mudah menyusun : skripsi, tesis dan disertasi, Penerbit Alfabeta, Bandung. Supartini, Y. 2004, Buku ajar konsep dasar keperawatan anak, Penerbit Buku Kedokteran EGC, Jakarta. Tambayong, J. 2000, Patofisiologi untuk keperawatan, Penerbit Buku Kedokteran EGC, Jakarta. Tashakkori, A. & Teddlie, C. 2010, SAGE Handbook of mixed methods in social & behavioral research, 2nd edn, SAGE publication Ltd., United States of America. Taylor, S.E. 2006, Health Psychology, 6 th ed, Mc Graw Hill International Edition, New York, 199-210. Tomlinson, D. & Kline, N.E. 2010, Pediatric oncology nursing, 2nd ed, Springer Heidelberg, New York. Toro, A.J.D. 2008, ’Psychological impact of childhood cancer : public interest government relations office’, APA, 202:336. Undang-Undang Republik Indonesia, 2003, Undang-Undang Republik Indonesia tentang sistem pendidikan nasional, Jakarta. Undang-Undang Republik Indonesia, 2002, Undang-Undang Republik Indonesia No.23 Tahun 2002 tentang perlindungan anak, Jakarta. Utarini, A.U. 2000, Metoda penelitian kualitatif, Magister kesehatan ibu dan anak-Universitas Gadjah Mada, Yogyakarta, 29-33 Varcarolis, E.M. & Halter, M.J. 2010, Foundations of psychiatric mental health nursing a clinical approach, 6th ed, Elseiver, Canada, 212-239. Videback, S.L. 2011, Psychiatric-mental health nursing, 5th ed,Lippincott, Philadelphia, 125-130. Winnick, S., Lucas, David, O., Hartman, Adam, L., dan Toll, D. 2005, ‘ How do you improve Complience’, Pediatrics, 115(6):718-724.
140
Wong, D.L., Eaton, M.H., Wilson, D., Winkelstein, dan M.L.Schwartz, P. 2009, Buku ajar keperawatan pediatrik, edk 6, Vol. 1, Penerbit Buku Kedokteran EGC, Jakarta. Woodgate, R.L. 2005, ‘Life is never the same: childhood cancer narratives’, Eur J Cancer Care, 15(1):8-18. Wiersma, C.M.J.V., Van, J.M.M.K., Kolk, H.M.A.M., Koopman, H.M., Ball, L.M. dan Egeler, R.M. 2008, ‘Assessment of parental psychological stres in pediatric cancer: a review’, J Pediatr Psychol, 33(7):694-706. World Health Organization, 2013, Cancer, Diakses di http://www.who.int/mediacentre/factsheets/fs297/en/ tanggal 24 Desember 2013. World Health Organization 2008, Cancer control and knowledge into action : WHO guide for effective programmes, Department of Chronic Diseases and Health Promotion : World Health Organization, Switzerland, 3-36. World Health Organization 1996, Creating supportive environment for health:stories from third international conference on health promotion Sundsvall, Geneva, Sweden. Yeh, C.H. 2002, ‘Gender differences of parental distres in children with cancer’, J Adv Nurs, 38(6):598–606.
