OSTOMY ASSOCIATION and COLORECTAL CANCER

OSTOMY ASSOCIATION and

COLORECTAL CANCER

www.ILCO.cz 2012

Ostomists are people with permanent or temporary stoma or ureter terminal to the abdominal wall Reasons for ostomy are always serious illness

PROBLEMS - illnes - psychical - social HELP AND SUPPORT COULD BE FOUND IN EVERY STOMA ASSOCIATION

OSTOMY ASSOCIATION World association Doc. Kleinwächter Former president

IOA

Ostrava Praha

Opava

Příbram

EOA

European association

Czech ILCO

National association

Nový Jičín Tábor

Kladno

Brno K.Vary

Zlín Cheb

Clubs 20 + 5

NGO Organisation Czech ILCO associates ostomy clubs in CR Helps to defend interests of Czech ostomists in communication with: Goverment, Members of Parliament and Councillors, health insurance, health officers, medical devices company. Provides information to stomics and information to the public.

Main activities of Czech ILCO  cooperation with international associations  connection to the World Ostomy Organisation  preparing volunteer visitors  organization reconditioning residence  coordination clubs

The most common primary reason is the tumor of the colon Jaký je primární důvod vaší stomie? ZÁKLAD: Všichni respondenti, n=99 OTÁZKA: q29

neodpověděl 3%

after irradiation, tumor in the urinary bladder

jiné důvody 15%

záněty tlustého střeva 19%

ZDROJ: STEM/MARK, Stomici, 11/2009

nádor tlustého střeva 63%

Patients attend doctor at an advanced stage of disease Myslíte si, že existují vyšetření, která pomohou odhalit rakovinu tlustého střeva a konečníku v časných stádiích? ZÁKLAD: Všichni respondenti, n=99 OTÁZKA: q41

Myslíte si, že v České republice většina pacientů s rakovinou tlustého střeva a konečníku navštíví lékaře……? ZÁKLAD: Všichni respondenti, n=99 OTÁZKA: q43

neodpověděl/a 15%

neodpověděl/a 13% velmi pozdě, tj. v metastazující fázi nemoci 6%

ne 2%

ano 83% ZDROJ: STEM/MARK, Stomici, 11/2009

včas, tj. v ranné fázi nemoci 5%

ZDROJ: STEM/MARK, Stomici, 11/2009

spíše později, tj. v pokročilejší fázi nemoci 76%

Czech Republic is at the forefront of the world in occurrence of CRC Czech ILCO helps to promote prevention CRC - On traveling exhibitions at the League Against Cancer - at public events Propojený obrázek nelze zobrazit. Příslušný soubor byl pravděpodobně přesunut, přejmenován nebo odstraněn. Ověřte, zda propojení odkazuje na správný soubor a umístění.

Propojený obrázek nelze zobrazit. Příslušný soubor byl pravděpodobně přesunut, přejmenován nebo odstraněn. Ověřte, zda propojení odkazuje na správný soubor a umístění.

We want to know more about colorectal cancer Czech ILCO organise seminars within the project

Know CRC for its members actively participates in Brno Oncological Days South Bohemia Oncological Days Prague Onko Days We are working on a project You and We Together

www.rakovinastreva.cz

Project You and We together Medium-term targets: to abolish taboo topic bowel cancer in the eyes of the public and the media  to create an open space for communication with an emphasis on middle and younger generation  to help to abolish the isolation of patients  to help in sharing experiences of patients and their families  to provide an information of the correct quality and affordable health care and treatment  to provide support to patients and their associations in discussion with the media, payers, physicians and goverment authorities

Project You and We together Long-term target:  to inform the patients as the informed patient is better than treated patient  to create an active community of patients being able and willing to take fate into their hands, to help themselves and others

Medium: Web links of communication social networking medical professionals patient organizations public government authorities and the media

INFORMATION AND ADVISORY CENTRE FOR PEOPLE WITH a stoma bowel DISEASE

www.ILCO.cz Karlínské nám 59/12, Praha 8, room no.509, building SPCCH service is provided by trained volunteers FIT-ILCO

When? Monday from 2pm to 6pm/Thursday from 9am to 1pm After an agreement by mob: 728 870 963,601 324 100 [email protected]

We should meet any time.

If you want know more about us, come to see us.

You are widely invited

Thank you for your attention Marie Ředinová

www.ILCO.cz

www.ILCO.cz 2012